Development of a pain education resource for people with spinal cord injury
Many people with spinal cord injury (SCI) develop chronic pain, including neuropathic pain. Unfortunately, current treatments for this condition are often inadequate because SCI-associated neuropathic pain is complex and depends on various underlying mechanisms and contributing factors. Multimodal t...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2023-07-01
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| Series: | Frontiers in Public Health |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fpubh.2023.1197944/full |
| _version_ | 1797773388439093248 |
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| author | Eva Widerström-Noga Eva Widerström-Noga Kimberly D. Anderson Linda E. Robayo Salome Perez Alberto Martinez-Arizala Lindsey Calle-Coule Nicholas P. Cherup Gabriel E. Fernandez |
| author_facet | Eva Widerström-Noga Eva Widerström-Noga Kimberly D. Anderson Linda E. Robayo Salome Perez Alberto Martinez-Arizala Lindsey Calle-Coule Nicholas P. Cherup Gabriel E. Fernandez |
| author_sort | Eva Widerström-Noga |
| collection | DOAJ |
| description | Many people with spinal cord injury (SCI) develop chronic pain, including neuropathic pain. Unfortunately, current treatments for this condition are often inadequate because SCI-associated neuropathic pain is complex and depends on various underlying mechanisms and contributing factors. Multimodal treatment strategies including but not limited to pharmacological treatments, physical rehabilitation, cognitive training, and pain education may be best suited to manage pain in this population. In this study, we developed an educational resource named the SeePain based on published pain literature, and direct stakeholder input, including people living with SCI and chronic pain, their significant others, and healthcare providers with expertise in SCI. The SeePain was then 1) systematically evaluated by stakeholders regarding its content, comprehensibility, and format using qualitative interviews and thematic analysis, and 2) modified based on their perspectives. The final resource is a comprehensive guide for people with SCI and their significant others or family members that is intended to increase health literacy and facilitate communication between SCI consumers and their healthcare providers. Future work will quantitatively validate the SeePain in a large SCI sample. |
| first_indexed | 2024-03-12T22:05:47Z |
| format | Article |
| id | doaj.art-133a637904814c409d59773238182a46 |
| institution | Directory Open Access Journal |
| issn | 2296-2565 |
| language | English |
| last_indexed | 2024-03-12T22:05:47Z |
| publishDate | 2023-07-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Public Health |
| spelling | doaj.art-133a637904814c409d59773238182a462023-07-24T14:17:00ZengFrontiers Media S.A.Frontiers in Public Health2296-25652023-07-011110.3389/fpubh.2023.11979441197944Development of a pain education resource for people with spinal cord injuryEva Widerström-Noga0Eva Widerström-Noga1Kimberly D. Anderson2Linda E. Robayo3Salome Perez4Alberto Martinez-Arizala5Lindsey Calle-Coule6Nicholas P. Cherup7Gabriel E. Fernandez8The Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United StatesDepartment of Neurological Surgery, University of Miami Miller School of Medicine, Miami, FL, United StatesDepartment of Physical Medicine and Rehabilitation, MetroHealth Medical Center, Case Western Reserve University School of Medicine, Cleveland, OH, United StatesThe Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United StatesResearch Service, Bruce W. Carter Veterans Affairs Medical Center, Miami, FL, United StatesThe Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United StatesResearch Service, Bruce W. Carter Veterans Affairs Medical Center, Miami, FL, United StatesThe Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United StatesThe Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United StatesMany people with spinal cord injury (SCI) develop chronic pain, including neuropathic pain. Unfortunately, current treatments for this condition are often inadequate because SCI-associated neuropathic pain is complex and depends on various underlying mechanisms and contributing factors. Multimodal treatment strategies including but not limited to pharmacological treatments, physical rehabilitation, cognitive training, and pain education may be best suited to manage pain in this population. In this study, we developed an educational resource named the SeePain based on published pain literature, and direct stakeholder input, including people living with SCI and chronic pain, their significant others, and healthcare providers with expertise in SCI. The SeePain was then 1) systematically evaluated by stakeholders regarding its content, comprehensibility, and format using qualitative interviews and thematic analysis, and 2) modified based on their perspectives. The final resource is a comprehensive guide for people with SCI and their significant others or family members that is intended to increase health literacy and facilitate communication between SCI consumers and their healthcare providers. Future work will quantitatively validate the SeePain in a large SCI sample.https://www.frontiersin.org/articles/10.3389/fpubh.2023.1197944/fullpain educationspinal cord injurychronic painneuropathic painpain management |
| spellingShingle | Eva Widerström-Noga Eva Widerström-Noga Kimberly D. Anderson Linda E. Robayo Salome Perez Alberto Martinez-Arizala Lindsey Calle-Coule Nicholas P. Cherup Gabriel E. Fernandez Development of a pain education resource for people with spinal cord injury Frontiers in Public Health pain education spinal cord injury chronic pain neuropathic pain pain management |
| title | Development of a pain education resource for people with spinal cord injury |
| title_full | Development of a pain education resource for people with spinal cord injury |
| title_fullStr | Development of a pain education resource for people with spinal cord injury |
| title_full_unstemmed | Development of a pain education resource for people with spinal cord injury |
| title_short | Development of a pain education resource for people with spinal cord injury |
| title_sort | development of a pain education resource for people with spinal cord injury |
| topic | pain education spinal cord injury chronic pain neuropathic pain pain management |
| url | https://www.frontiersin.org/articles/10.3389/fpubh.2023.1197944/full |
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