The Epilepsy Risk Awareness (ERA) Scale: A New Era for Holistic Risk Assessment in Epilepsy
Objective: Best care in epilepsy balances protecting people with epilepsy from risks and avoiding undue restrictions in order to improve quality of life. To date, no single risk assessment tool has been widely adopted by both people with epilepsy and health-care professionals such as specialist epil...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2020-06-01
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| Series: | Frontiers in Neurology |
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| Online Access: | https://www.frontiersin.org/article/10.3389/fneur.2020.00465/full |
| _version_ | 1819226906157907968 |
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| author | Rachel Ison Virad Kisan Christine Cole Heather Angus-Leppan Heather Angus-Leppan |
| author_facet | Rachel Ison Virad Kisan Christine Cole Heather Angus-Leppan Heather Angus-Leppan |
| author_sort | Rachel Ison |
| collection | DOAJ |
| description | Objective: Best care in epilepsy balances protecting people with epilepsy from risks and avoiding undue restrictions in order to improve quality of life. To date, no single risk assessment tool has been widely adopted by both people with epilepsy and health-care professionals such as specialist epilepsy nurses. The present research refined the Epilepsy Risk Awareness (ERA) Scale, a validated and holistic risk assessment tool, by assessing test–retest reliability of each question and incorporating suggestions from patients regarding design and content.Methods: The draft clinical scale was administered to 102 adult participants from the Epilepsy Service at the Royal Free London National Health Service (NHS) Foundation Trust on two occasions. Quantitative and qualitative analyses were conducted—intraclass correlation coefficient (ICC) estimates were used to assess test–retest reliability of questions, and thematic analysis was used to analyze participants' comments and feedback. Following analysis, the ERA Scale was amended. Of the 102 participants, 32 conducted a further review of the revised ERA Scale to test completion time and provide final comments.Results: ICC reliability level estimates varied from “poor to moderate” to “good to excellent,” and four qualitative themes were identified. The ERA Scale was amended accordingly to enhance practicality and usefulness, reducing completion time to approximately 5 min.Significance: The ERA Scale is a validated tool that aims to change clinical practice by standardizing risk assessment in epilepsy, providing a holistic approach that focuses on improved safety and quality of life. |
| first_indexed | 2024-12-23T10:32:56Z |
| format | Article |
| id | doaj.art-12157237394f442db8423f7ea94be062 |
| institution | Directory Open Access Journal |
| issn | 1664-2295 |
| language | English |
| last_indexed | 2024-12-23T10:32:56Z |
| publishDate | 2020-06-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Neurology |
| spelling | doaj.art-12157237394f442db8423f7ea94be0622022-12-21T17:50:23ZengFrontiers Media S.A.Frontiers in Neurology1664-22952020-06-011110.3389/fneur.2020.00465517332The Epilepsy Risk Awareness (ERA) Scale: A New Era for Holistic Risk Assessment in EpilepsyRachel Ison0Virad Kisan1Christine Cole2Heather Angus-Leppan3Heather Angus-Leppan4Clinical Neurosciences, Royal Free London NHS Foundation Trust, London, United KingdomUniversity College London Medical School, London, United KingdomHarrow Neurology Specialist Nursing Service, Middlesex, United KingdomClinical Neurosciences, Royal Free London NHS Foundation Trust, London, United KingdomUCL Queen Square Institute of Neurology, London, United KingdomObjective: Best care in epilepsy balances protecting people with epilepsy from risks and avoiding undue restrictions in order to improve quality of life. To date, no single risk assessment tool has been widely adopted by both people with epilepsy and health-care professionals such as specialist epilepsy nurses. The present research refined the Epilepsy Risk Awareness (ERA) Scale, a validated and holistic risk assessment tool, by assessing test–retest reliability of each question and incorporating suggestions from patients regarding design and content.Methods: The draft clinical scale was administered to 102 adult participants from the Epilepsy Service at the Royal Free London National Health Service (NHS) Foundation Trust on two occasions. Quantitative and qualitative analyses were conducted—intraclass correlation coefficient (ICC) estimates were used to assess test–retest reliability of questions, and thematic analysis was used to analyze participants' comments and feedback. Following analysis, the ERA Scale was amended. Of the 102 participants, 32 conducted a further review of the revised ERA Scale to test completion time and provide final comments.Results: ICC reliability level estimates varied from “poor to moderate” to “good to excellent,” and four qualitative themes were identified. The ERA Scale was amended accordingly to enhance practicality and usefulness, reducing completion time to approximately 5 min.Significance: The ERA Scale is a validated tool that aims to change clinical practice by standardizing risk assessment in epilepsy, providing a holistic approach that focuses on improved safety and quality of life.https://www.frontiersin.org/article/10.3389/fneur.2020.00465/fullepilepsyrisk awarenessrisk assessmentclinical scalesudden unexpected death in epilepsyholistic |
| spellingShingle | Rachel Ison Virad Kisan Christine Cole Heather Angus-Leppan Heather Angus-Leppan The Epilepsy Risk Awareness (ERA) Scale: A New Era for Holistic Risk Assessment in Epilepsy Frontiers in Neurology epilepsy risk awareness risk assessment clinical scale sudden unexpected death in epilepsy holistic |
| title | The Epilepsy Risk Awareness (ERA) Scale: A New Era for Holistic Risk Assessment in Epilepsy |
| title_full | The Epilepsy Risk Awareness (ERA) Scale: A New Era for Holistic Risk Assessment in Epilepsy |
| title_fullStr | The Epilepsy Risk Awareness (ERA) Scale: A New Era for Holistic Risk Assessment in Epilepsy |
| title_full_unstemmed | The Epilepsy Risk Awareness (ERA) Scale: A New Era for Holistic Risk Assessment in Epilepsy |
| title_short | The Epilepsy Risk Awareness (ERA) Scale: A New Era for Holistic Risk Assessment in Epilepsy |
| title_sort | epilepsy risk awareness era scale a new era for holistic risk assessment in epilepsy |
| topic | epilepsy risk awareness risk assessment clinical scale sudden unexpected death in epilepsy holistic |
| url | https://www.frontiersin.org/article/10.3389/fneur.2020.00465/full |
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