Health literacy – engaging the community in the co-creation of meaningful health navigation services: a study protocol

Abstract Background A large proportion of patients encounter barriers to access and navigation in complex healthcare systems. They are unable to obtain information and services and to take appropriate action to improve their health. Low health literacy affects the ability of individuals to benefit f...

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Main Authors: Christine Loignon, Sophie Dupéré, Martin Fortin, Vivian R. Ramsden, Karoline Truchon
Format: Article
Language:English
Published: BMC 2018-06-01
Series:BMC Health Services Research
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12913-018-3315-3
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author Christine Loignon
Sophie Dupéré
Martin Fortin
Vivian R. Ramsden
Karoline Truchon
author_facet Christine Loignon
Sophie Dupéré
Martin Fortin
Vivian R. Ramsden
Karoline Truchon
author_sort Christine Loignon
collection DOAJ
description Abstract Background A large proportion of patients encounter barriers to access and navigation in complex healthcare systems. They are unable to obtain information and services and to take appropriate action to improve their health. Low health literacy affects the ability of individuals to benefit from health services. Some social groups are disproportionately affected by low health literacy, including those with low educational attainment, Aboriginal people, and those on social assistance. These individuals face significant barriers in self-management of chronic diseases and in navigating the healthcare system. For these people, living in a context of deprivation contributes to maintaining disparities in access to healthcare and services. The objective of this study is to support knowledge co-construction and knowledge translation in primary care and services by involving underserved and Aboriginal people in research. Methods This study will integrate participatory health processes and action research to co-create, with patients, individuals, and community members impacted by health literacy, practical recommendations or solutions for facilitating navigation of the healthcare system by patients, individuals, and community members with less than optimal health literacy on how to best access health services. With this approach, academics and those for whom the research is intended will collaborate closely in all stages of the research to identify findings of immediate benefit to those impacted by health literacy and work together on knowledge translation. This study, carried out by researchers, community organizations and groups of people with low health literacy from three different regions of Quebec and Saskatchewan who can play an expert role in improving health services, will be conducted in three phases: 1) data collection; 2) data analysis and interpretation; and, 3) knowledge translation. Discussion Persons with low health literacy experience major obstacles in navigating the health system. This project will therefore contribute to addressing the gap between healthcare challenges and the needs of underserved patients with multi-morbidity and/or low health literacy who have complex health-related needs. It will pave the way for co-creating successful solutions for and with these communities that will increase their access to health services.
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spelling doaj.art-0ecdff842a334eeaaede058c9e158ab72022-12-22T02:42:34ZengBMCBMC Health Services Research1472-69632018-06-011811710.1186/s12913-018-3315-3Health literacy – engaging the community in the co-creation of meaningful health navigation services: a study protocolChristine Loignon0Sophie Dupéré1Martin Fortin2Vivian R. Ramsden3Karoline Truchon4Faculty of Medicine and Health Sciences, Department of Family and Emergency Medicine, Université de SherbrookeFaculty of Nursing, Université LavalFaculty of Medicine and Health Sciences, Department of Family and Emergency Medicine, Université de SherbrookeDepartment of Academic Family Medicine, College of Medicine, University of SaskatchewanFaculty of Medicine and Health Sciences, Department of Family and Emergency Medicine, Université de SherbrookeAbstract Background A large proportion of patients encounter barriers to access and navigation in complex healthcare systems. They are unable to obtain information and services and to take appropriate action to improve their health. Low health literacy affects the ability of individuals to benefit from health services. Some social groups are disproportionately affected by low health literacy, including those with low educational attainment, Aboriginal people, and those on social assistance. These individuals face significant barriers in self-management of chronic diseases and in navigating the healthcare system. For these people, living in a context of deprivation contributes to maintaining disparities in access to healthcare and services. The objective of this study is to support knowledge co-construction and knowledge translation in primary care and services by involving underserved and Aboriginal people in research. Methods This study will integrate participatory health processes and action research to co-create, with patients, individuals, and community members impacted by health literacy, practical recommendations or solutions for facilitating navigation of the healthcare system by patients, individuals, and community members with less than optimal health literacy on how to best access health services. With this approach, academics and those for whom the research is intended will collaborate closely in all stages of the research to identify findings of immediate benefit to those impacted by health literacy and work together on knowledge translation. This study, carried out by researchers, community organizations and groups of people with low health literacy from three different regions of Quebec and Saskatchewan who can play an expert role in improving health services, will be conducted in three phases: 1) data collection; 2) data analysis and interpretation; and, 3) knowledge translation. Discussion Persons with low health literacy experience major obstacles in navigating the health system. This project will therefore contribute to addressing the gap between healthcare challenges and the needs of underserved patients with multi-morbidity and/or low health literacy who have complex health-related needs. It will pave the way for co-creating successful solutions for and with these communities that will increase their access to health services.http://link.springer.com/article/10.1186/s12913-018-3315-3Health literacyParticipatory action researchKnowledge translationCo-creationHealth literacyAboriginal peoples
spellingShingle Christine Loignon
Sophie Dupéré
Martin Fortin
Vivian R. Ramsden
Karoline Truchon
Health literacy – engaging the community in the co-creation of meaningful health navigation services: a study protocol
BMC Health Services Research
Health literacy
Participatory action research
Knowledge translation
Co-creation
Health literacy
Aboriginal peoples
title Health literacy – engaging the community in the co-creation of meaningful health navigation services: a study protocol
title_full Health literacy – engaging the community in the co-creation of meaningful health navigation services: a study protocol
title_fullStr Health literacy – engaging the community in the co-creation of meaningful health navigation services: a study protocol
title_full_unstemmed Health literacy – engaging the community in the co-creation of meaningful health navigation services: a study protocol
title_short Health literacy – engaging the community in the co-creation of meaningful health navigation services: a study protocol
title_sort health literacy engaging the community in the co creation of meaningful health navigation services a study protocol
topic Health literacy
Participatory action research
Knowledge translation
Co-creation
Health literacy
Aboriginal peoples
url http://link.springer.com/article/10.1186/s12913-018-3315-3
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