Patient engagement in health implementation research: A logic model

Abstract Introduction Growing evidence supports patient engagement (PE) in health implementation research to improve the quality, relevance and uptake of research. However, more guidance is needed to plan and operationalize PE before and throughout the research process. The aim of the study was to d...

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Main Authors: Mathieu Bisson, Kris Aubrey‐Bassler, Maud‐Christine Chouinard, Shelley Doucet, Vivian R. Ramsden, Olivier Dumont‐Samson, Dana Howse, Mireille Lambert, Charlotte Schwarz, Alison Luke, Norma Rabbitskin, André Gaudreau, Jude Porter, Donna Rubenstein, Jennifer Taylor, Mike Warren, Catherine Hudon
Format: Article
Language:English
Published: Wiley 2023-10-01
Series:Health Expectations
Subjects:
Online Access:https://doi.org/10.1111/hex.13782
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author Mathieu Bisson
Kris Aubrey‐Bassler
Maud‐Christine Chouinard
Shelley Doucet
Vivian R. Ramsden
Olivier Dumont‐Samson
Dana Howse
Mireille Lambert
Charlotte Schwarz
Alison Luke
Norma Rabbitskin
André Gaudreau
Jude Porter
Donna Rubenstein
Jennifer Taylor
Mike Warren
Catherine Hudon
author_facet Mathieu Bisson
Kris Aubrey‐Bassler
Maud‐Christine Chouinard
Shelley Doucet
Vivian R. Ramsden
Olivier Dumont‐Samson
Dana Howse
Mireille Lambert
Charlotte Schwarz
Alison Luke
Norma Rabbitskin
André Gaudreau
Jude Porter
Donna Rubenstein
Jennifer Taylor
Mike Warren
Catherine Hudon
author_sort Mathieu Bisson
collection DOAJ
description Abstract Introduction Growing evidence supports patient engagement (PE) in health implementation research to improve the quality, relevance and uptake of research. However, more guidance is needed to plan and operationalize PE before and throughout the research process. The aim of the study was to develop a logic model illustrating the causal links between context, resources, activities, outcomes and impact of PE in an implementation research programme. Methods The Patient Engagement in Health Implementation Research Logic Model (hereafter the Logic Model) was developed using a descriptive qualitative design with a participatory approach, in the context of the PriCARE programme. This programme aims to implement and evaluate case management for individuals who frequently use healthcare services in primary care clinics across five Canadian provinces. Participant observation of team meetings was performed by all team members involved in the programme and in‐depth interviews were conducted by two external research assistants with team members (n = 22). A deductive thematic analysis using components of logic models as coding categories was conducted. Data were pooled in the first version of the Logic Model, which was refined in research team meetings with patient partners. The final version was validated by all team members. Results The Logic Model highlights the importance of integrating PE into the project before its commencement, with appropriate support in terms of funding and time allocation. The governance structure and leadership of both principal investigators and patient partners have significant effects on PE activities and outcomes. As an empirical and standardized illustration that facilitates a shared understanding, the Logic Model provides guidance for maximizing the impact of patient partnership in various contexts for research, patients, providers and health care. Conclusion The Logic Model will help academic researchers, decision makers and patient partners plan, operationalize, and assess PE in implementation research for optimal outcomes. Patient or Public Contribution Patient partners from the PriCARE research programme contributed to developing the research objectives and designing, developing and validating data collection tools, producing data, developing and validating the Logic Model and reviewing the manuscript.
