A youth-centred approach to improving engagement in HIV services: human-centred design methods and outcomes in a research trial in Kisumu County, Kenya
Methods We applied an iterative, four-phased HCD process in Kenya that included: (1) systematic review of extant knowledge, (2) prioritisation of design challenges, (3) a co-creation workshop and (4) translation tables to pair insights with trial intervention adaptations. The co-creation workshop wa...
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| Format: | Article |
| Language: | English |
| Published: |
BMJ Publishing Group
2023-11-01
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| Series: | BMJ Global Health |
| Online Access: | https://gh.bmj.com/content/8/11/e012606.full |
| _version_ | 1797300470877782016 |
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| author | Maya Petersen Laura K Beres Elizabeth A Bukusi Elvin H Geng Ingrid Eshun-Wilson Eliud Omondi Akama Jayne Lewis Kulzer Gladys Ontuga Harriet Adhiambo Sarah Bushuru Edwin Nyagesoa Joseph Osoro Isaya Opondo Norton Sang Bertha Oketch James Nyanga Cirilus Ogollah Osongo Evelyn Nyandieka Evelyn Ododa Eunice Omondi Felix Ochieng Clinton Owino Thomas Odeny Zachary Arochi Kwena Lisa L Abuogi |
| author_facet | Maya Petersen Laura K Beres Elizabeth A Bukusi Elvin H Geng Ingrid Eshun-Wilson Eliud Omondi Akama Jayne Lewis Kulzer Gladys Ontuga Harriet Adhiambo Sarah Bushuru Edwin Nyagesoa Joseph Osoro Isaya Opondo Norton Sang Bertha Oketch James Nyanga Cirilus Ogollah Osongo Evelyn Nyandieka Evelyn Ododa Eunice Omondi Felix Ochieng Clinton Owino Thomas Odeny Zachary Arochi Kwena Lisa L Abuogi |
| author_sort | Maya Petersen |
| collection | DOAJ |
| description | Methods We applied an iterative, four-phased HCD process in Kenya that included: (1) systematic review of extant knowledge, (2) prioritisation of design challenges, (3) a co-creation workshop and (4) translation tables to pair insights with trial intervention adaptations. The co-creation workshop was co-led by youth facilitators employing participatory activities to inform intervention adaptations. Iterative data analysis included rapid thematic analysis of visualised workshop outputs and notes using affinity mapping and dialogue to identify key themes. We conducted a survey to assess workshop acceptability among participants.Results Twenty-two participants engaged in the 4-day workshop. Co-creation activities yielded recommendations for improving planned interventions (eg, message frequency and content; strategies to engage hard-to-reach participants), critical principles to employ across interventions (eg, personalisation, AYA empowerment) and identification of unanticipated AYA HIV treatment priorities (eg, drug holidays, transition from adolescent to adult services). We revised intervention content, peer navigator training materials and study inclusion criteria in response to findings. The youth-led HCD workshop was highly acceptable to participants.Conclusions Research employing HCD among youth can improve interventions preimplementation through empathy, youth-led inquiry and real-time problem solving. Peer navigation may be most influential in improving retention when engagement with young people is based on mutual trust, respect, privacy and extends beyond HIV-specific support. Identifying opportunities for personalisation and adaptation within intervention delivery is important for AYAs. Patient engagement interventions that target young people should prioritise improved transition between youth and adult services, youth HIV status disclosure, AYA empowerment and healthcare worker responsiveness in interactions and episodic adherence interruptions. |
| first_indexed | 2024-03-07T23:07:43Z |
| format | Article |
| id | doaj.art-11412e044b3f46eb8a9eb21c69a34fdb |
| institution | Directory Open Access Journal |
| issn | 2059-7908 |
| language | English |
| last_indexed | 2024-03-07T23:07:43Z |
| publishDate | 2023-11-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Global Health |
