A systematic scoping review of early interventions for parents of deaf infants
Abstract Background Over 90% of the 50,000 deaf children in the UK have hearing parents, many of whom were not expecting a deaf child and may require specialist support. Deaf children can experience poorer long-term outcomes than hearing children across a range of domains. After early detection by t...
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| Format: | Article |
| Language: | English |
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BMC
2021-10-01
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| Series: | BMC Pediatrics |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12887-021-02893-9 |
| _version_ | 1819002794530570240 |
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| author | B. Wright R. Hargate M. Garside G. Carr T. Wakefield R. Swanwick I. Noon P. Simpson |
| author_facet | B. Wright R. Hargate M. Garside G. Carr T. Wakefield R. Swanwick I. Noon P. Simpson |
| author_sort | B. Wright |
| collection | DOAJ |
| description | Abstract Background Over 90% of the 50,000 deaf children in the UK have hearing parents, many of whom were not expecting a deaf child and may require specialist support. Deaf children can experience poorer long-term outcomes than hearing children across a range of domains. After early detection by the Universal Newborn Hearing Screening Programme, parents in the UK receive support from Qualified Teachers of the Deaf and audiologists but resources are tight and intervention support can vary by locality. There are challenges faced due to a lack of clarity around what specific parenting support interventions are most helpful. Methods The aim of this research was to complete a systematic scoping review of the evidence to identify early support interventions for parents of deaf infants. From 5577 identified records, 54 met inclusion criteria. Two reviewers screened papers through three rounds before completing data extraction and quality assessment. Results Identified parent support interventions included both group and individual sessions in various settings (including online). They were led by a range of professionals and targeted various outcomes. Internationally there were only five randomised controlled trials. Other designs included non-randomised comparison groups, pre / post and other designs e.g. longitudinal, qualitative and case studies. Quality assessment showed few high quality studies with most having some concerns over risk of bias. Conclusion Interventions commonly focused on infant language and communication followed by parental knowledge and skills; parent wellbeing and empowerment; and parent/child relationship. There were no interventions that focused specifically on parent support to understand or nurture child socio-emotional development despite this being a well-established area of poor outcome for deaf children. There were few UK studies and research generally was not of high quality. Many studies were not recent and so not in the context of recent healthcare advances. Further research in this area is urgently needed to help develop evidence based early interventions. |
| first_indexed | 2024-12-20T23:10:46Z |
| format | Article |
| id | doaj.art-10e4507a0b3f4db6afe59dd89b249207 |
| institution | Directory Open Access Journal |
| issn | 1471-2431 |
| language | English |
| last_indexed | 2024-12-20T23:10:46Z |
| publishDate | 2021-10-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Pediatrics |
| spelling | doaj.art-10e4507a0b3f4db6afe59dd89b2492072022-12-21T19:23:44ZengBMCBMC Pediatrics1471-24312021-10-0121111310.1186/s12887-021-02893-9A systematic scoping review of early interventions for parents of deaf infantsB. Wright0R. Hargate1M. Garside2G. Carr3T. Wakefield4R. Swanwick5I. Noon6P. Simpson7Leeds and York Partnership NHS Foundation Trust, COMIC ResearchLeeds and York Partnership NHS Foundation Trust, COMIC ResearchLeeds and York Partnership NHS Foundation Trust, COMIC ResearchThe University College London Ear InstituteNational Deaf Children’s Society and NatSIPUniversity of LeedsNational Deaf Children’s Society and NatSIPBritish Association of Teachers of the DeafAbstract Background Over 90% of the 50,000 deaf children in the UK have hearing parents, many of whom were not expecting a deaf child and may require specialist support. Deaf children can experience poorer long-term outcomes than hearing children across a range of domains. After early detection by the Universal Newborn Hearing Screening Programme, parents in the UK receive support from Qualified Teachers of the Deaf and audiologists but resources are tight and intervention support can vary by locality. There are challenges faced due to a lack of clarity around what specific parenting support interventions are most helpful. Methods The aim of this research was to complete a systematic scoping review of the evidence to identify early support interventions for parents of deaf infants. From 5577 identified records, 54 met inclusion criteria. Two reviewers screened papers through three rounds before completing data extraction and quality assessment. Results Identified parent support interventions included both group and individual sessions in various settings (including online). They were led by a range of professionals and targeted various outcomes. Internationally there were only five randomised controlled trials. Other designs included non-randomised comparison groups, pre / post and other designs e.g. longitudinal, qualitative and case studies. Quality assessment showed few high quality studies with most having some concerns over risk of bias. Conclusion Interventions commonly focused on infant language and communication followed by parental knowledge and skills; parent wellbeing and empowerment; and parent/child relationship. There were no interventions that focused specifically on parent support to understand or nurture child socio-emotional development despite this being a well-established area of poor outcome for deaf children. There were few UK studies and research generally was not of high quality. Many studies were not recent and so not in the context of recent healthcare advances. Further research in this area is urgently needed to help develop evidence based early interventions.https://doi.org/10.1186/s12887-021-02893-9DeafEarly interventionNewborn Hearing ScreeningParentsParent support intervention |
| spellingShingle | B. Wright R. Hargate M. Garside G. Carr T. Wakefield R. Swanwick I. Noon P. Simpson A systematic scoping review of early interventions for parents of deaf infants BMC Pediatrics Deaf Early intervention Newborn Hearing Screening Parents Parent support intervention |
| title | A systematic scoping review of early interventions for parents of deaf infants |
| title_full | A systematic scoping review of early interventions for parents of deaf infants |
| title_fullStr | A systematic scoping review of early interventions for parents of deaf infants |
| title_full_unstemmed | A systematic scoping review of early interventions for parents of deaf infants |
| title_short | A systematic scoping review of early interventions for parents of deaf infants |
| title_sort | systematic scoping review of early interventions for parents of deaf infants |
| topic | Deaf Early intervention Newborn Hearing Screening Parents Parent support intervention |
| url | https://doi.org/10.1186/s12887-021-02893-9 |
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