The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health
Background: Brain health is a multi-faceted concept used to describe brain physiology, cognitive function, mental health and well-being. Diseases of the brain account for one third of the global burden of disease and are becoming more prevalent as populations age. Diet, social interaction as well as...
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Frontiers Media S.A.
2020-08-01
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| Series: | Frontiers in Public Health |
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| Online Access: | https://www.frontiersin.org/article/10.3389/fpubh.2020.00387/full |
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| author | Isabelle Budin-Ljøsne Barbara Bodorkos Friedman Sana Suri Cristina Solé-Padullés Sandra Düzel Christian A. Drevon Christian A. Drevon William F. C. Baaré Athanasia Monika Mowinckel Enikő Zsoldos Kathrine Skak Madsen Rebecca Bruu Carver Paolo Ghisletta Paolo Ghisletta Paolo Ghisletta Mari R. Arnesen David Bartrés Faz Andreas M. Brandmaier Anders Martin Fjell Aud Kvalbein Richard N. Henson Rogier A. Kievit Laura Nawijn Roland Pochet Alfons Schnitzler Kristine B. Walhovd Larysa Zasiekina |
| author_facet | Isabelle Budin-Ljøsne Barbara Bodorkos Friedman Sana Suri Cristina Solé-Padullés Sandra Düzel Christian A. Drevon Christian A. Drevon William F. C. Baaré Athanasia Monika Mowinckel Enikő Zsoldos Kathrine Skak Madsen Rebecca Bruu Carver Paolo Ghisletta Paolo Ghisletta Paolo Ghisletta Mari R. Arnesen David Bartrés Faz Andreas M. Brandmaier Anders Martin Fjell Aud Kvalbein Richard N. Henson Rogier A. Kievit Laura Nawijn Roland Pochet Alfons Schnitzler Kristine B. Walhovd Larysa Zasiekina |
| author_sort | Isabelle Budin-Ljøsne |
| collection | DOAJ |
| description | Background: Brain health is a multi-faceted concept used to describe brain physiology, cognitive function, mental health and well-being. Diseases of the brain account for one third of the global burden of disease and are becoming more prevalent as populations age. Diet, social interaction as well as physical and cognitive activity are lifestyle factors that can potentially influence facets of brain health. Yet, there is limited knowledge about the population's awareness of brain health and willingness to change lifestyle to maintain a healthy brain. This paper introduces the Global Brain Health Survey protocol, designed to assess people's perceptions of brain health and factors influencing brain health.Methods: The Global Brain Health Survey is an anonymous online questionnaire available in 14 languages to anyone above the age of 18 years. Questions focus on (1) willingness and motivation to maintain or improve brain health, (2) interest in learning more about individual brain health using standardized tests, and (3) interest in receiving individualized support to take care of own brain health. The survey questions were developed based on results from a qualitative interview study investigating brain health perceptions among participants in brain research studies. The survey includes 28 questions and takes 15–20 min to complete. Participants provide electronically informed consent prior to participation. The current survey wave was launched on June 4, 2019 and will close on August 31, 2020. We will provide descriptive statistics of samples distributions including analyses of differences as a function of age, gender, education, country of residence, and we will examine associations between items. The European Union funded Lifebrain project leads the survey in collaboration with national brain councils in Norway, Germany, and Belgium, Brain Foundations in the Netherlands and Sweden, the National University of Ostroh Academy and the Women's Brain Project.Discussion: Results from this survey will provide new insights in peoples' views on brain health, in particular, the extent to which the adoption of positive behaviors can be encouraged. The results will contribute to the development of policy recommendations for supporting population brain health, including measures tailored to individual needs, knowledge, motivations and life situations. |
| first_indexed | 2024-12-23T10:48:50Z |
| format | Article |
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| institution | Directory Open Access Journal |
| issn | 2296-2565 |
| language | English |
| last_indexed | 2024-12-23T10:48:50Z |
| publishDate | 2020-08-01 |
| publisher | Frontiers Media S.A. |
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| series | Frontiers in Public Health |
| spelling | doaj.art-1150512dcfe34e67ae5a0198caee82a52022-12-21T17:49:56ZengFrontiers Media S.A.Frontiers in Public Health2296-25652020-08-01810.3389/fpubh.2020.00387545181The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain HealthIsabelle Budin-Ljøsne0Barbara Bodorkos Friedman1Sana Suri2Cristina Solé-Padullés3Sandra Düzel4Christian A. Drevon5Christian A. Drevon6William F. C. Baaré7Athanasia Monika Mowinckel8Enikő Zsoldos9Kathrine Skak Madsen10Rebecca Bruu Carver11Paolo Ghisletta12Paolo Ghisletta13Paolo Ghisletta14Mari R. Arnesen15David Bartrés Faz16Andreas M. Brandmaier17Anders Martin Fjell18Aud Kvalbein19Richard N. Henson20Rogier A. Kievit21Laura Nawijn22Roland Pochet23Alfons Schnitzler24Kristine B. Walhovd25Larysa Zasiekina26Department of Genetics and Bioinformatics, Norwegian Institute of Public Health, Oslo, NorwayDepartment of Psychology, Center for Lifespan Changes in Brain and Cognition, University of Oslo, Oslo, NorwayDepartment of Psychiatry and Oxford Centre for Human Brain Activity, Wellcome Centre for Integrative Neuroimaging, University of Oxford, Oxford, United KingdomDepartment of Medicine, Facultat de Medicina i Ciències de la Salut, Universitat de Barcelona, Barcelona, SpainCenter for Lifespan Psychology, Max Planck Institute for Human Development, Berlin, GermanyVitas AS, Oslo, NorwayDepartment of Nutrition, Faculty of Medicine, Institute of Basic Medical Sciences, University of Oslo, Oslo, NorwayDanish Research Centre