Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres
BACKGROUND: About half of all children with rheumatic diseases need continuous medical care during adolescence and adulthood. A good transition into adult rheumatology is essential. Guidelines for a structured transition process have therefore been recommended by the European League Against Rheuma...
| Main Authors: | , , , , , , , , , , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
SMW supporting association (Trägerverein Swiss Medical Weekly SMW)
2021-11-01
|
| Series: | Swiss Medical Weekly |
| Online Access: | https://www.smw.ch/index.php/smw/article/view/3104 |
| _version_ | 1797974883248898048 |
|---|---|
| author | Lut Berben Nora Sigg Mary Louise Daly Stefan Bachmann Walter Baer Gérald Berthet Isabel Bolt Diana Dan Susanna Enderlin Steiger Johannes Fröhlich Paul Hasler Michaël Hofer Christian Huemer Daniela Kaiser Natalie Marcoli Seraina Palmer Sarott Yella Rottländer Gernot Schmid Christa Soennichsen Laura Strahm Furler Federica Vanoni Lukas Wildi Thomas Daikeler Andreas Woerner |
| author_facet | Lut Berben Nora Sigg Mary Louise Daly Stefan Bachmann Walter Baer Gérald Berthet Isabel Bolt Diana Dan Susanna Enderlin Steiger Johannes Fröhlich Paul Hasler Michaël Hofer Christian Huemer Daniela Kaiser Natalie Marcoli Seraina Palmer Sarott Yella Rottländer Gernot Schmid Christa Soennichsen Laura Strahm Furler Federica Vanoni Lukas Wildi Thomas Daikeler Andreas Woerner |
| author_sort | Lut Berben |
| collection | DOAJ |
| description |
BACKGROUND: About half of all children with rheumatic diseases need continuous medical care during adolescence and adulthood. A good transition into adult rheumatology is essential. Guidelines for a structured transition process have therefore been recommended by the European League Against Rheumatism (EULAR) and the Paediatric Rheumatology European Society (PReS). However, implementation of these guidelines requires resources often not available in a busy clinical practice.
AIMS: To assess the current practice of transitional care in Switzerland in relation to EULAR/PReS recommendations and to describe gaps and challenges in following the recommendations.
METHODS: All paediatric Swiss rheumatology centres and their collaborating adult centres offering a transition service to adult care were invited to participate in this survey. The responsible paediatric and adult rheumatologist of each centre was interviewed separately using a structured manual addressing the EULAR/PReS transitional care recommendations.
RESULTS: All 10 paediatric and 9 out of 10 adult rheumatologists agreed to participate. Centres varied in the number of patients in transition, from n = 0 to n = 111. The following EULAR/PReS recommendations were implemented and applied in most centres: continuity in the healthcare team, consultations focused on adolescents and young adults, joint consultations between the paediatric and adult rheumatologist, and access to the EULAR website. Only rarely did a centre have a written transition policy or evaluate their transitional care programme. The vast majority of the interviewees had no specific training in adolescent health. Most centres rated their transitional care performance as very good.
CONCLUSION: Transition in Switzerland is not uniform and consequently the implementation of the EULAR/PReS recommendations is variable in Swiss rheumatology centres. Skills of healthcare professionals, continuity between clinical settings, size of the centres, and hospital focus on the needs of adolescents and young adults may represent key predictors of successful transitional care for patients with chronic rheumatic diseases. Future studies should examine these variables.
