Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis

BackgroundRemote measurement technologies (RMTs) have the potential to revolutionize major depressive disorder (MDD) disease management by offering the ability to assess, monitor, and predict symptom changes. However, the promise of RMT data depends heavily on sustained user...

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Main Authors: Katie M White, Erin Dawe-Lane, Sara Siddi, Femke Lamers, Sara Simblett, Gemma Riquelme Alacid, Alina Ivan, Inez Myin-Germeys, Josep Maria Haro, Carolin Oetzmann, Priya Popat, Aki Rintala, Elena Rubio-Abadal, Til Wykes, Claire Henderson, Matthew Hotopf, Faith Matcham
Format: Article
Language:English
Published: JMIR Publications 2023-01-01
Series:JMIR Human Factors
Online Access:https://humanfactors.jmir.org/2023/1/e39479
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author Katie M White
Erin Dawe-Lane
Sara Siddi
Femke Lamers
Sara Simblett
Gemma Riquelme Alacid
Alina Ivan
Inez Myin-Germeys
Josep Maria Haro
Carolin Oetzmann
Priya Popat
Aki Rintala
Elena Rubio-Abadal
Til Wykes
Claire Henderson
Matthew Hotopf
Faith Matcham
author_facet Katie M White
Erin Dawe-Lane
Sara Siddi
Femke Lamers
Sara Simblett
Gemma Riquelme Alacid
Alina Ivan
Inez Myin-Germeys
Josep Maria Haro
Carolin Oetzmann
Priya Popat
Aki Rintala
Elena Rubio-Abadal
Til Wykes
Claire Henderson
Matthew Hotopf
Faith Matcham
author_sort Katie M White
collection DOAJ
description BackgroundRemote measurement technologies (RMTs) have the potential to revolutionize major depressive disorder (MDD) disease management by offering the ability to assess, monitor, and predict symptom changes. However, the promise of RMT data depends heavily on sustained user engagement over extended periods. In this paper, we report a longitudinal qualitative study of the subjective experience of people with MDD engaging with RMTs to provide insight into system usability and user experience and to provide the basis for future promotion of RMT use in research and clinical practice. ObjectiveWe aimed to understand the subjective experience of long-term engagement with RMTs using qualitative data collected in a longitudinal study of RMTs for monitoring MDD. The objectives were to explore the key themes associated with long-term RMT use and to identify recommendations for future system engagement. MethodsIn this multisite, longitudinal qualitative research study, 124 semistructured interviews were conducted with 99 participants across the United Kingdom, Spain, and the Netherlands at 3-month, 12-month, and 24-month time points during a study exploring RMT use (the Remote Assessment of Disease and Relapse-Major Depressive Disorder study). Data were analyzed using thematic analysis, and interviews were audio recorded, transcribed, and coded in the native language, with the resulting quotes translated into English. ResultsThere were 5 main themes regarding the subjective experience of long-term RMT use: research-related factors, the utility of RMTs for self-management, technology-related factors, clinical factors, and system amendments and additions. ConclusionsThe subjective experience of long-term RMT use can be considered from 2 main perspectives: experiential factors (how participants construct their experience of engaging with RMTs) and system-related factors (direct engagement with the technologies). A set of recommendations based on these strands are proposed for both future research and the real-world implementation of RMTs into clinical practice. Future exploration of experiential engagement with RMTs will be key to the successful use of RMTs in clinical care.
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spelling doaj.art-0fe8feb8477b41ebade50317357c33062023-08-28T23:30:21ZengJMIR PublicationsJMIR Human Factors2292-94952023-01-0110e3947910.2196/39479Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative AnalysisKatie M Whitehttps://orcid.org/0000-0002-0925-0175Erin Dawe-Lanehttps://orcid.org/0000-0002-8479-6696Sara Siddihttps://orcid.org/0000-0002-1494-9028Femke Lamershttps://orcid.org/0000-0003-4344-5766Sara Simbletthttps://orcid.org/0000-0002-8075-8238Gemma Riquelme Alacidhttps://orcid.org/0000-0002-6813-3577Alina Ivanhttps://orcid.org/0000-0003-3633-1955Inez Myin-Germeyshttps://orcid.org/0000-0002-3731-4930Josep Maria Harohttps://orcid.org/0000-0002-3984-277XCarolin Oetzmannhttps://orcid.org/0000-0003-1480-917XPriya Popathttps://orcid.org/0000-0002-2946-0700Aki Rintalahttps://orcid.org/0000-0002-0066-4697Elena Rubio-Abadalhttps://orcid.org/0000-0002-5845-5636Til Wykeshttps://orcid.org/0000-0002-5881-8003Claire Hendersonhttps://orcid.org/0000-0002-6998-5659Matthew Hotopfhttps://orcid.org/0000-0002-3980-4466Faith Matchamhttps://orcid.org/0000-0002-4055-904X BackgroundRemote measurement technologies (RMTs) have the potential to revolutionize major depressive disorder (MDD) disease management by offering the ability to assess, monitor, and predict symptom changes. However, the promise of RMT data depends heavily on sustained user engagement over extended periods. In this paper, we report a longitudinal qualitative study of the subjective experience of people with MDD engaging with RMTs to provide insight into system usability and user experience and to provide the basis for future promotion of RMT use in research and clinical practice. ObjectiveWe aimed to understand the subjective experience of long-term engagement with RMTs using qualitative data collected in a longitudinal study of RMTs for monitoring MDD. The objectives were to explore the key themes associated with long-term RMT use and to identify recommendations for future system engagement. MethodsIn this multisite, longitudinal qualitative research study, 124 semistructured interviews were conducted with 99 participants across the United Kingdom, Spain, and the Netherlands at 3-month, 12-month, and 24-month time points during a study exploring RMT use (the Remote Assessment of Disease and Relapse-Major Depressive Disorder study). Data were analyzed using thematic analysis, and interviews were audio recorded, transcribed, and coded in the native language, with the resulting quotes translated into English. ResultsThere were 5 main themes regarding the subjective experience of long-term RMT use: research-related factors, the utility of RMTs for self-management, technology-related factors, clinical factors, and system amendments and additions. ConclusionsThe subjective experience of long-term RMT use can be considered from 2 main perspectives: experiential factors (how participants construct their experience of engaging with RMTs) and system-related factors (direct engagement with the technologies). A set of recommendations based on these strands are proposed for both future research and the real-world implementation of RMTs into clinical practice. Future exploration of experiential engagement with RMTs will be key to the successful use of RMTs in clinical care.https://humanfactors.jmir.org/2023/1/e39479
spellingShingle Katie M White
Erin Dawe-Lane
Sara Siddi
Femke Lamers
Sara Simblett
Gemma Riquelme Alacid
Alina Ivan
Inez Myin-Germeys
Josep Maria Haro
Carolin Oetzmann
Priya Popat
Aki Rintala
Elena Rubio-Abadal
Til Wykes
Claire Henderson
Matthew Hotopf
Faith Matcham
Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis
JMIR Human Factors
title Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis
title_full Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis
title_fullStr Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis
title_full_unstemmed Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis
title_short Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis
title_sort understanding the subjective experience of long term remote measurement technology use for symptom tracking in people with depression multisite longitudinal qualitative analysis
url https://humanfactors.jmir.org/2023/1/e39479
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