The Registry of Senior Australians: Informing Aged Care Policy Reforms.
Objectives To: (1) outline the research produced using linked data from the Registry of Senior Australians (ROSA) which informed the recommendations from Australia’s Royal Commission into Aged Care Quality and Safety (delivered February 2021); (2) describe the Australian Government Aged Care Roadmap...
| Main Authors: | , , , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Swansea University
2022-08-01
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| Series: | International Journal of Population Data Science |
| Subjects: | |
| Online Access: | https://ijpds.org/article/view/1862 |
| _version_ | 1797427138206367744 |
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| author | Gillian Caughey Olivia Ryan Maria Crotty Craig Whitehead Susan Hillier Keith Evans Marilyn Von Thien Cassie Mason Chris Radbone Jane Mussared Julie Ratcliffe Sally Tideman Anna Barker Anna Sheppeard Caroline Miller Odette Pearson Megan Corlis Allen Candy Steve Wesselingh Maria Inacio |
| author_facet | Gillian Caughey Olivia Ryan Maria Crotty Craig Whitehead Susan Hillier Keith Evans Marilyn Von Thien Cassie Mason Chris Radbone Jane Mussared Julie Ratcliffe Sally Tideman Anna Barker Anna Sheppeard Caroline Miller Odette Pearson Megan Corlis Allen Candy Steve Wesselingh Maria Inacio |
| author_sort | Gillian Caughey |
| collection | DOAJ |
| description | Objectives
To: (1) outline the research produced using linked data from the Registry of Senior Australians (ROSA) which informed the recommendations from Australia’s Royal Commission into Aged Care Quality and Safety (delivered February 2021); (2) describe the Australian Government Aged Care Roadmap Reforms (announced May 2021) resulting from the recommendations.
Approach
ROSA was established in 2017 and is led by a partnership of scientists, clinicians, aged care providers and consumer advocates from nine organisations seeking to improve the lives of Australians in aged care. ROSA is a Clinical Quality Registry comprised of linked national and cross-jurisdictional aged and health care data and includes a national historical de-identified cohort (3.5 million individuals, 2002-2020) and a prospectively enrolled cohort in the state of South Australia (26,600 individuals, 2018-current). This is a summary of ROSA’s high-quality evidence used by the Royal Commission and translation of this evidence into policy by leveraging existing data infrastructure.
Results
Between 2019-2020 the ROSA team led the delivery of four in-depth reports for the Royal Commission, contributed data and expertise to an additional four published Commission reports. Examples of ROSA outputs informing the Commissions’ recommendations included: evidence of national increased psychotropic medication use following entry to residential aged care, evidence of higher risk of mortality and entry to permanent care while waiting for home care packages, development of quality indicators to monitor quality and safety of care nationally, and to facilitate international comparisons and benchmarking. Examples of recommendations included in the Australian Government Aged Care Roadmap: release of substantial funding to increase the availability of home care packages, public reporting system for quality and safety monitoring and several changes to medication management.
Conclusion
Registries are key resources for high quality real-world evidence generation needed to inform national investigations, ultimately leading to significant sector reform. The ROSA experience highlights that cross-sectoral data linkages, together with technical expertise, informed by clinicians and consumers, are invaluable resources for system reform and policy generation.
