Understanding the patient voice in gout: a quantitative study conducted in Europe
Background: Although commonly diagnosed, gout often remains a poorly managed disease. This is partially due to a lack of awareness of the long-term effect of gout among patients and healthcare professionals. Aim: To understand unmet needs for patients and provide insight into achieving better treatm...
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| Format: | Article |
| Language: | English |
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Royal College of General Practitioners
2020-02-01
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| Series: | BJGP Open |
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| Online Access: | https://bjgpopen.org/content/4/1/bjgpopen20X101003 |
| _version_ | 1828371182161756160 |
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| author | Marc De Meulemeester Elsa Mateus Hilda Wieberneit-Tolman Neil Betteridge Lucy Ireland Gudula Petersen Nina Jeanette Maske Tim L Jansen Fernando Perez-Ruiz |
| author_facet | Marc De Meulemeester Elsa Mateus Hilda Wieberneit-Tolman Neil Betteridge Lucy Ireland Gudula Petersen Nina Jeanette Maske Tim L Jansen Fernando Perez-Ruiz |
| author_sort | Marc De Meulemeester |
| collection | DOAJ |
| description | Background: Although commonly diagnosed, gout often remains a poorly managed disease. This is partially due to a lack of awareness of the long-term effect of gout among patients and healthcare professionals. Aim: To understand unmet needs for patients and provide insight into achieving better treatment. Design & setting: A quantitative online questionnaire collected from 1100 people with gout from 14 countries within Europe. Method: Patients were recruited to complete an online survey via healthcare professional (HCP) referral, patient associations, or market research panels. Patients were included if they had been diagnosed with gout by a physician. Prior to commencement, patients were made aware that this study was sponsored by Grünenthal. The responses collected were collated and analyses were performed. Results: Patients had an average of 2.9 gout flares within a 12-month period. Although 79% of patients were satisfied with treatment, inadequate gout control was also reported by 71% of patients. Furthermore, 84% experienced moderate-to-severe pain with their most recent flare. Of those who acknowledged treatment dissatisfaction, only 24% discussed other options with their GP. Most patients reported irregular follow-up and serum uric acid (sUA) monitoring. In addition, loss of belief that more can be done was a key barrier for patients. Conclusion: Patients reported severe pain and social burden, coupled with low treatment expectation and lack of awareness of target sUA. Education around knowing and reaching sUA target is needed so that patients can receive and GPs can deliver higher quality management. |
| first_indexed | 2024-04-14T06:47:16Z |
| format | Article |
| id | doaj.art-11888ccaabc642ff97130272dd1f9644 |
| institution | Directory Open Access Journal |
| issn | 2398-3795 |
| language | English |
| last_indexed | 2024-04-14T06:47:16Z |
| publishDate | 2020-02-01 |
| publisher | Royal College of General Practitioners |
| record_format | Article |
| series | BJGP Open |
| spelling | doaj.art-11888ccaabc642ff97130272dd1f96442022-12-22T02:07:08ZengRoyal College of General PractitionersBJGP Open2398-37952020-02-014110.3399/bjgpopen20X101003Understanding the patient voice in gout: a quantitative study conducted in EuropeMarc De Meulemeester0Elsa Mateus1Hilda Wieberneit-Tolman2Neil Betteridge3Lucy Ireland4Gudula Petersen5Nina Jeanette Maske6Tim L Jansen7Fernando Perez-Ruiz8GP Private Practice, Cabinet Médical Demeulemeester, Gozée, BelgiumPresident of the Board of Portuguese League Against Rheumatic Diseases, Liga Portuguesa Contra as Doenças Reumáticas, Lisboa, PortugalExecutive Director of PijnPlatform Nederland, Pijn Platform Nederland, Leiden, The NetherlandsDirector, Neil Betteridge Associates, London, UKHealth Partner, Hall & Partners, London, UKDirector Governmental Affairs & Patient Centricity, Grünenthal GmbH, Aachen, GermanySenior Manager Market Research & Insights, Department Analytics & Insights, Grünenthal GmbH, Aachen, GermanyMedical Leader, Department of Rheumatology, Expert Centre Complex Gout, VieCuri Medical Centre, Venlo, The NetherlandsAssociate Professor, Department of Medicine, Medicine and Nursery School, University of the Basque Country, Cruces, SpainBackground: Although commonly diagnosed, gout often remains a poorly managed disease. This is partially due to a lack of awareness of the long-term effect of gout among patients and healthcare professionals. Aim: To understand unmet needs for patients and provide insight into achieving better treatment. Design & setting: A quantitative online questionnaire collected from 1100 people with gout from 14 countries within Europe. Method: Patients were recruited to complete an online survey via healthcare professional (HCP) referral, patient associations, or market research panels. Patients were included if they had been diagnosed with gout by a physician. Prior to commencement, patients were made aware that this study was sponsored by Grünenthal. The responses collected were collated and analyses were performed. Results: Patients had an average of 2.9 gout flares within a 12-month period. Although 79% of patients were satisfied with treatment, inadequate gout control was also reported by 71% of patients. Furthermore, 84% experienced moderate-to-severe pain with their most recent flare. Of those who acknowledged treatment dissatisfaction, only 24% discussed other options with their GP. Most patients reported irregular follow-up and serum uric acid (sUA) monitoring. In addition, loss of belief that more can be done was a key barrier for patients. Conclusion: Patients reported severe pain and social burden, coupled with low treatment expectation and lack of awareness of target sUA. Education around knowing and reaching sUA target is needed so that patients can receive and GPs can deliver higher quality management.https://bjgpopen.org/content/4/1/bjgpopen20X101003gouturic aciduratequality of lifegeneral practicepatient caresurveys and questionnairespain |
| spellingShingle | Marc De Meulemeester Elsa Mateus Hilda Wieberneit-Tolman Neil Betteridge Lucy Ireland Gudula Petersen Nina Jeanette Maske Tim L Jansen Fernando Perez-Ruiz Understanding the patient voice in gout: a quantitative study conducted in Europe BJGP Open gout uric acid urate quality of life general practice patient care surveys and questionnaires pain |
| title | Understanding the patient voice in gout: a quantitative study conducted in Europe |
| title_full | Understanding the patient voice in gout: a quantitative study conducted in Europe |
| title_fullStr | Understanding the patient voice in gout: a quantitative study conducted in Europe |
| title_full_unstemmed | Understanding the patient voice in gout: a quantitative study conducted in Europe |
| title_short | Understanding the patient voice in gout: a quantitative study conducted in Europe |
| title_sort | understanding the patient voice in gout a quantitative study conducted in europe |
| topic | gout uric acid urate quality of life general practice patient care surveys and questionnaires pain |
| url | https://bjgpopen.org/content/4/1/bjgpopen20X101003 |
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