Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolers
Abstract Introduction Early interventions for autistic children should target their quality of life (QoL) but require adapted measures. The association of a child's temperament and parental characteristics with the QoL of autistic children remains unknown. Methods We constructed an autism modul...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2024-03-01
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| Series: | International Journal of Methods in Psychiatric Research |
| Subjects: | |
| Online Access: | https://doi.org/10.1002/mpr.2002 |
| _version_ | 1797238936433590272 |
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| author | Jérôme Lichtlé Emmanuel Devouche Isaora Zefania Dialahy Aude deGaulmyn Anouck Amestoy Romain Coutelle Pascale Isnard Jean‐Louis Monestès Laurent Mottron Emilie Cappe |
| author_facet | Jérôme Lichtlé Emmanuel Devouche Isaora Zefania Dialahy Aude deGaulmyn Anouck Amestoy Romain Coutelle Pascale Isnard Jean‐Louis Monestès Laurent Mottron Emilie Cappe |
| author_sort | Jérôme Lichtlé |
| collection | DOAJ |
| description | Abstract Introduction Early interventions for autistic children should target their quality of life (QoL) but require adapted measures. The association of a child's temperament and parental characteristics with the QoL of autistic children remains unknown. Methods We constructed an autism module based on a thematic analysis, a Delphi survey with experts, and a pre‐test with parents to be completed alongside the proxy version of the PedsQL 4.0. We explored compliance, responsiveness, internal consistency, convergent validity, and factor structure with 157 parents of autistic preschool children. We examined the association between child and parental characteristics with the QoL of autistic children using correlation analysis, principal component analysis, hierarchical ascending classification, and linear regression. Sociodemographic information was collected via multiple choice questions, autism severity via Autism Diagnostic Observation Schedule (ADOS) scores, and parental acceptance and child's temperament via the Acceptance and Action Questionnaire and the Emotionality, Activity, and Sociability. Results An autism module comprised of 27 items emerged. Psychometric evaluation resulted in a 24‐item autism module with good internal consistency and significant convergent validity. ADOS total score was not significantly related to QoL, contrary to children's sleep issues, children's emotionality, and parental acceptance. Conclusions The autism module is a reliable QoL proxy measure for autistic preschool children. Results suggest parental interventions targeting children's QoL. |
| first_indexed | 2024-04-24T17:43:34Z |
| format | Article |
| id | doaj.art-11bc2a61065f4c8da4ca4c3591310080 |
| institution | Directory Open Access Journal |
| issn | 1049-8931 1557-0657 |
| language | English |
| last_indexed | 2024-04-24T17:43:34Z |
| publishDate | 2024-03-01 |
| publisher | Wiley |
| record_format | Article |
| series | International Journal of Methods in Psychiatric Research |
| spelling | doaj.art-11bc2a61065f4c8da4ca4c35913100802024-03-27T15:10:42ZengWileyInternational Journal of Methods in Psychiatric Research1049-89311557-06572024-03-01331n/an/a10.1002/mpr.2002Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolersJérôme Lichtlé0Emmanuel Devouche1Isaora Zefania Dialahy2Aude deGaulmyn3Anouck Amestoy4Romain Coutelle5Pascale Isnard6Jean‐Louis Monestès7Laurent Mottron8Emilie Cappe9Université Paris Cité Laboratoire de Psychopathologie et Processus de Santé Boulogne‐Billancourt FranceUniversité Paris Cité Laboratoire de Psychopathologie et Processus de Santé Boulogne‐Billancourt FranceCentre Intégré Universitaire de Santé et des Services Sociaux du Nord de l’île de Montréal Montréal Québec CanadaCentre de Recherche et Diagnostic pour l'Autisme et Troubles Apparentés (CREDAT, Hôpital Sainte‐Anne GHU Paris Psychiatrie & Neurosciences) Paris FranceINCIA, UMR 5287 CNRS Bordeaux Neurocampus. CHCP Bordeaux FranceService de Psychiatrie de l'enfant et de l'adolescent Hôpitaux Universitaires de Strasbourg Strasbourg FranceService de Pédopsychiatrie Hôpital Bichat Claude Bernard APHP. Nord Université Paris Cité Paris FranceLIP/PC2S Lab Univ. Grenoble Alpes Grenoble FranceDépartement de Psychiatrie et d’Addictologie Hôpital Rivière Des Prairies & Centre de Recherche du CIUSSS‐NIM Université de Montréal Montréal Québec CanadaUniversité Paris Cité Laboratoire de Psychopathologie et Processus de Santé Boulogne‐Billancourt FranceAbstract Introduction Early interventions for autistic children should target their quality of life (QoL) but require adapted measures. The association of a child's temperament and parental characteristics with the QoL of autistic children remains unknown. Methods We constructed an autism module based on a thematic analysis, a Delphi survey with experts, and a pre‐test with parents to be completed alongside the proxy version of the PedsQL 4.0. We explored compliance, responsiveness, internal consistency, convergent validity, and factor structure with 157 parents of autistic preschool children. We examined the association between child and parental characteristics with the QoL of autistic children using correlation analysis, principal component analysis, hierarchical ascending classification, and linear regression. Sociodemographic information was collected via multiple choice questions, autism severity via Autism Diagnostic Observation Schedule (ADOS) scores, and parental acceptance and child's temperament via the Acceptance and Action Questionnaire and the Emotionality, Activity, and Sociability. Results An autism module comprised of 27 items emerged. Psychometric evaluation resulted in a 24‐item autism module with good internal consistency and significant convergent validity. ADOS total score was not significantly related to QoL, contrary to children's sleep issues, children's emotionality, and parental acceptance. Conclusions The autism module is a reliable QoL proxy measure for autistic preschool children. Results suggest parental interventions targeting children's QoL.https://doi.org/10.1002/mpr.2002acceptanceautism spectrum disorderpreschoolerspsychometric validationquality of lifetemperament |
| spellingShingle | Jérôme Lichtlé Emmanuel Devouche Isaora Zefania Dialahy Aude deGaulmyn Anouck Amestoy Romain Coutelle Pascale Isnard Jean‐Louis Monestès Laurent Mottron Emilie Cappe Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolers International Journal of Methods in Psychiatric Research acceptance autism spectrum disorder preschoolers psychometric validation quality of life temperament |
| title | Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolers |
| title_full | Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolers |
| title_fullStr | Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolers |
| title_full_unstemmed | Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolers |
| title_short | Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolers |
| title_sort | development psychometric evaluation and factor analysis of an instrument measuring quality of life in autistic preschoolers |
| topic | acceptance autism spectrum disorder preschoolers psychometric validation quality of life temperament |
| url | https://doi.org/10.1002/mpr.2002 |
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