Primary healthcare needs and service utilisation of people with disability: a data linkage protocol
Introduction General practitioners (GPs) play a crucial role in the early management and treatment of the comorbidities and complications experienced by people with disability. However, GPs experience multiple constraints, including limited time and disability-related expertise. Knowledge gaps aroun...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2023-04-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/13/4/e068059.full |
| _version_ | 1797844029622190080 |
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| author | Adam McLeod Christopher Pearce Jacinta Douglas Di Winkler Stacey Oliver Karina Gardner Jamie Supple |
| author_facet | Adam McLeod Christopher Pearce Jacinta Douglas Di Winkler Stacey Oliver Karina Gardner Jamie Supple |
| author_sort | Adam McLeod |
| collection | DOAJ |
| description | Introduction General practitioners (GPs) play a crucial role in the early management and treatment of the comorbidities and complications experienced by people with disability. However, GPs experience multiple constraints, including limited time and disability-related expertise. Knowledge gaps around the health needs of people with disability as well as the frequency and extent of their engagement with GPs mean evidence to inform practice is limited. Using a linked dataset, this project aims to enhance the knowledge of the GP workforce by describing the health needs of people with disability.Methods and analysis This project is a retrospective cohort study using general practice health records from the eastern Melbourne region in Victoria, Australia. The research uses Eastern Melbourne Primary Health Network (EMPHN)-owned de-identified primary care data from Outcome Health’s POpulation Level Analysis and Reporting Tool (POLAR). The EMPHN POLAR GP health records have been linked with National Disability Insurance Scheme (NDIS) data. Data analysis will involve comparisons across disability groups and the rest of the population to explore utilisation (eg, frequency of visits), clinical and preventative care (eg, cancer screening, blood pressure readings) and health needs (eg, health conditions, medications). Initial analyses will focus on NDIS participants as a whole and NDIS participants whose condition is either an acquired brain injury, stroke, spinal cord injury, multiple sclerosis or cerebral palsy, as classified by the NDIS.Ethics and dissemination Ethics approval was obtained from the Eastern Health Human Research Ethics Committee (E20/001/58261), and approval for the general collection, storage and transfer of data was from the Royal Australian College of General Practitioners National Research Ethics and Evaluation Committee (protocol ID: 17-088). Dissemination mechanisms will include the engagement of stakeholders through reference groups and steering committees, as well as the production of research translation resources in parallel with peer-reviewed publications and conference presentations. |
| first_indexed | 2024-04-09T17:15:51Z |
| format | Article |
| id | doaj.art-16bed83eb328481cadd0327d310dfa6f |
| institution | Directory Open Access Journal |
| issn | 2044-6055 |
| language | English |
| last_indexed | 2024-04-09T17:15:51Z |
| publishDate | 2023-04-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj.art-16bed83eb328481cadd0327d310dfa6f2023-04-19T23:00:06ZengBMJ Publishing GroupBMJ Open2044-60552023-04-0113410.1136/bmjopen-2022-068059Primary healthcare needs and service utilisation of people with disability: a data linkage protocolAdam McLeod0Christopher Pearce1Jacinta Douglas2Di Winkler3Stacey Oliver4Karina Gardner5Jamie Supple6Department of Primary Care Research, Outcome Health, Melbourne, Victoria, AustraliaCentre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University Faculty of Medicine Health and Human Sciences, Sydney, New South Wales, AustraliaLiving with Disability Research Centre, La Trobe University, Bundoora, Victoria, AustraliaResearch Unit, Summer Foundation, Blackburn, Victoria, AustraliaSummer Foundation, Melbourne, Victoria, AustraliaDepartment of Primary Care Research, Outcome Health, Melbourne, Victoria, AustraliaDepartment of Primary Care Research, Outcome Health, Melbourne, Victoria, AustraliaIntroduction General practitioners (GPs) play a crucial role in the early management and treatment of the comorbidities and complications experienced by people with disability. However, GPs experience multiple constraints, including limited time and disability-related expertise. Knowledge gaps around the health needs of people with disability as well as the frequency and extent of their engagement with GPs mean evidence to inform practice is limited. Using a linked dataset, this project aims to enhance the knowledge of the GP workforce by describing the health needs of people with disability.Methods and analysis This project is a retrospective cohort study using general practice health records from the eastern Melbourne region in Victoria, Australia. The research uses Eastern Melbourne Primary Health Network (EMPHN)-owned de-identified primary care data from Outcome Health’s POpulation Level Analysis and Reporting Tool (POLAR). The EMPHN POLAR GP health records have been linked with National Disability Insurance Scheme (NDIS) data. Data analysis will involve comparisons across disability groups and the rest of the population to explore utilisation (eg, frequency of visits), clinical and preventative care (eg, cancer screening, blood pressure readings) and health needs (eg, health conditions, medications). Initial analyses will focus on NDIS participants as a whole and NDIS participants whose condition is either an acquired brain injury, stroke, spinal cord injury, multiple sclerosis or cerebral palsy, as classified by the NDIS.Ethics and dissemination Ethics approval was obtained from the Eastern Health Human Research Ethics Committee (E20/001/58261), and approval for the general collection, storage and transfer of data was from the Royal Australian College of General Practitioners National Research Ethics and Evaluation Committee (protocol ID: 17-088). Dissemination mechanisms will include the engagement of stakeholders through reference groups and steering committees, as well as the production of research translation resources in parallel with peer-reviewed publications and conference presentations.https://bmjopen.bmj.com/content/13/4/e068059.full |
| spellingShingle | Adam McLeod Christopher Pearce Jacinta Douglas Di Winkler Stacey Oliver Karina Gardner Jamie Supple Primary healthcare needs and service utilisation of people with disability: a data linkage protocol BMJ Open |
| title | Primary healthcare needs and service utilisation of people with disability: a data linkage protocol |
| title_full | Primary healthcare needs and service utilisation of people with disability: a data linkage protocol |
| title_fullStr | Primary healthcare needs and service utilisation of people with disability: a data linkage protocol |
| title_full_unstemmed | Primary healthcare needs and service utilisation of people with disability: a data linkage protocol |
| title_short | Primary healthcare needs and service utilisation of people with disability: a data linkage protocol |
| title_sort | primary healthcare needs and service utilisation of people with disability a data linkage protocol |
| url | https://bmjopen.bmj.com/content/13/4/e068059.full |
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