Protocol for investigating data quality and reporting outcomes of pediatric gliomas in population-based cancer registry research

Summary: Cancer registry data on pediatric gliomas come with inherent limitations as inclusion criteria and registration practices of these tumors differ between registries due to specific guidelines that are lacking. These limitations can lead to biased estimates in incidence and survival outcomes....

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Bibliographic Details
Main Authors: Raoull Hoogendijk, Jasper van der Lugt, Mariëtte E.G. Kranendonk, Gemma Gatta, Riccardo Capocaccia, Eelco W. Hoving, Pieter Wesseling, Otto Visser, Dannis G. van Vuurden, Henrike Karim-Kos
Format: Article
Language:English
Published: Elsevier 2024-03-01
Series:STAR Protocols
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Online Access:http://www.sciencedirect.com/science/article/pii/S2666166724000704
Description
Summary:Summary: Cancer registry data on pediatric gliomas come with inherent limitations as inclusion criteria and registration practices of these tumors differ between registries due to specific guidelines that are lacking. These limitations can lead to biased estimates in incidence and survival outcomes. Here, we present a protocol to investigate data quality and comparability for retrospective population-based pediatric glioma studies. We describe steps for obtaining institutional permissions, dealing with data quality issues, regrouping tumors, and reporting tumors in a clinically relevant manner.For complete details on the use and execution of this protocol, please refer to Hoogendijk et al.1 : Publisher’s note: Undertaking any experimental protocol requires adherence to local institutional guidelines for laboratory safety and ethics.
ISSN:2666-1667