The use of formal care for dementia from a professional perspective: a scoping review

Abstract Background and objectives The progressive character of dementia usually leads to a continuously increasing need for support. There is some evidence of late use of professional support during the disease course. We aim to provide an overview of aspects influencing access and use of formal ca...

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Main Authors: Stefanie Bergmann, Julia Peper, Anja Bieber
Format: Article
Language:English
Published: BMC 2022-06-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-022-08229-2
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author Stefanie Bergmann
Julia Peper
Anja Bieber
author_facet Stefanie Bergmann
Julia Peper
Anja Bieber
author_sort Stefanie Bergmann
collection DOAJ
description Abstract Background and objectives The progressive character of dementia usually leads to a continuously increasing need for support. There is some evidence of late use of professional support during the disease course. We aim to provide an overview of aspects influencing access and use of formal care in dementia from the perspective of health and social care professionals. Additionally, the perspectives of professionals and people with dementia/informal carers will be compared. Methods We conducted a scoping review with a systematic literature search in Medline via Ovid in January 2019 and updated this in April 2020 and in May 2021. Publications were considered eligible when focusing on influencing aspects of the use of formal care or support for people with dementia in an outpatient setting from the perspective of health professionals. Included publications were critically appraised using the Mixed Method Appraisal Tool. We identified aspects of access to and use of formal care and support services. A consultation exercise with three specialised trained dementia care nurses was conducted to validate our results. Results We included 29 studies: n = 20 qualitative, n = 6 quantitative-descriptive, n = 3 mixed-methods. Various support services were identified, but a focus was on services for diagnostic and treatment of dementia. A wide range of influencing aspects (n = 15) describe the access to and use of formal care services. Aspects related to the complexity and structure of the healthcare system and the competence of professionals were frequently addressed. Second, attitudes and expectations of professionals, and experiences with people with dementia and their informal carers were identified. The dementia care nurses highlighted the importance of coordinated care to enhance dementia-specific competencies. Conclusions Health and social care professionals still describe barriers in accessing and using formal care due to various influences. Ways to improve access to and use of professional support in dementia should consider individual and system-level activities, as well as overarching aspects. Important topics are therefore education and training of professionals and coordinated dementia-specific care to provide adequate support for people with dementia and their relatives. Several professions may be involved in this increasingly important field, e.g., nurses with a dementia-specific training like dementia care nurses.
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spelling doaj.art-103f7c7a737e43459522aac520d0c2912022-12-22T03:36:45ZengBMCBMC Health Services Research1472-69632022-06-0122111910.1186/s12913-022-08229-2The use of formal care for dementia from a professional perspective: a scoping reviewStefanie Bergmann0Julia Peper1Anja Bieber2Institute of Health and Nursing Sciences, Martin Luther University Halle-WittenbergInstitute of Health and Nursing Sciences, Martin Luther University Halle-WittenbergInstitute of Health and Nursing Sciences, Martin Luther University Halle-WittenbergAbstract Background and objectives The progressive character of dementia usually leads to a continuously increasing need for support. There is some evidence of late use of professional support during the disease course. We aim to provide an overview of aspects influencing access and use of formal care in dementia from the perspective of health and social care professionals. Additionally, the perspectives of professionals and people with dementia/informal carers will be compared. Methods We conducted a scoping review with a systematic literature search in Medline via Ovid in January 2019 and updated this in April 2020 and in May 2021. Publications were considered eligible when focusing on influencing aspects of the use of formal care or support for people with dementia in an outpatient setting from the perspective of health professionals. Included publications were critically appraised using the Mixed Method Appraisal Tool. We identified aspects of access to and use of formal care and support services. A consultation exercise with three specialised trained dementia care nurses was conducted to validate our results. Results We included 29 studies: n = 20 qualitative, n = 6 quantitative-descriptive, n = 3 mixed-methods. Various support services were identified, but a focus was on services for diagnostic and treatment of dementia. A wide range of influencing aspects (n = 15) describe the access to and use of formal care services. Aspects related to the complexity and structure of the healthcare system and the competence of professionals were frequently addressed. Second, attitudes and expectations of professionals, and experiences with people with dementia and their informal carers were identified. The dementia care nurses highlighted the importance of coordinated care to enhance dementia-specific competencies. Conclusions Health and social care professionals still describe barriers in accessing and using formal care due to various influences. Ways to improve access to and use of professional support in dementia should consider individual and system-level activities, as well as overarching aspects. Important topics are therefore education and training of professionals and coordinated dementia-specific care to provide adequate support for people with dementia and their relatives. Several professions may be involved in this increasingly important field, e.g., nurses with a dementia-specific training like dementia care nurses.https://doi.org/10.1186/s12913-022-08229-2AccessHealth and social care professionalsDementiaFormal careInfluencing aspects
spellingShingle Stefanie Bergmann
Julia Peper
Anja Bieber
The use of formal care for dementia from a professional perspective: a scoping review
BMC Health Services Research
Access
Health and social care professionals
Dementia
Formal care
Influencing aspects
title The use of formal care for dementia from a professional perspective: a scoping review
title_full The use of formal care for dementia from a professional perspective: a scoping review
title_fullStr The use of formal care for dementia from a professional perspective: a scoping review
title_full_unstemmed The use of formal care for dementia from a professional perspective: a scoping review
title_short The use of formal care for dementia from a professional perspective: a scoping review
title_sort use of formal care for dementia from a professional perspective a scoping review
topic Access
Health and social care professionals
Dementia
Formal care
Influencing aspects
url https://doi.org/10.1186/s12913-022-08229-2
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