|
| first_indexed | 2024-04-11T04:26:46Z |
| format | Article |
| id | doaj.art-185928c463844feb9e856ab199baa87c |
| institution | Directory Open Access Journal |
| issn | 1424-3997 |
| language | English |
| last_indexed | 2024-04-11T04:26:46Z |
| publishDate | 2021-11-01 |
| publisher | SMW supporting association (Trägerverein Swiss Medical Weekly SMW) |
| record_format | Article |
| series | Swiss Medical Weekly |
| spelling | doaj.art-185928c463844feb9e856ab199baa87c2022-12-29T16:01:04ZengSMW supporting association (Trägerverein Swiss Medical Weekly SMW)Swiss Medical Weekly1424-39972021-11-01151454610.4414/SMW.2021.w30046Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centresLut BerbenNora SiggMary Louise DalyStefan BachmannWalter BaerGérald BerthetIsabel BoltDiana DanSusanna Enderlin SteigerJohannes FröhlichPaul HaslerMichaël HoferChristian HuemerDaniela KaiserNatalie MarcoliSeraina Palmer SarottYella RottländerGernot SchmidChrista SoennichsenLaura Strahm FurlerFederica VanoniLukas WildiThomas DaikelerAndreas Woerner BACKGROUND: About half of all children with rheumatic diseases need continuous medical care during adolescence and adulthood. A good transition into adult rheumatology is essential. Guidelines for a structured transition process have therefore been recommended by the European League Against Rheumatism (EULAR) and the Paediatric Rheumatology European Society (PReS). However, implementation of these guidelines requires resources often not available in a busy clinical practice. AIMS: To assess the current practice of transitional care in Switzerland in relation to EULAR/PReS recommendations and to describe gaps and challenges in following the recommendations. METHODS: All paediatric Swiss rheumatology centres and their collaborating adult centres offering a transition service to adult care were invited to participate in this survey. The responsible paediatric and adult rheumatologist of each centre was interviewed separately using a structured manual addressing the EULAR/PReS transitional care recommendations. RESULTS: All 10 paediatric and 9 out of 10 adult rheumatologists agreed to participate. Centres varied in the number of patients in transition, from n = 0 to n = 111. The following EULAR/PReS recommendations were implemented and applied in most centres: continuity in the healthcare team, consultations focused on adolescents and young adults, joint consultations between the paediatric and adult rheumatologist, and access to the EULAR website. Only rarely did a centre have a written transition policy or evaluate their transitional care programme. The vast majority of the interviewees had no specific training in adolescent health. Most centres rated their transitional care performance as very good. CONCLUSION: Transition in Switzerland is not uniform and consequently the implementation of the EULAR/PReS recommendations is variable in Swiss rheumatology centres. Skills of healthcare professionals, continuity between clinical settings, size of the centres, and hospital focus on the needs of adolescents and young adults may represent key predictors of successful transitional care for patients with chronic rheumatic diseases. Future studies should examine these variables. https://www.smw.ch/index.php/smw/article/view/3104 |
| spellingShingle | Lut Berben Nora Sigg Mary Louise Daly Stefan Bachmann Walter Baer Gérald Berthet Isabel Bolt Diana Dan Susanna Enderlin Steiger Johannes Fröhlich Paul Hasler Michaël Hofer Christian Huemer Daniela Kaiser Natalie Marcoli Seraina Palmer Sarott Yella Rottländer Gernot Schmid Christa Soennichsen Laura Strahm Furler Federica Vanoni Lukas Wildi Thomas Daikeler Andreas Woerner Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres Swiss Medical Weekly |
| title | Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres |
| title_full | Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres |
| title_fullStr | Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres |
| title_full_unstemmed | Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres |
| title_short | Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres |
| title_sort | current practice of transitional care for adolescents and young adults in swiss paediatric and adult rheumatology centres |
| url | https://www.smw.ch/index.php/smw/article/view/3104 |
| work_keys_str_mv | AT lutberben currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT norasigg currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT marylouisedaly currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT stefanbachmann currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT walterbaer currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT geraldberthet currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT isabelbolt currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT dianadan currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT susannaenderlinsteiger currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT johannesfrohlich currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT paulhasler currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT michaelhofer currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT christianhuemer currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT danielakaiser currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT nataliemarcoli currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT serainapalmersarott currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT yellarottlander currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT gernotschmid currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT christasoennichsen currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT laurastrahmfurler currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT federicavanoni currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT lukaswildi currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT thomasdaikeler currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres AT andreaswoerner currentpracticeoftransitionalcareforadolescentsandyoungadultsinswisspaediatricandadultrheumatologycentres |