How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods
Abstract Introduction International organisations have called to increase young people’s involvement in healthcare and health policy development. We currently lack effective methods for facilitating meaningful engagement by young people in health-related decision-making. The purpose of this scoping...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2023-01-01
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| Series: | International Journal for Equity in Health |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12939-022-01794-2 |
| _version_ | 1811175921670946816 |
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| author | Daniella Watson Mimi Mhlaba Gontse Molelekeng Thulani Andrew Chauke Sara Correia Simao Sarah Jenner Lisa J. Ware Mary Barker |
| author_facet | Daniella Watson Mimi Mhlaba Gontse Molelekeng Thulani Andrew Chauke Sara Correia Simao Sarah Jenner Lisa J. Ware Mary Barker |
| author_sort | Daniella Watson |
| collection | DOAJ |
| description | Abstract Introduction International organisations have called to increase young people’s involvement in healthcare and health policy development. We currently lack effective methods for facilitating meaningful engagement by young people in health-related decision-making. The purpose of this scoping review is to identify deliberative priority setting methods and explore the effectiveness of these in engaging young people in healthcare and health policy decision-making. Methods Seven databases were searched systematically, using MeSH and free text terms, for articles published in English before July 2021 that described the use of deliberative priority setting methods for health decision-making with young people. All titles, abstracts and full-text papers were screened by a team of six independent reviewers between them. Data extraction followed the Centre for Reviews and Dissemination guidelines. The results are presented as a narrative synthesis, structured around four components for evaluating deliberative processes: 1) representation and inclusion of diverse participants, 2) the way the process is run including levels and timing of participant engagement, 3) the quality of the information provided to participants and 4) resulting outcomes and decisions. Findings The search yielded 9 reviews and 21 studies. The more engaging deliberative priority setting tools involved young people-led committees, mixed methods for identifying and prioritising issues and digital data collection and communication tools. Long-term and frequent contact with young people to build trust underpinned the success of some of the tools, as did offering incentives for taking part and skills development using creative methods. The review also suggests that successful priority setting processes with young people involve consideration of power dynamics, since young people’s decisions are likely to be made together with family members, health professionals and academics. Discussion Young people’s engagement in decision-making about their health is best achieved through investing time in building strong relationships and ensuring young people are appropriately rewarded for their time and contribution. If young people are to be instrumental in improving their health and architects of their own futures, decision-making processes need to respect young people’s autonomy and agency. Our review suggests that methods of power-sharing with young people do exist but that they have yet to be adopted by organisations and global institutions setting global health policy. |
| first_indexed | 2024-04-10T19:43:48Z |
| format | Article |
| id | doaj.art-14ecacda936d43119a51df459e14f54c |
| institution | Directory Open Access Journal |
| issn | 1475-9276 |
| language | English |
| last_indexed | 2024-04-10T19:43:48Z |
| publishDate | 2023-01-01 |
| publisher | BMC |
| record_format | Article |
| series | International Journal for Equity in Health |
| spelling | doaj.art-14ecacda936d43119a51df459e14f54c2023-01-29T12:06:59ZengBMCInternational Journal for Equity in Health1475-92762023-01-0122112410.1186/s12939-022-01794-2How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methodsDaniella Watson0Mimi Mhlaba1Gontse Molelekeng2Thulani Andrew Chauke3Sara Correia Simao4Sarah Jenner5Lisa J. Ware6Mary Barker7Global Health Research Institute, Human Development and Health, Faculty of Medicine, University of SouthamptonSAMRC Developmental Pathways for Health Research Unit, School of Clinical Medicine, University of the WitwatersrandSAMRC Developmental Pathways for Health Research Unit, School of Clinical Medicine, University of the WitwatersrandDepartment of Adult, College of Education, Community and Continuing Education, University of South AfricaMedical Research Council Lifecourse Epidemiology Centre, University of SouthamptonMedical Research Council Lifecourse Epidemiology Centre, University of SouthamptonSAMRC Developmental Pathways for Health Research Unit, School of Clinical Medicine, University of the WitwatersrandGlobal Health Research Institute, Human Development and Health, Faculty of Medicine, University of SouthamptonAbstract Introduction International organisations have called to increase young people’s involvement in healthcare and health policy development. We currently lack effective methods for facilitating meaningful engagement by young people in health-related decision-making. The purpose of this scoping review is to identify deliberative priority setting methods and explore the effectiveness of these in engaging young people in healthcare and health policy decision-making. Methods Seven databases were searched systematically, using MeSH and free text terms, for articles published in English before July 2021 that described the use of deliberative priority setting methods for health decision-making with young people. All titles, abstracts and full-text papers were screened by a team of six independent reviewers between them. Data extraction followed the Centre for Reviews and Dissemination guidelines. The results are presented as a narrative synthesis, structured around four components for evaluating deliberative processes: 1) representation and inclusion of diverse participants, 2) the way the process is run including levels and timing of participant engagement, 3) the quality of the information provided to participants and 4) resulting outcomes and decisions. Findings The search yielded 9 reviews and 21 studies. The more engaging deliberative priority setting tools involved young people-led committees, mixed methods for identifying and prioritising issues and digital data collection and communication tools. Long-term and frequent contact with young people to build trust underpinned the success of some of the tools, as did offering incentives for taking part and skills development using creative methods. The review also suggests that successful priority setting processes with young people involve consideration of power dynamics, since young people’s decisions are likely to be made together with family members, health professionals and academics. Discussion Young people’s engagement in decision-making about their health is best achieved through investing time in building strong relationships and ensuring young people are appropriately rewarded for their time and contribution. If young people are to be instrumental in improving their health and architects of their own futures, decision-making processes need to respect young people’s autonomy and agency. Our review suggests that methods of power-sharing with young people do exist but that they have yet to be adopted by organisations and global institutions setting global health policy.https://doi.org/10.1186/s12939-022-01794-2Young peopleAdolescentsPriority settingScoping reviewHealth decisions |
| spellingShingle | Daniella Watson Mimi Mhlaba Gontse Molelekeng Thulani Andrew Chauke Sara Correia Simao Sarah Jenner Lisa J. Ware Mary Barker How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods International Journal for Equity in Health Young people Adolescents Priority setting Scoping review Health decisions |
| title | How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods |
| title_full | How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods |
| title_fullStr | How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods |
| title_full_unstemmed | How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods |
| title_short | How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods |
| title_sort | how do we best engage young people in decision making about their health a scoping review of deliberative priority setting methods |
| topic | Young people Adolescents Priority setting Scoping review Health decisions |
| url | https://doi.org/10.1186/s12939-022-01794-2 |
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