Awareness of disease in dementia: Development of a multidimensional rating scale

Abstract Objective: To describe the development of the Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia (ASPIDD), a multidimensional scale to evaluate awareness of disease in dementia. Method: The development of this scale was conducted in four steps. In step one, questions wer...

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Main Authors: Marcia Dourado, Valeska Marinho, Cláudia Soares, Eliasz Engelhardt, Jerson Laks
Format: Article
Language:English
Published: Associação Neurologia Cognitiva e do Comportamento
Series:Dementia & Neuropsychologia
Subjects:
Online Access:http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1980-57642007000100074&lng=en&tlng=en
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author Marcia Dourado
Valeska Marinho
Cláudia Soares
Eliasz Engelhardt
Jerson Laks
author_facet Marcia Dourado
Valeska Marinho
Cláudia Soares
Eliasz Engelhardt
Jerson Laks
author_sort Marcia Dourado
collection DOAJ
description Abstract Objective: To describe the development of the Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia (ASPIDD), a multidimensional scale to evaluate awareness of disease in dementia. Method: The development of this scale was conducted in four steps. In step one, questions were drawn up after a review of the literature. The second step involved the suggestions offered by a neurologist regarding the skills considered important for the scale. The third step involved the re-writing and review of the domains and questions in the scale followed by a semantic evaluation performed by two independent psychiatrists. Step four consisted of the preliminary study aimed at evaluating the applicability of the ASPIDD. Results: In the semantic evaluation only minor changes were proposed. The preliminary sample had 52 patients, comprising 23 CDR 1 (male=9; female=14) and 29 CDR2 (male=13; female=16). Mean age of patients was 69.7±5.51 (CDR1) and 73.6±9.4 (CDR2), and age at onset was 66.4±5.7 years (CDR1) and 68.3±9.3 year (CDR2). Mean schooling was 9.0±4.3 years (CDR1) and 8.8±4.4 years (CDR2). Mean MMSE was 21.0±3.3 (CDR1) and 17.6±3.5 (CDR2). Mean Cornell was 4.8±2.3 (CDR1) and 4.2±1.9 (CDR2). The patient and caregiver dyads were aware of problems, mainly of those related to social, family and affective relations. The higher rates of discrepant responses were found on the awareness of cognitive deficits and changes in ADL. Conclusion: The ASPIDD is a multidimensional instrument to assess awareness of disease among AD patients.
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spelling doaj.art-14a752cb603b431aab58955bca60aa752022-12-21T23:24:54ZengAssociação Neurologia Cognitiva e do ComportamentoDementia & Neuropsychologia1980-576411748010.1590/S1980-57642008DN10100012S1980-57642007000100074Awareness of disease in dementia: Development of a multidimensional rating scaleMarcia DouradoValeska MarinhoCláudia SoaresEliasz EngelhardtJerson LaksAbstract Objective: To describe the development of the Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia (ASPIDD), a multidimensional scale to evaluate awareness of disease in dementia. Method: The development of this scale was conducted in four steps. In step one, questions were drawn up after a review of the literature. The second step involved the suggestions offered by a neurologist regarding the skills considered important for the scale. The third step involved the re-writing and review of the domains and questions in the scale followed by a semantic evaluation performed by two independent psychiatrists. Step four consisted of the preliminary study aimed at evaluating the applicability of the ASPIDD. Results: In the semantic evaluation only minor changes were proposed. The preliminary sample had 52 patients, comprising 23 CDR 1 (male=9; female=14) and 29 CDR2 (male=13; female=16). Mean age of patients was 69.7±5.51 (CDR1) and 73.6±9.4 (CDR2), and age at onset was 66.4±5.7 years (CDR1) and 68.3±9.3 year (CDR2). Mean schooling was 9.0±4.3 years (CDR1) and 8.8±4.4 years (CDR2). Mean MMSE was 21.0±3.3 (CDR1) and 17.6±3.5 (CDR2). Mean Cornell was 4.8±2.3 (CDR1) and 4.2±1.9 (CDR2). The patient and caregiver dyads were aware of problems, mainly of those related to social, family and affective relations. The higher rates of discrepant responses were found on the awareness of cognitive deficits and changes in ADL. Conclusion: The ASPIDD is a multidimensional instrument to assess awareness of disease among AD patients.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1980-57642007000100074&lng=en&tlng=enAlzheimers diseaseawarenessdementiacaregiver.
spellingShingle Marcia Dourado
Valeska Marinho
Cláudia Soares
Eliasz Engelhardt
Jerson Laks
Awareness of disease in dementia: Development of a multidimensional rating scale
Dementia & Neuropsychologia
Alzheimers disease
awareness
dementia
caregiver.
title Awareness of disease in dementia: Development of a multidimensional rating scale
title_full Awareness of disease in dementia: Development of a multidimensional rating scale
title_fullStr Awareness of disease in dementia: Development of a multidimensional rating scale
title_full_unstemmed Awareness of disease in dementia: Development of a multidimensional rating scale
title_short Awareness of disease in dementia: Development of a multidimensional rating scale
title_sort awareness of disease in dementia development of a multidimensional rating scale
topic Alzheimers disease
awareness
dementia
caregiver.
url http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1980-57642007000100074&lng=en&tlng=en
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AT eliaszengelhardt awarenessofdiseaseindementiadevelopmentofamultidimensionalratingscale
AT jersonlaks awarenessofdiseaseindementiadevelopmentofamultidimensionalratingscale