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spelling doaj.art-166f5cfea32e46f481f666d3d94e751d2023-09-08T04:49:55ZengWileyHealth Expectations1369-65131369-76252023-10-012651854186210.1111/hex.13782Patient engagement in health implementation research: A logic modelMathieu Bisson0Kris Aubrey‐Bassler1Maud‐Christine Chouinard2Shelley Doucet3Vivian R. Ramsden4Olivier Dumont‐Samson5Dana Howse6Mireille Lambert7Charlotte Schwarz8Alison Luke9Norma Rabbitskin10André Gaudreau11Jude Porter12Donna Rubenstein13Jennifer Taylor14Mike Warren15Catherine Hudon16Département de médecine de famille et de médecine d'urgence Université de Sherbrooke Sherbrooke Québec CanadaPrimary Healthcare Research Unit, Faculty of Medicine Memorial University St. John's Newfoundland and Labrador CanadaFaculty of Nursing Université de Montréal Montreal Québec CanadaDepartment of Nursing and Health Sciences University of New Brunswick Fredericton New Brunswick CanadaDepartment of Academic Family Medicine University of Saskatchewan Saskatoon Saskatchewan CanadaDépartement de médecine de famille et de médecine d'urgence Université de Sherbrooke Sherbrooke Québec CanadaPrimary Healthcare Research Unit, Faculty of Medicine Memorial University St. John's Newfoundland and Labrador CanadaDépartement de médecine de famille et de médecine d'urgence Université de Sherbrooke Sherbrooke Québec CanadaDepartment of Nursing and Health Sciences University of New Brunswick Fredericton New Brunswick CanadaDepartment of Nursing and Health Sciences University of New Brunswick Fredericton New Brunswick CanadaDepartment of Academic Family Medicine University of Saskatchewan Saskatoon Saskatchewan CanadaPatient Partners QC, NS, NB, NL CanadaPatient Partners QC, NS, NB, NL CanadaPatient Partners QC, NS, NB, NL CanadaPatient Partners QC, NS, NB, NL CanadaPatient Partners QC, NS, NB, NL CanadaDépartement de médecine de famille et de médecine d'urgence Université de Sherbrooke Sherbrooke Québec CanadaAbstract Introduction Growing evidence supports patient engagement (PE) in health implementation research to improve the quality, relevance and uptake of research. However, more guidance is needed to plan and operationalize PE before and throughout the research process. The aim of the study was to develop a logic model illustrating the causal links between context, resources, activities, outcomes and impact of PE in an implementation research programme. Methods The Patient Engagement in Health Implementation Research Logic Model (hereafter the Logic Model) was developed using a descriptive qualitative design with a participatory approach, in the context of the PriCARE programme. This programme aims to implement and evaluate case management for individuals who frequently use healthcare services in primary care clinics across five Canadian provinces. Participant observation of team meetings was performed by all team members involved in the programme and in‐depth interviews were conducted by two external research assistants with team members (n = 22). A deductive thematic analysis using components of logic models as coding categories was conducted. Data were pooled in the first version of the Logic Model, which was refined in research team meetings with patient partners. The final version was validated by all team members. Results The Logic Model highlights the importance of integrating PE into the project before its commencement, with appropriate support in terms of funding and time allocation. The governance structure and leadership of both principal investigators and patient partners have significant effects on PE activities and outcomes. As an empirical and standardized illustration that facilitates a shared understanding, the Logic Model provides guidance for maximizing the impact of patient partnership in various contexts for research, patients, providers and health care. Conclusion The Logic Model will help academic researchers, decision makers and patient partners plan, operationalize, and assess PE in implementation research for optimal outcomes. Patient or Public Contribution Patient partners from the PriCARE research programme contributed to developing the research objectives and designing, developing and validating data collection tools, producing data, developing and validating the Logic Model and reviewing the manuscript.https://doi.org/10.1111/hex.13782health implementation researchlogic modelpatient engagementpatient involvementpatient partnership in research
spellingShingle Mathieu Bisson
Kris Aubrey‐Bassler
Maud‐Christine Chouinard
Shelley Doucet
Vivian R. Ramsden
Olivier Dumont‐Samson
Dana Howse
Mireille Lambert
Charlotte Schwarz
Alison Luke
Norma Rabbitskin
André Gaudreau
Jude Porter
Donna Rubenstein
Jennifer Taylor
Mike Warren
Catherine Hudon
Patient engagement in health implementation research: A logic model
Health Expectations
health implementation research
logic model
patient engagement
patient involvement
patient partnership in research
title Patient engagement in health implementation research: A logic model
title_full Patient engagement in health implementation research: A logic model
title_fullStr Patient engagement in health implementation research: A logic model
title_full_unstemmed Patient engagement in health implementation research: A logic model
title_short Patient engagement in health implementation research: A logic model
title_sort patient engagement in health implementation research a logic model
topic health implementation research
logic model
patient engagement
patient involvement
patient partnership in research
url https://doi.org/10.1111/hex.13782
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