P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings
| Main Authors: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2024-01-01
|
| Series: | Genetics in Medicine Open |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2949774424009336 |
| _version_ | 1797267367235944448 |
|---|---|
| author | Abigail Hansen Stephanie Luca Olivia Moran Riyana Babul-Hirji Joyce Yan Katharine Fooks Viji Venkataramanan Wendy Ungar Robin Hayeems Secondary Findings Study Team Elise Poole Daniel Assamad Pooja Banglorewala Lydia Vermeer Christian Marshall Meredith Gillespie Anna Szuto Caitlin Chisholm James Stavropoulos Lijia Huang Olga Jarinova Lynette Lau Whiwon Lee Lauren Badalato Tugce Balci Lauren Chad Cara Inglese Virginie Ladouceur Michael Mackley Chantal Morel Julie Richer Mark Tarnopolsky Anita Villani Laura Zahavich Sarah Sawyer Roberto Mendoza-Londono Martin Somerville Kym Boycott Wendy Ungar Robin Hayeems |
| author_facet | Abigail Hansen Stephanie Luca Olivia Moran Riyana Babul-Hirji Joyce Yan Katharine Fooks Viji Venkataramanan Wendy Ungar Robin Hayeems Secondary Findings Study Team Elise Poole Daniel Assamad Pooja Banglorewala Lydia Vermeer Christian Marshall Meredith Gillespie Anna Szuto Caitlin Chisholm James Stavropoulos Lijia Huang Olga Jarinova Lynette Lau Whiwon Lee Lauren Badalato Tugce Balci Lauren Chad Cara Inglese Virginie Ladouceur Michael Mackley Chantal Morel Julie Richer Mark Tarnopolsky Anita Villani Laura Zahavich Sarah Sawyer Roberto Mendoza-Londono Martin Somerville Kym Boycott Wendy Ungar Robin Hayeems |
| author_sort | Abigail Hansen |
| collection | DOAJ |
| first_indexed | 2024-04-25T01:15:27Z |
| format | Article |
| id | doaj.art-123c565b5d7a40e586b504ab2397ef25 |
| institution | Directory Open Access Journal |
| issn | 2949-7744 |
| language | English |
| last_indexed | 2024-04-25T01:15:27Z |
| publishDate | 2024-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Genetics in Medicine Open |
| spelling | doaj.art-123c565b5d7a40e586b504ab2397ef252024-03-09T09:34:02ZengElsevierGenetics in Medicine Open2949-77442024-01-012101787P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findingsAbigail Hansen0Stephanie Luca1Olivia Moran2Riyana Babul-Hirji3Joyce Yan4Katharine Fooks5Viji Venkataramanan6Wendy Ungar7Robin Hayeems8Secondary Findings Study Team9Elise Poole10Daniel Assamad11Pooja Banglorewala12Lydia Vermeer13Christian Marshall14Meredith Gillespie15Anna Szuto16Caitlin Chisholm17James Stavropoulos18Lijia Huang19Olga Jarinova20Lynette Lau21Whiwon Lee22Lauren Badalato23Tugce Balci24Lauren Chad25Cara Inglese26Virginie Ladouceur27Michael Mackley28Chantal Morel29Julie Richer30Mark Tarnopolsky31Anita Villani32Laura Zahavich33Sarah Sawyer34Roberto Mendoza-Londono35Martin Somerville36Kym Boycott37Wendy Ungar38Robin Hayeems39Program in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada, Department of Biology, McMaster University, Hamilton, ON, CanadaProgram in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, CanadaDivision of Clinical and Metabolic Genetics, Hospital for Sick Children, Toronto, ON, CanadaDivision of Clinical and Metabolic Genetics, Hospital for Sick Children, Toronto, ON, CanadaProgram in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, CanadaProgram in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, CanadaProgram in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, CanadaProgram in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada, Institute for Health Policy, Management, and Evaluation, University of Toronto, Toronto, ON, CanadaProgram in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada, Department of Molecular Genetics, University of Toronto, ON, CanadaN/AThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of TorontoSunnybrook HospitalThe Hospital for Sick Children, University of TorontoChildren's Hospital of Eastern Ontario, University of OttawaThe Hospital for Sick Children, University of TorontoChildren's Hospital of Eastern OntarioThe Hospital for Sick Children, University of TorontoLondon Health Sciences CentreChildren's Hospital of Eastern OntarioThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of TorontoKington Health Sciences Centre, Queens UniversityLondon Health Sciences CentreThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of TorontoUniversity of TorontoUniversity of OttawaMcMaster UniversityThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of TorontoChildren's Hospital of Eastern OntarioThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of TorontoKington Health Sciences Centre, Queens UniversityThe Hospital for Sick Children, University of TorontoThe Hospital for Sick Children, University of Torontohttp://www.sciencedirect.com/science/article/pii/S2949774424009336 |
| spellingShingle | Abigail Hansen Stephanie Luca Olivia Moran Riyana Babul-Hirji Joyce Yan Katharine Fooks Viji Venkataramanan Wendy Ungar Robin Hayeems Secondary Findings Study Team Elise Poole Daniel Assamad Pooja Banglorewala Lydia Vermeer Christian Marshall Meredith Gillespie Anna Szuto Caitlin Chisholm James Stavropoulos Lijia Huang Olga Jarinova Lynette Lau Whiwon Lee Lauren Badalato Tugce Balci Lauren Chad Cara Inglese Virginie Ladouceur Michael Mackley Chantal Morel Julie Richer Mark Tarnopolsky Anita Villani Laura Zahavich Sarah Sawyer Roberto Mendoza-Londono Martin Somerville Kym Boycott Wendy Ungar Robin Hayeems P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings Genetics in Medicine Open |
| title | P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings |
| title_full | P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings |
| title_fullStr | P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings |
| title_full_unstemmed | P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings |
| title_short | P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings |
| title_sort | p873 if you look for a problem you ll find one a qualitative study to understand why parents adult patients decline secondary findings |
| url | http://www.sciencedirect.com/science/article/pii/S2949774424009336 |
| work_keys_str_mv | AT abigailhansen p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT stephanieluca p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT oliviamoran p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT riyanababulhirji p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT joyceyan p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT katharinefooks p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT vijivenkataramanan p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT wendyungar p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT robinhayeems p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT secondaryfindingsstudyteam p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT elisepoole p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT danielassamad p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT poojabanglorewala p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT lydiavermeer p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT christianmarshall p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT meredithgillespie p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT annaszuto p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT caitlinchisholm p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT jamesstavropoulos p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT lijiahuang p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT olgajarinova p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT lynettelau p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT whiwonlee p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT laurenbadalato p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT tugcebalci p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT laurenchad p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT carainglese p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT virginieladouceur p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT michaelmackley p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT chantalmorel p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT juliericher p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT marktarnopolsky p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT anitavillani p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT laurazahavich p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT sarahsawyer p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT robertomendozalondono p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT martinsomerville p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT kymboycott p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT wendyungar p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings AT robinhayeems p873ifyoulookforaproblemyoullfindoneaqualitativestudytounderstandwhyparentsadultpatientsdeclinesecondaryfindings |