Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study

Abstract Background There is consensus that services supporting people with complex emotional needs are part of a mental health care system in which change is needed. To date, service users’ views and co-production initiatives have had little impact on the development of interventions and care. This...

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Main Authors: Kylee Trevillion, Ruth Stuart, Josephine Ocloo, Eva Broeckelmann, Stephen Jeffreys, Tamar Jeynes, Dawn Allen, Jessica Russell, Jo Billings, Mike J. Crawford, Oliver Dale, Rex Haigh, Paul Moran, Shirley McNicholas, Vicky Nicholls, Una Foye, Alan Simpson, Brynmor Lloyd-Evans, Sonia Johnson, Sian Oram
Format: Article
Language:English
Published: BMC 2022-01-01
Series:BMC Psychiatry
Subjects:
Online Access:https://doi.org/10.1186/s12888-021-03605-4
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author Kylee Trevillion
Ruth Stuart
Josephine Ocloo
Eva Broeckelmann
Stephen Jeffreys
Tamar Jeynes
Dawn Allen
Jessica Russell
Jo Billings
Mike J. Crawford
Oliver Dale
Rex Haigh
Paul Moran
Shirley McNicholas
Vicky Nicholls
Una Foye
Alan Simpson
Brynmor Lloyd-Evans
Sonia Johnson
Sian Oram
author_facet Kylee Trevillion
Ruth Stuart
Josephine Ocloo
Eva Broeckelmann
Stephen Jeffreys
Tamar Jeynes
Dawn Allen
Jessica Russell
Jo Billings
Mike J. Crawford
Oliver Dale
Rex Haigh
Paul Moran
Shirley McNicholas
Vicky Nicholls
Una Foye
Alan Simpson
Brynmor Lloyd-Evans
Sonia Johnson
Sian Oram
author_sort Kylee Trevillion
collection DOAJ
description Abstract Background There is consensus that services supporting people with complex emotional needs are part of a mental health care system in which change is needed. To date, service users’ views and co-production initiatives have had little impact on the development of interventions and care. This needs to change, and our paper evidences the experiences and perspectives of a diverse range of people on how community services can best address the needs of people with complex emotional needs. Methods A co-produced qualitative research study. Lived experience researchers led data collection and analysis. Individual interviews were conducted with 30 people across England who had a diverse range of experiences and perspectives of using community services for complex emotional needs. Participants were asked about their experiences of using community services for their mental health, and views on how community services can best address their needs. Thematic analysis was used to analyse the data. Results Participants reported some experiences of good practice but also of experiences of severely stigmatising interventions, a lack of effective support and service fragmentation. Relational Practice was identified as the central overarching theme and describes how community services can best support people with complex emotional needs. This approach involves care delivered in a non-stigmatising, individualised and compassionate way and care that is trauma-informed. It involves care that is planned collaboratively with service users to ensure their multiple needs are addressed in a flexible, holistic and consistent way which accounts for the long-term and fluctuating nature of their needs. Conclusions Relational practice approaches have potential to facilitate better community care for people with complex emotional needs. Research and service development are needed to examine how best to implement such approaches across the mental health service system. This work must be co-produced with people with relevant lived experience, their carers and the professionals who support them.
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spelling doaj.art-180e962220f243bb803a47c04053c5e02022-12-21T23:58:42ZengBMCBMC Psychiatry1471-244X2022-01-0122111810.1186/s12888-021-03605-4Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview studyKylee Trevillion0Ruth Stuart1Josephine Ocloo2Eva Broeckelmann3Stephen Jeffreys4Tamar Jeynes5Dawn Allen6Jessica Russell7Jo Billings8Mike J. Crawford9Oliver Dale10Rex Haigh11Paul Moran12Shirley McNicholas13Vicky Nicholls14Una Foye15Alan Simpson16Brynmor Lloyd-Evans17Sonia Johnson18Sian Oram19Health Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonHealth Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonImplementation Science, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonNIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonNIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonNIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonNIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonNIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonDivision of Psychiatry, NIHR Mental Health Policy Research Unit, University College LondonDivision of Psychiatry, Imperial College LondonWest London Mental Health TrustBerkshire Healthcare NHS Foundation TrustBristol Medical School, University of BristolCamden and Islington NHS Foundation TrustDivision of Psychiatry, NIHR Mental Health Policy Research Unit, University College LondonHealth Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonHealth Service and Population Research, Institute of Psychiatry, Psychology & Neuroscience, and Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King’s College LondonDivision of Psychiatry, NIHR Mental Health Policy Research Unit, University College LondonDivision of Psychiatry, NIHR Mental Health Policy Research Unit, University College LondonHealth Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King’s College LondonAbstract Background There is consensus that services supporting people with complex emotional needs are part of a mental health care system in which change is needed. To date, service users’ views and co-production initiatives have had little impact on the development of interventions and care. This needs to change, and our paper evidences the experiences and perspectives of a diverse range of people on how community services can best address the needs of people with complex emotional needs. Methods A co-produced qualitative research study. Lived experience researchers led data collection and analysis. Individual interviews were conducted with 30 people across England who had a diverse range of experiences and perspectives of using community services for complex emotional needs. Participants were asked about their experiences of using community services for their mental health, and views on how community services can best address their needs. Thematic analysis was used to analyse the data. Results Participants reported some experiences of good practice but also of experiences of severely stigmatising interventions, a lack of effective support and service fragmentation. Relational Practice was identified as the central overarching theme and describes how community services can best support people with complex emotional needs. This approach involves care delivered in a non-stigmatising, individualised and compassionate way and care that is trauma-informed. It involves care that is planned collaboratively with service users to ensure their multiple needs are addressed in a flexible, holistic and consistent way which accounts for the long-term and fluctuating nature of their needs. Conclusions Relational practice approaches have potential to facilitate better community care for people with complex emotional needs. Research and service development are needed to examine how best to implement such approaches across the mental health service system. This work must be co-produced with people with relevant lived experience, their carers and the professionals who support them.https://doi.org/10.1186/s12888-021-03605-4Qualitative researchPersonality disordersCommunity mental health servicesCo-production
spellingShingle Kylee Trevillion
Ruth Stuart
Josephine Ocloo
Eva Broeckelmann
Stephen Jeffreys
Tamar Jeynes
Dawn Allen
Jessica Russell
Jo Billings
Mike J. Crawford
Oliver Dale
Rex Haigh
Paul Moran
Shirley McNicholas
Vicky Nicholls
Una Foye
Alan Simpson
Brynmor Lloyd-Evans
Sonia Johnson
Sian Oram
Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study
BMC Psychiatry
Qualitative research
Personality disorders
Community mental health services
Co-production
title Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study
title_full Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study
title_fullStr Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study
title_full_unstemmed Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study
title_short Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study
title_sort service user perspectives of community mental health services for people with complex emotional needs a co produced qualitative interview study
topic Qualitative research
Personality disorders
Community mental health services
Co-production
url https://doi.org/10.1186/s12888-021-03605-4
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