Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods study

Introduction We aimed to develop a decision aid to support shared-decision making between physicians and women with average breast cancer risk when deciding whether to participate in breast cancer screening. Methods We included women at average risk of breast cancer and physicians involved in sup...

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Main Authors: Paula Riganti, María Victoria Ruiz Yanzi, Juan Víctor Ariel Franco, Josefina Chiodi, Mónica Regueiro, Karin Silvana Kopitowski
Format: Article
Language:English
Published: Medwave Estudios Limitada 2024-03-01
Series:Medwave
Subjects:
Online Access:https://www.medwave.cl/investigacion/estudios/2726.html?lang=en
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author Paula Riganti
María Victoria Ruiz Yanzi
Juan Víctor Ariel Franco
Josefina Chiodi
Mónica Regueiro
Karin Silvana Kopitowski
author_facet Paula Riganti
María Victoria Ruiz Yanzi
Juan Víctor Ariel Franco
Josefina Chiodi
Mónica Regueiro
Karin Silvana Kopitowski
author_sort Paula Riganti
collection DOAJ
description Introduction We aimed to develop a decision aid to support shared-decision making between physicians and women with average breast cancer risk when deciding whether to participate in breast cancer screening. Methods We included women at average risk of breast cancer and physicians involved in supporting the decision of breast cancer screening from an Academic Hospital in Buenos Aires, Argentina. We followed the International Patient Decision Aid Standards to develop our decision aid. Guided by a steering group and a multidisciplinary consultancy group including a patient advocate, we reviewed the evidence about breast cancer screening and previous decision aids, explored the patients' information needs on this topic from the patients' and physicians' perspective using semi-structured interviews, and we alpha-tested the prototype to determine its usability, comprehensibility and applicability. Results We developed the first prototype of a web-based decision aid to use during the clinical encounter with women aged 40 to 69 with average breast cancer risk. After a meeting with our consultancy group, we developed a second prototype that underwent alpha-testing. Physicians and patients agreed that the tool was clear, useful and applicable during a clinical encounter. We refined our final prototype according to their feedback. Conclusion We developed the first decision aid in our region and language on this topic, developed with end-users' input and informed by the best available evidence. We expect this decision aid to help women and physicians make shared decisions during the clinical encounter when talking about breast cancer screening.
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spelling doaj.art-17332dd3efa446fb80742c40acae19bc2024-03-27T18:29:54ZengMedwave Estudios LimitadaMedwave0717-63842024-03-012403e2726e272610.5867/medwave.2024.02.2726Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods studyPaula Riganti0https://orcid.org/0000-0003-4200-9698María Victoria Ruiz Yanzi1https://orcid.org/0000-0002-5871-2591Juan Víctor Ariel Franco2https://orcid.org/0000-0003-0411-899XJosefina Chiodi3https://orcid.org/0000-0003-1502-8500Mónica Regueiro4Karin Silvana Kopitowski5https://orcid.org/0000-0003-0939-0263Family and Community Medicine Department, Hospital Italiano de Buenos Aires, Buenos Aires, ArgentinaFamily and Community Medicine Department, Hospital Italiano de Buenos Aires, Buenos Aires, ArgentinaInstitute of General Practice, Medical Faculty of the Heinrich-Heine-University Düsseldorf, Düsseldorf, GermanyFamily and Community Medicine Department, Hospital Italiano de Buenos Aires, Buenos Aires, ArgentinaPatient advocate, Buenos Aires, ArgentinaFamily and Community Medicine Department, Hospital Italiano de Buenos Aires, Buenos Aires, ArgentinaIntroduction We aimed to develop a decision aid to support shared-decision making between physicians and women with average breast cancer risk when deciding whether to participate in breast cancer screening. Methods We included women at average risk of breast cancer and physicians involved in supporting the decision of breast cancer screening from an Academic Hospital in Buenos Aires, Argentina. We followed the International Patient Decision Aid Standards to develop our decision aid. Guided by a steering group and a multidisciplinary consultancy group including a patient advocate, we reviewed the evidence about breast cancer screening and previous decision aids, explored the patients' information needs on this topic from the patients' and physicians' perspective using semi-structured interviews, and we alpha-tested the prototype to determine its usability, comprehensibility and applicability. Results We developed the first prototype of a web-based decision aid to use during the clinical encounter with women aged 40 to 69 with average breast cancer risk. After a meeting with our consultancy group, we developed a second prototype that underwent alpha-testing. Physicians and patients agreed that the tool was clear, useful and applicable during a clinical encounter. We refined our final prototype according to their feedback. Conclusion We developed the first decision aid in our region and language on this topic, developed with end-users' input and informed by the best available evidence. We expect this decision aid to help women and physicians make shared decisions during the clinical encounter when talking about breast cancer screening.https://www.medwave.cl/investigacion/estudios/2726.html?lang=endecision makingsharedbreast neoplasmsearly detection of cancerdecision support techniques
spellingShingle Paula Riganti
María Victoria Ruiz Yanzi
Juan Víctor Ariel Franco
Josefina Chiodi
Mónica Regueiro
Karin Silvana Kopitowski
Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods study
Medwave
decision making
shared
breast neoplasms
early detection of cancer
decision support techniques
title Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods study
title_full Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods study
title_fullStr Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods study
title_full_unstemmed Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods study
title_short Developing a breast cancer screening decision aid in Spanish for average-risk women: a mixed methods study
title_sort developing a breast cancer screening decision aid in spanish for average risk women a mixed methods study
topic decision making
shared
breast neoplasms
early detection of cancer
decision support techniques
url https://www.medwave.cl/investigacion/estudios/2726.html?lang=en
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