| spelling | doaj.art-11412e044b3f46eb8a9eb21c69a34fdb2024-02-21T18:10:08ZengBMJ Publishing GroupBMJ Global Health2059-79082023-11-0181110.1136/bmjgh-2023-012606A youth-centred approach to improving engagement in HIV services: human-centred design methods and outcomes in a research trial in Kisumu County, KenyaMaya Petersen0Laura K Beres1Elizabeth A Bukusi2Elvin H Geng3Ingrid Eshun-Wilson4Eliud Omondi Akama5Jayne Lewis Kulzer6Gladys Ontuga7Harriet Adhiambo8Sarah Bushuru9Edwin Nyagesoa10Joseph Osoro11Isaya Opondo12Norton Sang13Bertha Oketch14James Nyanga15Cirilus Ogollah Osongo16Evelyn Nyandieka17Evelyn Ododa18Eunice Omondi19Felix Ochieng20Clinton Owino21Thomas Odeny22Zachary Arochi Kwena23Lisa L Abuogi24Biostatistics and Epidemiology, University of California, Berkeley, California, USADepartment of International Health, Johns Hopkins University Bloomberg School of Public Health, Baltimore, Maryland, USACentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaDepartment of Medicine, Washington University School of Medicine, St. Louis, Missouri, USADepartment of Medicine, Washington University School of Medicine, St. Louis, Missouri, USACentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaDepartment of Obstetrics, Gynecology, and Reproductive Sciences, University of California, San Francisco, California, USACentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaCentre for Microbiology Research (CMR), Kenya Medical Research Institute, Nairobi, KenyaDepartment of Pediatrics, University of Colorado, Denver, Colorado, USAMethods We applied an iterative, four-phased HCD process in Kenya that included: (1) systematic review of extant knowledge, (2) prioritisation of design challenges, (3) a co-creation workshop and (4) translation tables to pair insights with trial intervention adaptations. The co-creation workshop was co-led by youth facilitators employing participatory activities to inform intervention adaptations. Iterative data analysis included rapid thematic analysis of visualised workshop outputs and notes using affinity mapping and dialogue to identify key themes. We conducted a survey to assess workshop acceptability among participants.Results Twenty-two participants engaged in the 4-day workshop. Co-creation activities yielded recommendations for improving planned interventions (eg, message frequency and content; strategies to engage hard-to-reach participants), critical principles to employ across interventions (eg, personalisation, AYA empowerment) and identification of unanticipated AYA HIV treatment priorities (eg, drug holidays, transition from adolescent to adult services). We revised intervention content, peer navigator training materials and study inclusion criteria in response to findings. The youth-led HCD workshop was highly acceptable to participants.Conclusions Research employing HCD among youth can improve interventions preimplementation through empathy, youth-led inquiry and real-time problem solving. Peer navigation may be most influential in improving retention when engagement with young people is based on mutual trust, respect, privacy and extends beyond HIV-specific support. Identifying opportunities for personalisation and adaptation within intervention delivery is important for AYAs. Patient engagement interventions that target young people should prioritise improved transition between youth and adult services, youth HIV status disclosure, AYA empowerment and healthcare worker responsiveness in interactions and episodic adherence interruptions.https://gh.bmj.com/content/8/11/e012606.full |
| spellingShingle | Maya Petersen Laura K Beres Elizabeth A Bukusi Elvin H Geng Ingrid Eshun-Wilson Eliud Omondi Akama Jayne Lewis Kulzer Gladys Ontuga Harriet Adhiambo Sarah Bushuru Edwin Nyagesoa Joseph Osoro Isaya Opondo Norton Sang Bertha Oketch James Nyanga Cirilus Ogollah Osongo Evelyn Nyandieka Evelyn Ododa Eunice Omondi Felix Ochieng Clinton Owino Thomas Odeny Zachary Arochi Kwena Lisa L Abuogi A youth-centred approach to improving engagement in HIV services: human-centred design methods and outcomes in a research trial in Kisumu County, Kenya BMJ Global Health |
| title | A youth-centred approach to improving engagement in HIV services: human-centred design methods and outcomes in a research trial in Kisumu County, Kenya |
| title_full | A youth-centred approach to improving engagement in HIV services: human-centred design methods and outcomes in a research trial in Kisumu County, Kenya |
| title_fullStr | A youth-centred approach to improving engagement in HIV services: human-centred design methods and outcomes in a research trial in Kisumu County, Kenya |
| title_full_unstemmed | A youth-centred approach to improving engagement in HIV services: human-centred design methods and outcomes in a research trial in Kisumu County, Kenya |
| title_short | A youth-centred approach to improving engagement in HIV services: human-centred design methods and outcomes in a research trial in Kisumu County, Kenya |
| title_sort | youth centred approach to improving engagement in hiv services human centred design methods and outcomes in a research trial in kisumu county kenya |
| url | https://gh.bmj.com/content/8/11/e012606.full |
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