Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review

BackgroundCall detail records (CDRs) are collected by mobile network operators in the course of providing their service. CDRs are increasingly being used in research along with other forms of big data and represent an emerging data type with potential for public good. Many jurisdictions have infrast...

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Main Authors: Jones, Kerina Helen, Daniels, Helen, Heys, Sharon, Ford, David Vincent
Format: Article
Language:English
Published: JMIR Publications 2018-07-01
Series:JMIR mHealth and uHealth
Online Access:http://mhealth.jmir.org/2018/7/e161/
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author Jones, Kerina Helen
Daniels, Helen
Heys, Sharon
Ford, David Vincent
author_facet Jones, Kerina Helen
Daniels, Helen
Heys, Sharon
Ford, David Vincent
author_sort Jones, Kerina Helen
collection DOAJ
description BackgroundCall detail records (CDRs) are collected by mobile network operators in the course of providing their service. CDRs are increasingly being used in research along with other forms of big data and represent an emerging data type with potential for public good. Many jurisdictions have infrastructures for health data research that could benefit from the integration of CDRs with health data. ObjectiveThe objective of this study was to review how CDRs have been used in health research and to identify challenges and potential opportunities for their wider use in conjunction with health data. MethodsA literature review was conducted using structured search terms making use of major search engines. Initially, 4066 items were identified. Following screening, 46 full text articles were included in the qualitative synthesis. Information extracted included research topic area, population of study, datasets used, information governance and ethical considerations, study findings, and data limitations. ResultsThe majority of published studies were focused on low-income and middle-income countries. Making use of the location element in CDRs, studies often modeled the transmission of infectious diseases or estimated population movement following natural disasters with a view to implementing interventions. CDRs were used in anonymized or aggregated form, and the process of gaining regulatory approvals varied with data provider and by jurisdiction. None included public views on the use of CDRs in health research. ConclusionsDespite various challenges and limitations, anonymized mobile phone CDRs have been used successfully in health research. The use of aggregated data is a safeguard but also a further limitation. Greater opportunities could be gained if validated anonymized CDRs were integrated with routine health records at an individual level, provided that permissions and safeguards could be put in place. Further work is needed, including gaining public views, to develop an ethically founded framework for the use of CDRs in health research.
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spelling doaj.art-108149a424c742f89033e378783a492f2022-12-21T19:59:41ZengJMIR PublicationsJMIR mHealth and uHealth2291-52222018-07-0167e16110.2196/mhealth.9974Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: ReviewJones, Kerina HelenDaniels, HelenHeys, SharonFord, David VincentBackgroundCall detail records (CDRs) are collected by mobile network operators in the course of providing their service. CDRs are increasingly being used in research along with other forms of big data and represent an emerging data type with potential for public good. Many jurisdictions have infrastructures for health data research that could benefit from the integration of CDRs with health data. ObjectiveThe objective of this study was to review how CDRs have been used in health research and to identify challenges and potential opportunities for their wider use in conjunction with health data. MethodsA literature review was conducted using structured search terms making use of major search engines. Initially, 4066 items were identified. Following screening, 46 full text articles were included in the qualitative synthesis. Information extracted included research topic area, population of study, datasets used, information governance and ethical considerations, study findings, and data limitations. ResultsThe majority of published studies were focused on low-income and middle-income countries. Making use of the location element in CDRs, studies often modeled the transmission of infectious diseases or estimated population movement following natural disasters with a view to implementing interventions. CDRs were used in anonymized or aggregated form, and the process of gaining regulatory approvals varied with data provider and by jurisdiction. None included public views on the use of CDRs in health research. ConclusionsDespite various challenges and limitations, anonymized mobile phone CDRs have been used successfully in health research. The use of aggregated data is a safeguard but also a further limitation. Greater opportunities could be gained if validated anonymized CDRs were integrated with routine health records at an individual level, provided that permissions and safeguards could be put in place. Further work is needed, including gaining public views, to develop an ethically founded framework for the use of CDRs in health research.http://mhealth.jmir.org/2018/7/e161/
spellingShingle Jones, Kerina Helen
Daniels, Helen
Heys, Sharon
Ford, David Vincent
Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review
JMIR mHealth and uHealth
title Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review
title_full Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review
title_fullStr Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review
title_full_unstemmed Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review
title_short Challenges and Potential Opportunities of Mobile Phone Call Detail Records in Health Research: Review
title_sort challenges and potential opportunities of mobile phone call detail records in health research review
url http://mhealth.jmir.org/2018/7/e161/
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AT forddavidvincent challengesandpotentialopportunitiesofmobilephonecalldetailrecordsinhealthresearchreview