Transportation Burden Associated With Hemodialysis in Canada: A Qualitative Study of StakeholdersPlain-Language Summary
Rationale & Objective: For patients requiring in-center hemodialysis, suboptimal transportation arrangements are commonly cited as a source of ongoing stress and anxiety and have been associated with a reduced quality of life and increased mortality risk. Transportation-related problems are...
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| Format: | Article |
| Language: | English |
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Elsevier
2023-02-01
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| Series: | Kidney Medicine |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2590059522002047 |
| _version_ | 1811167218924257280 |
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| author | Rachel A. Lewis Clara Bohm Francis Fraser Robert Fraser Lee Woytkiw Sylvia Jurgutis Melissa Rubin Gordon Smith Jeann Buenafe Nancy Verdin James Hutton Marcello Tonelli |
| author_facet | Rachel A. Lewis Clara Bohm Francis Fraser Robert Fraser Lee Woytkiw Sylvia Jurgutis Melissa Rubin Gordon Smith Jeann Buenafe Nancy Verdin James Hutton Marcello Tonelli |
| author_sort | Rachel A. Lewis |
| collection | DOAJ |
| description | Rationale & Objective: For patients requiring in-center hemodialysis, suboptimal transportation arrangements are commonly cited as a source of ongoing stress and anxiety and have been associated with a reduced quality of life and increased mortality risk. Transportation-related problems are especially pronounced in Canada given its size, low population density, and long, often snowy winters. We aimed to identify and better understand transportation options for hemodialysis patients in Canada and to describe stakeholder experiences. Study Design: We used a qualitative descriptive research design to explore stakeholder experiences and perspectives of transportation to and from dialysis facilities. Setting & Participants: We recruited participants from a large urban hemodialysis program in Western Canada and included 11 participants from a project group, 45 participants from an open forum, and a survey of 8 social workers. Data collection occurred at a series of project group meetings and an open forum (n=45). In addition, we asked 8 renal social workers based in major cities across Canada to comment on the provision of transport for patients in their area via email or telephone consult. Analytical Approach: We used conventional content analysis to explore stakeholder experiences. Results: Traveling to and from dialysis facilities remains a source of stress and anxiety for many patients and their families. Patients described several factors contributing to these feelings including: the challenges of physically getting to the treatment center, particularly in adverse weather conditions; being a burden on family and friends; difficulties accessing the treatment facility; issues with public transport; and financial worries related to high costs. Limitations: Findings may not be relevant in low- and middle-income countries and those with a warmer climate. Conclusions: Without a concerted and collaborative approach to address the barriers identified here, it is likely that travel to and from in-center hemodialysis will continue to adversely affect patients’ quality of life. |
| first_indexed | 2024-04-10T16:06:43Z |
| format | Article |
| id | doaj.art-14f6e04c52ce4a6cb0610e9136c708fa |
| institution | Directory Open Access Journal |
| issn | 2590-0595 |
| language | English |
| last_indexed | 2024-04-10T16:06:43Z |
| publishDate | 2023-02-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Kidney Medicine |
| spelling | doaj.art-14f6e04c52ce4a6cb0610e9136c708fa2023-02-10T04:23:13ZengElsevierKidney Medicine2590-05952023-02-0152100571Transportation Burden Associated With Hemodialysis in Canada: A Qualitative Study of StakeholdersPlain-Language SummaryRachel A. Lewis0Clara Bohm1Francis Fraser2Robert Fraser3Lee Woytkiw4Sylvia Jurgutis5Melissa Rubin6Gordon Smith7Jeann Buenafe8Nancy Verdin9James Hutton10Marcello Tonelli11Department of Medicine, University of Calgary, Calgary, Alberta, Canada; Address for Correspondence: Rachel A. Lewis, PhD, RN, Research Associate, Department of Nephrology, University of Calgary, HSC Building, Office G32, 330 Hospital Drive NW, Calgary, AB, Canada T2N 4NI.Department of Internal Medicine, Max Rady College of