Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers
Individuals diagnosed with developmental disability and mental illness (a “dual diagnosis”) contend with multiple challenges and system-related barriers. Using an interpretive description approach, separate qualitative interviews were conducted with adults with a dual diagnosis ( n = 7) and their ca...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2017-07-01
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| Series: | Global Qualitative Nursing Research |
| Online Access: | https://doi.org/10.1177/2333393617721646 |
| _version_ | 1819315637325922304 |
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| author | David B. Nicholas Avery Calhoun Anne Marie McLaughlin Janki Shankar Linda Kreitzer Masimba Uzande |
| author_facet | David B. Nicholas Avery Calhoun Anne Marie McLaughlin Janki Shankar Linda Kreitzer Masimba Uzande |
| author_sort | David B. Nicholas |
| collection | DOAJ |
| description | Individuals diagnosed with developmental disability and mental illness (a “dual diagnosis”) contend with multiple challenges and system-related barriers. Using an interpretive description approach, separate qualitative interviews were conducted with adults with a dual diagnosis ( n = 7) and their caregiving parents ( n = 8) to examine care-related experiences. Results indicate that individuals with a dual diagnosis and their families experience misunderstanding and stigma. Families provide informal complex care amid insufficient and uncoordinated services but are often excluded from formal care planning. A lack of available funding and services further impedes care. While negative care experiences are reported as prevalent, participants also describe instances of beneficial care. Overall, findings indicate a lack of sufficiently targeted resources, leaving families to absorb system-related care gaps. Recommendations include person- and family-centered care, navigation support, and capacity building. Prevention and emergency and crisis care services, along with housing, vocation, and other supports, are needed. Practice and research development regarding life span needs are recommended. |
| first_indexed | 2024-12-24T10:03:16Z |
| format | Article |
| id | doaj.art-0f7db0122f634e4aac0f17b4794f1231 |
| institution | Directory Open Access Journal |
| issn | 2333-3936 |
| language | English |
| last_indexed | 2024-12-24T10:03:16Z |
| publishDate | 2017-07-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Global Qualitative Nursing Research |
| spelling | doaj.art-0f7db0122f634e4aac0f17b4794f12312022-12-21T17:00:55ZengSAGE PublishingGlobal Qualitative Nursing Research2333-39362017-07-01410.1177/2333393617721646Care Experiences of Adults With a Dual Diagnosis and Their Family CaregiversDavid B. Nicholas0Avery Calhoun1Anne Marie McLaughlin2Janki Shankar3Linda Kreitzer4Masimba Uzande5University of Calgary, Edmonton, Alberta, CanadaUniversity of Calgary, Edmonton, Alberta, CanadaUniversity of Calgary, Edmonton, Alberta, CanadaUniversity of Calgary, Edmonton, Alberta, CanadaUniversity of Calgary, Edmonton, Alberta, CanadaUniversity of Calgary, Edmonton, Alberta, CanadaIndividuals diagnosed with developmental disability and mental illness (a “dual diagnosis”) contend with multiple challenges and system-related barriers. Using an interpretive description approach, separate qualitative interviews were conducted with adults with a dual diagnosis ( n = 7) and their caregiving parents ( n = 8) to examine care-related experiences. Results indicate that individuals with a dual diagnosis and their families experience misunderstanding and stigma. Families provide informal complex care amid insufficient and uncoordinated services but are often excluded from formal care planning. A lack of available funding and services further impedes care. While negative care experiences are reported as prevalent, participants also describe instances of beneficial care. Overall, findings indicate a lack of sufficiently targeted resources, leaving families to absorb system-related care gaps. Recommendations include person- and family-centered care, navigation support, and capacity building. Prevention and emergency and crisis care services, along with housing, vocation, and other supports, are needed. Practice and research development regarding life span needs are recommended.https://doi.org/10.1177/2333393617721646 |
| spellingShingle | David B. Nicholas Avery Calhoun Anne Marie McLaughlin Janki Shankar Linda Kreitzer Masimba Uzande Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers Global Qualitative Nursing Research |
| title | Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers |
| title_full | Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers |
| title_fullStr | Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers |
| title_full_unstemmed | Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers |
| title_short | Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers |
| title_sort | care experiences of adults with a dual diagnosis and their family caregivers |
| url | https://doi.org/10.1177/2333393617721646 |
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