for Magnetic Resonance, Centre for Functional and Diagnostic Imaging and Research, Copenhagen University Hospital Hvidovre, Hvidovre, DenmarkDepartment of Psychology, Center for Lifespan Changes in Brain and Cognition, University of Oslo, Oslo, NorwayDepartment of Psychiatry and Wellcome Centre for Integrative Neuroimaging (WIN), University of Oxford, Oxford, United KingdomDanish Research Centre for Magnetic Resonance, Centre for Functional and Diagnostic Imaging and Research, Copenhagen University Hospital Hvidovre, Hvidovre, Denmark0Communication Department, Norwegian Institute of Public Health, Oslo, Norway1Methodology and Data Analysis Unit, Faculty of Psychology and Educational Sciences, University of Geneva, Geneva, Switzerland2Faculty of Psychology, Swiss Distance University Institute, Brig, Switzerland3Swiss National Centre of Competence in Research LIVES, University of Geneva, Geneva, SwitzerlandDepartment of Psychology, Center for Lifespan Changes in Brain and Cognition, University of Oslo, Oslo, NorwayDepartment of Medicine, Facultat de Medicina i Ciències de la Salut, Universitat de Barcelona, Barcelona, SpainCenter for Lifespan Psychology, Max Planck Institute for Human Development, Berlin, GermanyDepartment of Psychology, Center for Lifespan Changes in Brain and Cognition, University of Oslo, Oslo, Norway4Norwegian Brain Council, Oslo, Norway5MRC Cognition and Brain Sciences Unit, Department of Psychiatry, University of Cambridge, Cambridge, United Kingdom6MRC Cognition and Brain Sciences Unit, University of Cambridge, Cambridge, United Kingdom7Department of Psychiatry, Amsterdam University Medical Centers, Amsterdam Neuroscience, Vrije Universiteit Amsterdam, Amsterdam, Netherlands8Belgian Brain Council, Université Libre de Bruxelles, Bruxelles, Belgium9Medical Faculty, Institute of Clinical Neuroscience and Medical Psychology, German Brain Council, Heinrich Heine University Düsseldorf, Düsseldorf, GermanyDepartment of Psychology, Center for Lifespan Changes in Brain and Cognition, University of Oslo, Oslo, Norway0The Ukrainian Psychotrauma Center, Lesya Ukrainka Eastern European National University, Lutsk, UkraineBackground: Brain health is a multi-faceted concept used to describe brain physiology, cognitive function, mental health and well-being. Diseases of the brain account for one third of the global burden of disease and are becoming more prevalent as populations age. Diet, social interaction as well as physical and cognitive activity are lifestyle factors that can potentially influence facets of brain health. Yet, there is limited knowledge about the population's awareness of brain health and willingness to change lifestyle to maintain a healthy brain. This paper introduces the Global Brain Health Survey protocol, designed to assess people's perceptions of brain health and factors influencing brain health.Methods: The Global Brain Health Survey is an anonymous online questionnaire available in 14 languages to anyone above the age of 18 years. Questions focus on (1) willingness and motivation to maintain or improve brain health, (2) interest in learning more about individual brain health using standardized tests, and (3) interest in receiving individualized support to take care of own brain health. The survey questions were developed based on results from a qualitative interview study investigating brain health perceptions among participants in brain research studies. The survey includes 28 questions and takes 15–20 min to complete. Participants provide electronically informed consent prior to participation. The current survey wave was launched on June 4, 2019 and will close on August 31, 2020. We will provide descriptive statistics of samples distributions including analyses of differences as a function of age, gender, education, country of residence, and we will examine associations between items. The European Union funded Lifebrain project leads the survey in collaboration with national brain councils in Norway, Germany, and Belgium, Brain Foundations in the Netherlands and Sweden, the National University of Ostroh Academy and the Women's Brain Project.Discussion: Results from this survey will provide new insights in peoples' views on brain health, in particular, the extent to which the adoption of positive behaviors can be encouraged. The results will contribute to the development of policy recommendations for supporting population brain health, including measures tailored to individual needs, knowledge, motivations and life situations.https://www.frontiersin.org/article/10.3389/fpubh.2020.00387/fullsurveybrain healthperceptionsattitudeslifestylecognitive health |
| spellingShingle | Isabelle Budin-Ljøsne Barbara Bodorkos Friedman Sana Suri Cristina Solé-Padullés Sandra Düzel Christian A. Drevon Christian A. Drevon William F. C. Baaré Athanasia Monika Mowinckel Enikő Zsoldos Kathrine Skak Madsen Rebecca Bruu Carver Paolo Ghisletta Paolo Ghisletta Paolo Ghisletta Mari R. Arnesen David Bartrés Faz Andreas M. Brandmaier Anders Martin Fjell Aud Kvalbein Richard N. Henson Rogier A. Kievit Laura Nawijn Roland Pochet Alfons Schnitzler Kristine B. Walhovd Larysa Zasiekina The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health Frontiers in Public Health survey brain health perceptions attitudes lifestyle cognitive health |
| title | The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health |
| title_full | The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health |
| title_fullStr | The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health |
| title_full_unstemmed | The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health |
| title_short | The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health |
| title_sort | global brain health survey development of a multi language survey of public views on brain health |
| topic | survey brain health perceptions attitudes lifestyle cognitive health |
| url | https://www.frontiersin.org/article/10.3389/fpubh.2020.00387/full |
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