Medicine, University of Manitoba, Winnipeg, Manitoba, Canada; Chronic Disease Innovation Centre, Seven Oaks General Hospital, Winnipeg, Manitoba, CanadaSt Joseph’s Hospital, Hamilton, Ontario, CanadaGrand River Hospital, Kitchener, Ontario, CanadaAlberta Health Services, Calgary, Alberta, CanadaOttawa Hospital, Ottawa, Ontario, CanadaToronto General Hospital, Toronto, Ontario, CanadaUniversity of Alberta Hospital, Edmonton, Alberta, CanadaChronic Disease Innovation Centre, Seven Oaks General Hospital, Winnipeg, Manitoba, CanadaPatient partner, University of Calgary, Alberta, CanadaPatient partner, University of Calgary, Alberta, CanadaDepartment of Medicine, University of Calgary, Calgary, Alberta, CanadaRationale & Objective: For patients requiring in-center hemodialysis, suboptimal transportation arrangements are commonly cited as a source of ongoing stress and anxiety and have been associated with a reduced quality of life and increased mortality risk. Transportation-related problems are especially pronounced in Canada given its size, low population density, and long, often snowy winters. We aimed to identify and better understand transportation options for hemodialysis patients in Canada and to describe stakeholder experiences. Study Design: We used a qualitative descriptive research design to explore stakeholder experiences and perspectives of transportation to and from dialysis facilities. Setting & Participants: We recruited participants from a large urban hemodialysis program in Western Canada and included 11 participants from a project group, 45 participants from an open forum, and a survey of 8 social workers. Data collection occurred at a series of project group meetings and an open forum (n=45). In addition, we asked 8 renal social workers based in major cities across Canada to comment on the provision of transport for patients in their area via email or telephone consult. Analytical Approach: We used conventional content analysis to explore stakeholder experiences. Results: Traveling to and from dialysis facilities remains a source of stress and anxiety for many patients and their families. Patients described several factors contributing to these feelings including: the challenges of physically getting to the treatment center, particularly in adverse weather conditions; being a burden on family and friends; difficulties accessing the treatment facility; issues with public transport; and financial worries related to high costs. Limitations: Findings may not be relevant in low- and middle-income countries and those with a warmer climate. Conclusions: Without a concerted and collaborative approach to address the barriers identified here, it is likely that travel to and from in-center hemodialysis will continue to adversely affect patients’ quality of life.http://www.sciencedirect.com/science/article/pii/S2590059522002047Chronic kidney diseasehemodialysisin-centerqualitativequality of lifepatient perspective |
| spellingShingle | Rachel A. Lewis Clara Bohm Francis Fraser Robert Fraser Lee Woytkiw Sylvia Jurgutis Melissa Rubin Gordon Smith Jeann Buenafe Nancy Verdin James Hutton Marcello Tonelli Transportation Burden Associated With Hemodialysis in Canada: A Qualitative Study of StakeholdersPlain-Language Summary Kidney Medicine Chronic kidney disease hemodialysis in-center qualitative quality of life patient perspective |
| title | Transportation Burden Associated With Hemodialysis in Canada: A Qualitative Study of StakeholdersPlain-Language Summary |
| title_full | Transportation Burden Associated With Hemodialysis in Canada: A Qualitative Study of StakeholdersPlain-Language Summary |
| title_fullStr | Transportation Burden Associated With Hemodialysis in Canada: A Qualitative Study of StakeholdersPlain-Language Summary |
| title_full_unstemmed | Transportation Burden Associated With Hemodialysis in Canada: A Qualitative Study of StakeholdersPlain-Language Summary |
| title_short | Transportation Burden Associated With Hemodialysis in Canada: A Qualitative Study of StakeholdersPlain-Language Summary |
| title_sort | transportation burden associated with hemodialysis in canada a qualitative study of stakeholdersplain language summary |
| topic | Chronic kidney disease hemodialysis in-center qualitative quality of life patient perspective |
| url | http://www.sciencedirect.com/science/article/pii/S2590059522002047 |
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