Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative Findings
BackgroundAtopic dermatitis (AD) is a chronic, pruritic, inflammatory disease that occurs most frequently in children but also affects many adults. Social media have become key tools for finding and disseminating medical information. ObjectiveThe aims of this stud...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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JMIR Publications
2022-01-01
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| Series: | Journal of Medical Internet Research |
| Online Access: | https://www.jmir.org/2022/1/e31140 |
| _version_ | 1797735376463331328 |
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| author | Paméla Voillot Brigitte Riche Michel Portafax Pierre Foulquié Anaïs Gedik Sébastien Barbarot Laurent Misery Stéphane Héas Adel Mebarki Nathalie Texier Stéphane Schück |
| author_facet | Paméla Voillot Brigitte Riche Michel Portafax Pierre Foulquié Anaïs Gedik Sébastien Barbarot Laurent Misery Stéphane Héas Adel Mebarki Nathalie Texier Stéphane Schück |
| author_sort | Paméla Voillot |
| collection | DOAJ |
| description |
BackgroundAtopic dermatitis (AD) is a chronic, pruritic, inflammatory disease that occurs most frequently in children but also affects many adults. Social media have become key tools for finding and disseminating medical information.
ObjectiveThe aims of this study were to identify the main themes of discussion, the difficulties encountered by patients with respect to AD, the impact of the pathology on quality of life (QoL; physical, psychological, social, or financial), and to study the perception of patients regarding their treatment.
MethodsA retrospective study was carried out by collecting social media posts in French language written by internet users mentioning their experience with AD, their QoL, and their treatments. Messages related to AD discomfort posted between July 1, 2010, and October 23, 2020, were extracted from French-speaking publicly available online forums. Automatic and manual extractions were implemented to create a general corpus and 2 subcorpuses depending on the level of control of the disease.
ResultsA total of 33,115 messages associated with AD were included in the analysis corpus after extraction and cleaning. These messages were posted by 15,857 separate web users, most of them being women younger than 40 years. Tips to manage AD and everyday hygiene/treatments were among the most discussed topics for controlled AD subcorpus, while baby-related topics and therapeutic failure were among the most discussed topics for insufficiently controlled AD subcorpus. QoL was discussed in both subcorpuses with a higher proportion in the controlled AD subcorpus. Treatments and their perception were also discussed by web users.
ConclusionsMore than just emotional or peer support, patients with AD turn to online forums to discuss their health. Our findings show the need for an intersection between social media and health care and the importance of developing new approaches such as the Atopic Dermatitis Control Tool, which is a patient-related disease severity assessment tool focused on patients with AD. |
| first_indexed | 2024-03-12T12:57:13Z |
| format | Article |
| id | doaj.art-139aba621eb0469b9e566c6029a3986e |
| institution | Directory Open Access Journal |
| issn | 1438-8871 |
| language | English |
| last_indexed | 2024-03-12T12:57:13Z |
| publishDate | 2022-01-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | Journal of Medical Internet Research |
| spelling | doaj.art-139aba621eb0469b9e566c6029a3986e2023-08-28T20:27:53ZengJMIR PublicationsJournal of Medical Internet Research1438-88712022-01-01241e3114010.2196/31140Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative FindingsPaméla Voillothttps://orcid.org/0000-0001-7156-9075Brigitte Richehttps://orcid.org/0000-0003-3742-6817Michel Portafaxhttps://orcid.org/0000-0001-8612-5565Pierre Foulquiéhttps://orcid.org/0000-0003-4485-0835Anaïs Gedikhttps://orcid.org/0000-0003-1284-5433Sébastien Barbarothttps://orcid.org/0000-0002-6629-9100Laurent Miseryhttps://orcid.org/0000-0001-8088-7059Stéphane Héashttps://orcid.org/0000-0002-4817-1429Adel Mebarkihttps://orcid.org/0000-0002-2925-7585Nathalie Texierhttps://orcid.org/0000-0003-3749-254XStéphane Schückhttps://orcid.org/0000-0003-2642-7726 BackgroundAtopic dermatitis (AD) is a chronic, pruritic, inflammatory disease that occurs most frequently in children but also affects many adults. Social media have become key tools for finding and disseminating medical information. ObjectiveThe aims of this study were to identify the main themes of discussion, the difficulties encountered by patients with respect to AD, the impact of the pathology on quality of life (QoL; physical, psychological, social, or financial), and to study the perception of patients regarding their treatment. MethodsA retrospective study was carried out by collecting social media posts in French language written by internet users mentioning their experience with AD, their QoL, and their treatments. Messages related to AD discomfort posted between July 1, 2010, and October 23, 2020, were extracted from French-speaking publicly available online forums. Automatic and manual extractions were implemented to create a general corpus and 2 subcorpuses depending on the level of control of the disease. ResultsA total of 33,115 messages associated with AD were included in the analysis corpus after extraction and cleaning. These messages were posted by 15,857 separate web users, most of them being women younger than 40 years. Tips to manage AD and everyday hygiene/treatments were among the most discussed topics for controlled AD subcorpus, while baby-related topics and therapeutic failure were among the most discussed topics for insufficiently controlled AD subcorpus. QoL was discussed in both subcorpuses with a higher proportion in the controlled AD subcorpus. Treatments and their perception were also discussed by web users. ConclusionsMore than just emotional or peer support, patients with AD turn to online forums to discuss their health. Our findings show the need for an intersection between social media and health care and the importance of developing new approaches such as the Atopic Dermatitis Control Tool, which is a patient-related disease severity assessment tool focused on patients with AD.https://www.jmir.org/2022/1/e31140 |
| spellingShingle | Paméla Voillot Brigitte Riche Michel Portafax Pierre Foulquié Anaïs Gedik Sébastien Barbarot Laurent Misery Stéphane Héas Adel Mebarki Nathalie Texier Stéphane Schück Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative Findings Journal of Medical Internet Research |
| title | Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative Findings |
| title_full | Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative Findings |
| title_fullStr | Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative Findings |
| title_full_unstemmed | Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative Findings |
| title_short | Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative Findings |
| title_sort | social media platforms listening study on atopic dermatitis quantitative and qualitative findings |
| url | https://www.jmir.org/2022/1/e31140 |
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