Evaluation of the Quality of Life of Patients with Myasthenia Gravis in Greece
Myasthenia Gravis (MG) patients often report an affected quality of life (QoL). The aim of the current study was to evaluate the QoL of patients with MG in Greece using a specific tool. A cross-sectional online survey was performed. Adult patients were invited to participate. A questionnaire incorpo...
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MDPI AG
2023-07-01
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| Series: | Journal of Personalized Medicine |
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| Online Access: | https://www.mdpi.com/2075-4426/13/7/1130 |
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| author | Afrodite Aggelina Eleftheria Karampli Georgios Mavrovounis Ioannis Boutsikos Ioannis Pantazopoulos Sotirios Kakavas Elpida Pavi Kostas Athanasakis |
| author_facet | Afrodite Aggelina Eleftheria Karampli Georgios Mavrovounis Ioannis Boutsikos Ioannis Pantazopoulos Sotirios Kakavas Elpida Pavi Kostas Athanasakis |
| author_sort | Afrodite Aggelina |
| collection | DOAJ |
| description | Myasthenia Gravis (MG) patients often report an affected quality of life (QoL). The aim of the current study was to evaluate the QoL of patients with MG in Greece using a specific tool. A cross-sectional online survey was performed. Adult patients were invited to participate. A questionnaire incorporating the MG-QOL15r scale was distributed, following its translation and cultural adaptation into Greek. Overall, 99 valid responses were submitted. The median age (interquartile range) of the participants was 48.50 (13.50) years and 76.80% were females. One third of the patients mentioned that they could not work/changed jobs after their diagnosis (28.30%) and that they face severe restriction of their everyday activities (26.30%). The mean MG-QOL15r score was 13.50 ± 7.70. Patients with important restriction of everyday activities (<i>p</i> < 0.01), patients with more pronounced need of emotional support (<i>p</i> < 0.01), patients with generalized MG (<i>p</i> < 0.01) and patients with myasthenic crises (<i>p</i> < 0.01) reported lower QoL. This study is the first to report on the affected QoL of the Greek population with MG using the MG-QoL15r scale. Further work should be done to incorporate the routine evaluation of QoL in the care of patients with MG. |
| first_indexed | 2024-03-11T00:55:24Z |
| format | Article |
| id | doaj.art-1543e39d4f8b49ca80bf773ee8d5a443 |
| institution | Directory Open Access Journal |
| issn | 2075-4426 |
| language | English |
| last_indexed | 2024-03-11T00:55:24Z |
| publishDate | 2023-07-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Journal of Personalized Medicine |
| spelling | doaj.art-1543e39d4f8b49ca80bf773ee8d5a4432023-11-18T20:04:04ZengMDPI AGJournal of Personalized Medicine2075-44262023-07-01137113010.3390/jpm13071130Evaluation of the Quality of Life of Patients with Myasthenia Gravis in GreeceAfrodite Aggelina0Eleftheria Karampli1Georgios Mavrovounis2Ioannis Boutsikos3Ioannis Pantazopoulos4Sotirios Kakavas5Elpida Pavi6Kostas Athanasakis7Department of Public Health Policy, University of West Attica Athens, 115 21 Athens, GreeceLaboratory for Health Technology Assessment, Department of Public Health Policy, School of Public Health, University of West Attica, 115 21 Athens, GreeceDepartment of Emergency Medicine, Faculty of Medicine, University of Thessaly, 415 00 Larissa, GreeceDepartment of Emergency Medicine, Faculty of Medicine, University of Thessaly, 415 00 Larissa, GreeceDepartment of Emergency Medicine, Faculty of Medicine, University of Thessaly, 415 00 Larissa, GreeceICU, Henry Dunant Hospital Center, 115 26 Athens, GreeceLaboratory for Health Technology Assessment, Department of Public Health Policy, School of Public Health, University of West Attica, 115 21 Athens, GreeceLaboratory for Health Technology Assessment, Department of Public Health Policy, School of Public Health, University of West Attica, 115 21 Athens, GreeceMyasthenia Gravis (MG) patients often report an affected quality of life (QoL). The aim of the current study was to evaluate the QoL of patients with MG in Greece using a specific tool. A cross-sectional online survey was performed. Adult patients were invited to participate. A questionnaire incorporating the MG-QOL15r scale was distributed, following its translation and cultural adaptation into Greek. Overall, 99 valid responses were submitted. The median age (interquartile range) of the participants was 48.50 (13.50) years and 76.80% were females. One third of the patients mentioned that they could not work/changed jobs after their diagnosis (28.30%) and that they face severe restriction of their everyday activities (26.30%). The mean MG-QOL15r score was 13.50 ± 7.70. Patients with important restriction of everyday activities (<i>p</i> < 0.01), patients with more pronounced need of emotional support (<i>p</i> < 0.01), patients with generalized MG (<i>p</i> < 0.01) and patients with myasthenic crises (<i>p</i> < 0.01) reported lower QoL. This study is the first to report on the affected QoL of the Greek population with MG using the MG-QoL15r scale. Further work should be done to incorporate the routine evaluation of QoL in the care of patients with MG.https://www.mdpi.com/2075-4426/13/7/1130myasthenia gravisquality of lifeMG-QOL15rpatient-reported outcomesneuromuscular disordersMGQoL15 |
| spellingShingle | Afrodite Aggelina Eleftheria Karampli Georgios Mavrovounis Ioannis Boutsikos Ioannis Pantazopoulos Sotirios Kakavas Elpida Pavi Kostas Athanasakis Evaluation of the Quality of Life of Patients with Myasthenia Gravis in Greece Journal of Personalized Medicine myasthenia gravis quality of life MG-QOL15r patient-reported outcomes neuromuscular disorders MGQoL15 |
| title | Evaluation of the Quality of Life of Patients with Myasthenia Gravis in Greece |
| title_full | Evaluation of the Quality of Life of Patients with Myasthenia Gravis in Greece |
| title_fullStr | Evaluation of the Quality of Life of Patients with Myasthenia Gravis in Greece |
| title_full_unstemmed | Evaluation of the Quality of Life of Patients with Myasthenia Gravis in Greece |
| title_short | Evaluation of the Quality of Life of Patients with Myasthenia Gravis in Greece |
| title_sort | evaluation of the quality of life of patients with myasthenia gravis in greece |
| topic | myasthenia gravis quality of life MG-QOL15r patient-reported outcomes neuromuscular disorders MGQoL15 |
| url | https://www.mdpi.com/2075-4426/13/7/1130 |
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