The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study
This study aimed to explore the firsthand experiences of informal primary caregivers of women with female genital fistula in Uganda. Caregivers that accompanied women for surgery at Mulago National Teaching and Referral Hospital were recruited between January and September 2015. Caregivers participa...
| Main Authors: | , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Taylor & Francis Group
2023-01-01
|
| Series: | Global Public Health |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/17441692.2023.2242458 |
| _version_ | 1797678668140511232 |
|---|---|
| author | Alison M. El Ayadi Ashley Mitchell Hadija Nalubwama Suellen Miller Wagahta Semere Justus K. Barageine Abner P. Korn Susan Obore Ruby Lucas Josaphat Byamugisha |
| author_facet | Alison M. El Ayadi Ashley Mitchell Hadija Nalubwama Suellen Miller Wagahta Semere Justus K. Barageine Abner P. Korn Susan Obore Ruby Lucas Josaphat Byamugisha |
| author_sort | Alison M. El Ayadi |
| collection | DOAJ |
| description | This study aimed to explore the firsthand experiences of informal primary caregivers of women with female genital fistula in Uganda. Caregivers that accompanied women for surgery at Mulago National Teaching and Referral Hospital were recruited between January and September 2015. Caregivers participated in in-depth interviews and focus groups. Data were analysed thematically and informed adaptation of a conceptual framework. Of 43 caregivers, 84% were female, 95% family members, and most married and formally employed. Caregivers engaged in myriad personal care and household responsibilities, and described being on call for an average of 22.5 h per day. Four overlapping themes emerged highlighting social, economic, emotional, and physical experiences/consequences. The caregiving experience was informed by specific caregiver circumstances (e.g. personal characteristics, care needs of their patient) and dynamic stressors/supports within the caregiver’s social context. These results demonstrate that caregivers’ lived social, economic, emotional, and physical experiences and consequences are influenced by both social factors and individual characteristics of both the caregiver and their patient. This study may inform programmes and policies that increase caregiving supports while mitigating caregiving stressors to enhance the caregiving experience, and ultimately ensure its feasibility, particularly in settings with constrained resources. |
| first_indexed | 2024-03-11T23:03:15Z |
| format | Article |
| id | doaj.art-116817411206429590540adcf4d05e89 |
| institution | Directory Open Access Journal |
| issn | 1744-1692 1744-1706 |
| language | English |
| last_indexed | 2024-03-11T23:03:15Z |
| publishDate | 2023-01-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Global Public Health |
| spelling | doaj.art-116817411206429590540adcf4d05e892023-09-21T13:56:58ZengTaylor & Francis GroupGlobal Public Health1744-16921744-17062023-01-0118110.1080/17441692.2023.22424582242458The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative studyAlison M. El Ayadi0Ashley Mitchell1Hadija Nalubwama2Suellen Miller3Wagahta Semere4Justus K. Barageine5Abner P. Korn6Susan Obore7Ruby Lucas8Josaphat Byamugisha9University of CaliforniaUniversity of CaliforniaMakerere University College of Health SciencesUniversity of CaliforniaUniversity of CaliforniaMakerere University College of Health SciencesUniversity of CaliforniaMulago National Referral and Teaching HospitalUniversity of CaliforniaMakerere University College of Health SciencesThis study aimed to explore the firsthand experiences of informal primary caregivers of women with female genital fistula in Uganda. Caregivers that accompanied women for surgery at Mulago National Teaching and Referral Hospital were recruited between January and September 2015. Caregivers participated in in-depth interviews and focus groups. Data were analysed thematically and informed adaptation of a conceptual framework. Of 43 caregivers, 84% were female, 95% family members, and most married and formally employed. Caregivers engaged in myriad personal care and household responsibilities, and described being on call for an average of 22.5 h per day. Four overlapping themes emerged highlighting social, economic, emotional, and physical experiences/consequences. The caregiving experience was informed by specific caregiver circumstances (e.g. personal characteristics, care needs of their patient) and dynamic stressors/supports within the caregiver’s social context. These results demonstrate that caregivers’ lived social, economic, emotional, and physical experiences and consequences are influenced by both social factors and individual characteristics of both the caregiver and their patient. This study may inform programmes and policies that increase caregiving supports while mitigating caregiving stressors to enhance the caregiving experience, and ultimately ensure its feasibility, particularly in settings with constrained resources.http://dx.doi.org/10.1080/17441692.2023.2242458female genital fistulacaregiverugandaqualitativeconceptual frameworkstress |
| spellingShingle | Alison M. El Ayadi Ashley Mitchell Hadija Nalubwama Suellen Miller Wagahta Semere Justus K. Barageine Abner P. Korn Susan Obore Ruby Lucas Josaphat Byamugisha The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study Global Public Health female genital fistula caregiver uganda qualitative conceptual framework stress |
| title | The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study |
| title_full | The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study |
| title_fullStr | The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study |
| title_full_unstemmed | The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study |
| title_short | The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study |
| title_sort | social economic emotional and physical experiences of caregivers for women with female genital fistula in uganda a qualitative study |
| topic | female genital fistula caregiver uganda qualitative conceptual framework stress |
| url | http://dx.doi.org/10.1080/17441692.2023.2242458 |
| work_keys_str_mv | AT alisonmelayadi thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT ashleymitchell thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT hadijanalubwama thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT suellenmiller thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT wagahtasemere thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT justuskbarageine thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT abnerpkorn thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT susanobore thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT rubylucas thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT josaphatbyamugisha thesocialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT alisonmelayadi socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT ashleymitchell socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT hadijanalubwama socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT suellenmiller socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT wagahtasemere socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT justuskbarageine socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT abnerpkorn socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT susanobore socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT rubylucas socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy AT josaphatbyamugisha socialeconomicemotionalandphysicalexperiencesofcaregiversforwomenwithfemalegenitalfistulainugandaaqualitativestudy |