Hospital Support for Siblings of Children With Illness in Japan

Recent years have seen increased attention to the needs and support of siblings of children with chronic illness, and reports of intervention studies on siblings are gradually increasing worldwide. In Japan, the basic policy approved by the Cabinet in 2021 of The Basic Law for Child and Maternal Hea...

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Main Authors: Kazuteru Niinomi, Hajime Mihira, Ryota Ochiai, Akiko Misawa, Kuniyoshi Takigawa, Nagako Kashiki, Naoko Kakee, Hidemi Takata, Yasushi Ishida, Takashi Higaki
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-05-01
Series:Frontiers in Pediatrics
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fped.2022.927084/full
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author Kazuteru Niinomi
Hajime Mihira
Ryota Ochiai
Akiko Misawa
Kuniyoshi Takigawa
Nagako Kashiki
Naoko Kakee
Hidemi Takata
Yasushi Ishida
Takashi Higaki
author_facet Kazuteru Niinomi
Hajime Mihira
Ryota Ochiai
Akiko Misawa
Kuniyoshi Takigawa
Nagako Kashiki
Naoko Kakee
Hidemi Takata
Yasushi Ishida
Takashi Higaki
author_sort Kazuteru Niinomi
collection DOAJ
description Recent years have seen increased attention to the needs and support of siblings of children with chronic illness, and reports of intervention studies on siblings are gradually increasing worldwide. In Japan, the basic policy approved by the Cabinet in 2021 of The Basic Law for Child and Maternal Health and Development stipulates promoting support for the siblings of children with chronic illness, medical care, and disabilities. Simultaneously, practical reports are emerging. However, reports on the actual state of sibling support at medical institutions in Japan are limited. This study aimed to describe the actual state of support for siblings of children with illness in Japanese medical institutions using a cross-sectional design. Responses were obtained from 207 of 484 registered training facilities for Board-Certified Pediatricians of the Japan Pediatric Society through anonymous questionnaires investigating the actual state of siblings' support. Descriptive statistics were calculated, and the state of siblings' support was described. Fifty-two participants (25.1%) answered that the entire ward, including two outpatient departments, provided siblings' support, while 37 (17.9%) answered some staff made an effort, and 117 (56.5%) did not. Support mentioned included conversing with siblings, actively speaking to siblings, calling siblings' names, and counseling care through the parents. Of the 45 cases (21.7%) where siblings were invited to events and gatherings, 10 (22.2%) were siblings-centered events. Some cases involved collaboration with local sibling support groups such as non-profit organizations. This study clarified the actual state of siblings' support, and further expansion of this support is required.
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spelling doaj.art-16ea2fe300bc460ea3c5052db48cf0572022-12-22T02:21:11ZengFrontiers Media S.A.Frontiers in Pediatrics2296-23602022-05-011010.3389/fped.2022.927084927084Hospital Support for Siblings of Children With Illness in JapanKazuteru Niinomi0Hajime Mihira1Ryota Ochiai2Akiko Misawa3Kuniyoshi Takigawa4Nagako Kashiki5Naoko Kakee6Hidemi Takata7Yasushi Ishida8Takashi Higaki9Department of Integrated Health Sciences, Graduate School of Medicine, Nagoya University, Nagoya, JapanEducation and Research Center of Legal Medicine, Chiba University, Chiba, JapanDepartment of Nursing, Graduate School of Medicine, Yokohama City University, Yokohama, JapanYamashiro Minami Health Care Center of Kyoto Prefecture, Kizugawa, JapanDepartment of Education, Faculty of Human Development and Education, Kyoto Women's University, Kyoto, JapanGraduate School of Education, Ehime University, Matsuyama, JapanDivision of Bioethics, National Center for Child Health and Development, Tokyo, JapanDepartment of Regional Pediatrics and Perinatology, Graduate School of Medicine, Ehime University, Toon, JapanPediatric Medical Center, Ehime Prefectural Central Hospital, Matsuyama, JapanDepartment of Regional Pediatrics and Perinatology, Graduate School of Medicine, Ehime University, Toon, JapanRecent years have seen increased attention to the needs and support of siblings of children with chronic illness, and reports of intervention studies on siblings are gradually increasing worldwide. In Japan, the basic policy approved by the Cabinet in 2021 of The Basic Law for Child and Maternal Health and Development stipulates promoting support for the siblings of children with chronic illness, medical care, and disabilities. Simultaneously, practical reports are emerging. However, reports on the actual state of sibling support at medical institutions in Japan are limited. This study aimed to describe the actual state of support for siblings of children with illness in Japanese medical institutions using a cross-sectional design. Responses were obtained from 207 of 484 registered training facilities for Board-Certified Pediatricians of the Japan Pediatric Society through anonymous questionnaires investigating the actual state of siblings' support. Descriptive statistics were calculated, and the state of siblings' support was described. Fifty-two participants (25.1%) answered that the entire ward, including two outpatient departments, provided siblings' support, while 37 (17.9%) answered some staff made an effort, and 117 (56.5%) did not. Support mentioned included conversing with siblings, actively speaking to siblings, calling siblings' names, and counseling care through the parents. Of the 45 cases (21.7%) where siblings were invited to events and gatherings, 10 (22.2%) were siblings-centered events. Some cases involved collaboration with local sibling support groups such as non-profit organizations. This study clarified the actual state of siblings' support, and further expansion of this support is required.https://www.frontiersin.org/articles/10.3389/fped.2022.927084/fullchildrenchronic illnesshospital supportnationwide surveysiblingschildren with illness
spellingShingle Kazuteru Niinomi
Hajime Mihira
Ryota Ochiai
Akiko Misawa
Kuniyoshi Takigawa
Nagako Kashiki
Naoko Kakee
Hidemi Takata
Yasushi Ishida
Takashi Higaki
Hospital Support for Siblings of Children With Illness in Japan
Frontiers in Pediatrics
children
chronic illness
hospital support
nationwide survey
siblings
children with illness
title Hospital Support for Siblings of Children With Illness in Japan
title_full Hospital Support for Siblings of Children With Illness in Japan
title_fullStr Hospital Support for Siblings of Children With Illness in Japan
title_full_unstemmed Hospital Support for Siblings of Children With Illness in Japan
title_short Hospital Support for Siblings of Children With Illness in Japan
title_sort hospital support for siblings of children with illness in japan
topic children
chronic illness
hospital support
nationwide survey
siblings
children with illness
url https://www.frontiersin.org/articles/10.3389/fped.2022.927084/full
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