Knowledge translation dataset: An e-health intervention for pregnancy in inflammatory bowel disease
This article presents data collected from a cohort of patients with inflammatory bowel disease, who expressed interest in family planning and reproductive health in their clinical context. They were randomized (1:1, text-only vs. multimedia content) to access an online e-health portal containing edu...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2019-04-01
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| Series: | Data in Brief |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2352340918316251 |
| _version_ | 1818888398497120256 |
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| author | Reed T. Sutton Kelsey Wierstra Vivian W. Huang |
| author_facet | Reed T. Sutton Kelsey Wierstra Vivian W. Huang |
| author_sort | Reed T. Sutton |
| collection | DOAJ |
| description | This article presents data collected from a cohort of patients with inflammatory bowel disease, who expressed interest in family planning and reproductive health in their clinical context. They were randomized (1:1, text-only vs. multimedia content) to access an online e-health portal containing educational information on the topic. The data collected includes baseline demographics, medication history, reproductive history, as well as standardized, validated questionnaires on knowledge (‘CCPKnow’), reproductive concerns, beliefs about medications (‘BMQ’), and medication adherence (‘MARS-5’). These questionnaires were administered prior to the intervention, immediately after accessing the materials, and a minimum of 6 months later (without re-accessing the online material). Two publications have been generated from analysis and aggregation of the CCPKnow data (“Pregnancy-related Beliefs and Concerns of Inflammatory Bowel Disease Patients are Modified After Accessing e-Health Portal” (Sutton et al., in press), “Innovative Online Educational Portal Improves Disease-Specific Reproductive Knowledge Among Patients With Inflammatory Bowel Disease” (Sutton et al., 2018) however this is an extensive dataset that could be analyzed or combined with others’ datasets for further insights. Keywords: Inflammatory bowel disease, Pregnancy, Maternal and child health, Sexual and reproductive health, Concerns, CCPKnow, Medications, Beliefs about medications, BMQ, Medication adherence, MARS |
| first_indexed | 2024-12-19T16:52:30Z |
| format | Article |
| id | doaj.art-177f9daac27c4aefb3210c0d29554a65 |
| institution | Directory Open Access Journal |
| issn | 2352-3409 |
| language | English |
| last_indexed | 2024-12-19T16:52:30Z |
| publishDate | 2019-04-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Data in Brief |
| spelling | doaj.art-177f9daac27c4aefb3210c0d29554a652022-12-21T20:13:30ZengElsevierData in Brief2352-34092019-04-0123Knowledge translation dataset: An e-health intervention for pregnancy in inflammatory bowel diseaseReed T. Sutton0Kelsey Wierstra1Vivian W. Huang2Department of Medicine, University of Alberta, Edmonton, CanadaDepartment of Medicine, University of Alberta, Edmonton, CanadaDepartment of Medicine, University of Alberta, Edmonton, Canada; Department of Medicine, University of Toronto, Toronto, Canada; Correspondence to: University of Alberta, Zeidler Ledcor Center, 8540 112th Street NW, Edmonton, Alberta, Canada T6G 2X8.This article presents data collected from a cohort of patients with inflammatory bowel disease, who expressed interest in family planning and reproductive health in their clinical context. They were randomized (1:1, text-only vs. multimedia content) to access an online e-health portal containing educational information on the topic. The data collected includes baseline demographics, medication history, reproductive history, as well as standardized, validated questionnaires on knowledge (‘CCPKnow’), reproductive concerns, beliefs about medications (‘BMQ’), and medication adherence (‘MARS-5’). These questionnaires were administered prior to the intervention, immediately after accessing the materials, and a minimum of 6 months later (without re-accessing the online material). Two publications have been generated from analysis and aggregation of the CCPKnow data (“Pregnancy-related Beliefs and Concerns of Inflammatory Bowel Disease Patients are Modified After Accessing e-Health Portal” (Sutton et al., in press), “Innovative Online Educational Portal Improves Disease-Specific Reproductive Knowledge Among Patients With Inflammatory Bowel Disease” (Sutton et al., 2018) however this is an extensive dataset that could be analyzed or combined with others’ datasets for further insights. Keywords: Inflammatory bowel disease, Pregnancy, Maternal and child health, Sexual and reproductive health, Concerns, CCPKnow, Medications, Beliefs about medications, BMQ, Medication adherence, MARShttp://www.sciencedirect.com/science/article/pii/S2352340918316251 |
| spellingShingle | Reed T. Sutton Kelsey Wierstra Vivian W. Huang Knowledge translation dataset: An e-health intervention for pregnancy in inflammatory bowel disease Data in Brief |
| title | Knowledge translation dataset: An e-health intervention for pregnancy in inflammatory bowel disease |
| title_full | Knowledge translation dataset: An e-health intervention for pregnancy in inflammatory bowel disease |
| title_fullStr | Knowledge translation dataset: An e-health intervention for pregnancy in inflammatory bowel disease |
| title_full_unstemmed | Knowledge translation dataset: An e-health intervention for pregnancy in inflammatory bowel disease |
| title_short | Knowledge translation dataset: An e-health intervention for pregnancy in inflammatory bowel disease |
| title_sort | knowledge translation dataset an e health intervention for pregnancy in inflammatory bowel disease |
| url | http://www.sciencedirect.com/science/article/pii/S2352340918316251 |
| work_keys_str_mv | AT reedtsutton knowledgetranslationdatasetanehealthinterventionforpregnancyininflammatoryboweldisease AT kelseywierstra knowledgetranslationdatasetanehealthinterventionforpregnancyininflammatoryboweldisease AT vivianwhuang knowledgetranslationdatasetanehealthinterventionforpregnancyininflammatoryboweldisease |