The Codevelopment of “My Kidneys & Me”: A Digital Self-management Program for People With Chronic Kidney Disease
BackgroundHealth care self-management is important for people living with nondialysis chronic kidney disease (CKD). However, the few available resources are of variable quality. ObjectiveThis work describes the systematic codevelopment of “My Kidneys & Me” (MK...
| Main Authors: | , , , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2022-11-01
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| Series: | Journal of Medical Internet Research |
| Online Access: | https://www.jmir.org/2022/11/e39657 |
| _version_ | 1797734625994342400 |
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| author | Courtney J Lightfoot Thomas J Wilkinson Michelle Hadjiconstantinou Matthew Graham-Brown Jonathan Barratt Christopher Brough James O Burton Jenny Hainsworth Vicki Johnson Maria Martinez Andrew C Nixon Victoria Pursey Sally Schreder Noemi Vadaszy Lucina Wilde Fiona Willingham Hannah M L Young Thomas Yates Melanie J Davies Alice C Smith |
| author_facet | Courtney J Lightfoot Thomas J Wilkinson Michelle Hadjiconstantinou Matthew Graham-Brown Jonathan Barratt Christopher Brough James O Burton Jenny Hainsworth Vicki Johnson Maria Martinez Andrew C Nixon Victoria Pursey Sally Schreder Noemi Vadaszy Lucina Wilde Fiona Willingham Hannah M L Young Thomas Yates Melanie J Davies Alice C Smith |
| author_sort | Courtney J Lightfoot |
| collection | DOAJ |
| description |
BackgroundHealth care self-management is important for people living with nondialysis chronic kidney disease (CKD). However, the few available resources are of variable quality.
ObjectiveThis work describes the systematic codevelopment of “My Kidneys & Me” (MK&M), a theory-driven and evidence-based digital self-management resource for people with nondialysis CKD, guided by an established process used for the successful development of the diabetes education program MyDESMOND (Diabetes Education and Self-Management for Ongoing and Newly Diagnosed, DESMOND).
MethodsA multidisciplinary steering group comprising kidney health care professionals and researchers and specialists in the development of complex interventions and digital health provided expertise in the clinical and psychosocial aspects of CKD, self-management, digital health, and behavior change. A patient and public involvement group helped identify the needs and priorities of MK&M and co-design the resource. MK&M was developed in 2 sequential phases. Phase 1 involved the codevelopment process of the MK&M resource (content and materials), using Intervention Mapping (IM) as a framework. The first 4 IM steps guided the development process: needs assessment was conducted to describe the context of the intervention; intervention outcomes, performance objectives, and behavioral determinants were identified; theory- and evidence-based change methods and practical strategies to deliver change methods were selected; and program components were developed and refined. Phase 2 involved the adoption and adaptation of the existing MyDESMOND digital platform to suit the MK&M resource.
ResultsThe needs assessment identified that individuals with CKD have multiple differing needs and that delivering a self-management program digitally would enable accessible, tailored, and interactive information and support. The intended outcomes of MK&M were to improve and maintain effective self-management behaviors, including physical activity and lifestyle, improve knowledge, promote self-care skills, increase self-efficacy, and enhance well-being. This was achieved through the provision of content and materials designed to increase CKD knowledge and patient activation, reduce health risks, manage symptoms, and improve physical function. Theories and behavior change techniques selected include Self-Management Framework, Capability, Opportunity, Motivation Behavior model components of Behaviour Change Wheel and taxonomy of behavior change techniques, Health Action Process Approach Model, Common Sense Model, and Social Cognitive Theory. The program components developed comprised educational and behavior change sessions, health trackers (eg, monitoring blood pressure, symptoms, and exercise), goal-setting features, and forums for social support. The MyDESMOND digital platform represented an ideal existing platform to host MK&M; thus, the MyDESMOND interface and features were adopted and adapted for MK&M.
ConclusionsApplying the IM framework enabled the systematic application of theory, empirical evidence, and practical perspectives in the codevelopment of MK&M content and materials. Adopting and adapting a preexisting platform provided a cost- and time-efficient approach for developing our digital intervention. In the next stage of work, the efficacy of MK&M in increasing patient activation will be tested in a randomized controlled trial. |
| first_indexed | 2024-03-12T12:46:05Z |
| format | Article |
| id | doaj.art-13b0c295304d4ea089bf1affddbe3196 |
| institution | Directory Open Access Journal |
| issn | 1438-8871 |
| language | English |
| last_indexed | 2024-03-12T12:46:05Z |
| publishDate | 2022-11-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | Journal of Medical Internet Research |
| spelling | doaj.art-13b0c295304d4ea089bf1affddbe31962023-08-28T23:16:40ZengJMIR PublicationsJournal of Medical Internet Research1438-88712022-11-012411e3965710.2196/39657The Codevelopment of “My Kidneys & Me”: A Digital Self-management Program for People With Chronic Kidney DiseaseCourtney J Lightfoothttps://orcid.org/0000-0002-5855-4159Thomas J Wilkinsonhttps://orcid.org/0000-0002-7855-7752Michelle Hadjiconstantinouhttps://orcid.org/0000-0003-2827-0988Matthew Graham-Brownhttps://orcid.org/0000-0002-6197-180XJonathan Barratthttps://orcid.org/0000-0002-9063-7229Christopher Broughhttps://orcid.org/0000-0001-5623-2669James O Burtonhttps://orcid.org/0000-0003-1176-7592Jenny Hainsworthhttps://orcid.org/0000-0002-0432-6126Vicki Johnsonhttps://orcid.org/0000-0001-6709-7634Maria Martinezhttps://orcid.org/0000-0002-2013-5231Andrew C Nixonhttps://orcid.org/0000-0002-4093-6204Victoria Purseyhttps://orcid.org/0000-0003-3671-6038Sally Schrederhttps://orcid.org/0000-0002-4394-9764Noemi Vadaszyhttps://orcid.org/0000-0002-3005-4865Lucina Wildehttps://orcid.org/0000-0002-2680-9321Fiona Willinghamhttps://orcid.org/0000-0003-2764-7173Hannah M L Younghttps://orcid.org/0000-0002-4249-9060Thomas Yateshttps://orcid.org/0000-0002-5724-5178Melanie J Davieshttps://orcid.org/0000-0002-9987-9371Alice C Smithhttps://orcid.org/0000-0002-9234-9060 BackgroundHealth care self-management is important for people living with nondialysis chronic kidney disease (CKD). However, the few available resources are of variable quality. ObjectiveThis work describes the systematic codevelopment of “My Kidneys & Me” (MK&M), a theory-driven and evidence-based digital self-management resource for people with nondialysis CKD, guided by an established process used for the successful development of the diabetes education program MyDESMOND (Diabetes Education and Self-Management for Ongoing and Newly Diagnosed, DESMOND). MethodsA multidisciplinary steering group comprising kidney health care professionals and researchers and specialists in the development of complex interventions and digital health provided expertise in the clinical and psychosocial aspects of CKD, self-management, digital health, and behavior change. A patient and public involvement group helped identify the needs and priorities of MK&M and co-design the resource. MK&M was developed in 2 sequential phases. Phase 1 involved the codevelopment process of the MK&M resource (content and materials), using Intervention Mapping (IM) as a framework. The first 4 IM steps guided the development process: needs assessment was conducted to describe the context of the intervention; intervention outcomes, performance objectives, and behavioral determinants were identified; theory- and evidence-based change methods and practical strategies to deliver change methods were selected; and program components were developed and refined. Phase 2 involved the adoption and adaptation of the existing MyDESMOND digital platform to suit the MK&M resource. ResultsThe needs assessment identified that individuals with CKD have multiple differing needs and that delivering a self-management program digitally would enable accessible, tailored, and interactive information and support. The intended outcomes of MK&M were to improve and maintain effective self-management behaviors, including physical activity and lifestyle, improve knowledge, promote self-care skills, increase self-efficacy, and enhance well-being. This was achieved through the provision of content and materials designed to increase CKD knowledge and patient activation, reduce health risks, manage symptoms, and improve physical function. Theories and behavior change techniques selected include Self-Management Framework, Capability, Opportunity, Motivation Behavior model components of Behaviour Change Wheel and taxonomy of behavior change techniques, Health Action Process Approach Model, Common Sense Model, and Social Cognitive Theory. The program components developed comprised educational and behavior change sessions, health trackers (eg, monitoring blood pressure, symptoms, and exercise), goal-setting features, and forums for social support. The MyDESMOND digital platform represented an ideal existing platform to host MK&M; thus, the MyDESMOND interface and features were adopted and adapted for MK&M. ConclusionsApplying the IM framework enabled the systematic application of theory, empirical evidence, and practical perspectives in the codevelopment of MK&M content and materials. Adopting and adapting a preexisting platform provided a cost- and time-efficient approach for developing our digital intervention. In the next stage of work, the efficacy of MK&M in increasing patient activation will be tested in a randomized controlled trial.https://www.jmir.org/2022/11/e39657 |
| spellingShingle | Courtney J Lightfoot Thomas J Wilkinson Michelle Hadjiconstantinou Matthew Graham-Brown Jonathan Barratt Christopher Brough James O Burton Jenny Hainsworth Vicki Johnson Maria Martinez Andrew C Nixon Victoria Pursey Sally Schreder Noemi Vadaszy Lucina Wilde Fiona Willingham Hannah M L Young Thomas Yates Melanie J Davies Alice C Smith The Codevelopment of “My Kidneys & Me”: A Digital Self-management Program for People With Chronic Kidney Disease Journal of Medical Internet Research |
| title | The Codevelopment of “My Kidneys & Me”: A Digital Self-management Program for People With Chronic Kidney Disease |
| title_full | The Codevelopment of “My Kidneys & Me”: A Digital Self-management Program for People With Chronic Kidney Disease |
| title_fullStr | The Codevelopment of “My Kidneys & Me”: A Digital Self-management Program for People With Chronic Kidney Disease |
| title_full_unstemmed | The Codevelopment of “My Kidneys & Me”: A Digital Self-management Program for People With Chronic Kidney Disease |
| title_short | The Codevelopment of “My Kidneys & Me”: A Digital Self-management Program for People With Chronic Kidney Disease |
| title_sort | codevelopment of my kidneys amp me a digital self management program for people with chronic kidney disease |
| url | https://www.jmir.org/2022/11/e39657 |
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