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| first_indexed | 2024-03-09T08:39:36Z |
| format | Article |
| id | doaj.art-186461258bfc4c2592cbf29c630877af |
| institution | Directory Open Access Journal |
| issn | 2399-4908 |
| language | English |
| last_indexed | 2024-03-09T08:39:36Z |
| publishDate | 2022-08-01 |
| publisher | Swansea University |
| record_format | Article |
| series | International Journal of Population Data Science |
| spelling | doaj.art-186461258bfc4c2592cbf29c630877af2023-12-02T17:02:25ZengSwansea UniversityInternational Journal of Population Data Science2399-49082022-08-017310.23889/ijpds.v7i3.1862The Registry of Senior Australians: Informing Aged Care Policy Reforms.Gillian Caughey0Olivia Ryan1Maria Crotty2Craig Whitehead3Susan Hillier4Keith Evans5Marilyn Von Thien6Cassie Mason7Chris Radbone8Jane Mussared9Julie Ratcliffe10Sally Tideman11Anna Barker12Anna Sheppeard13Caroline Miller14Odette Pearson15Megan Corlis16Allen Candy17Steve Wesselingh18Maria Inacio19Registry of Senior Australians, South Australian Health and Medical Research InstituteRegistry of Senior Australians, South Australian Health and Medical Research InstituteFlinders UniversityFlinders UniversityUniversity of South AustraliaRegistry of Senior Australians, South Australian Health and Medical Research InstituteConsumer RepresentativeSouth Australian Department of HealthSA/NT Data LinkCouncil of the Ageing, SAFlinders UniversityECH IncSilver Chain Aged CareConsumer RepresentativeSouth Australian Health and Medical Research InstituteSouth Australian Health and Medical Research InstituteUniversity of South AustraliaLife CareSouth Australian Health and Medical Research InstituteRegistry of Senior Australians, South Australian Health and Medical Research InstituteObjectives To: (1) outline the research produced using linked data from the Registry of Senior Australians (ROSA) which informed the recommendations from Australia’s Royal Commission into Aged Care Quality and Safety (delivered February 2021); (2) describe the Australian Government Aged Care Roadmap Reforms (announced May 2021) resulting from the recommendations. Approach ROSA was established in 2017 and is led by a partnership of scientists, clinicians, aged care providers and consumer advocates from nine organisations seeking to improve the lives of Australians in aged care. ROSA is a Clinical Quality Registry comprised of linked national and cross-jurisdictional aged and health care data and includes a national historical de-identified cohort (3.5 million individuals, 2002-2020) and a prospectively enrolled cohort in the state of South Australia (26,600 individuals, 2018-current). This is a summary of ROSA’s high-quality evidence used by the Royal Commission and translation of this evidence into policy by leveraging existing data infrastructure. Results Between 2019-2020 the ROSA team led the delivery of four in-depth reports for the Royal Commission, contributed data and expertise to an additional four published Commission reports. Examples of ROSA outputs informing the Commissions’ recommendations included: evidence of national increased psychotropic medication use following entry to residential aged care, evidence of higher risk of mortality and entry to permanent care while waiting for home care packages, development of quality indicators to monitor quality and safety of care nationally, and to facilitate international comparisons and benchmarking. Examples of recommendations included in the Australian Government Aged Care Roadmap: release of substantial funding to increase the availability of home care packages, public reporting system for quality and safety monitoring and several changes to medication management. Conclusion Registries are key resources for high quality real-world evidence generation needed to inform national investigations, ultimately leading to significant sector reform. The ROSA experience highlights that cross-sectoral data linkages, together with technical expertise, informed by clinicians and consumers, are invaluable resources for system reform and policy generation. https://ijpds.org/article/view/1862Aged careClinical Quality RegistryCross-jurisdictional data linkageAged care policy |
| spellingShingle | Gillian Caughey Olivia Ryan Maria Crotty Craig Whitehead Susan Hillier Keith Evans Marilyn Von Thien Cassie Mason Chris Radbone Jane Mussared Julie Ratcliffe Sally Tideman Anna Barker Anna Sheppeard Caroline Miller Odette Pearson Megan Corlis Allen Candy Steve Wesselingh Maria Inacio The Registry of Senior Australians: Informing Aged Care Policy Reforms. International Journal of Population Data Science Aged care Clinical Quality Registry Cross-jurisdictional data linkage Aged care policy |
| title | The Registry of Senior Australians: Informing Aged Care Policy Reforms. |
| title_full | The Registry of Senior Australians: Informing Aged Care Policy Reforms. |
| title_fullStr | The Registry of Senior Australians: Informing Aged Care Policy Reforms. |
| title_full_unstemmed | The Registry of Senior Australians: Informing Aged Care Policy Reforms. |
| title_short | The Registry of Senior Australians: Informing Aged Care Policy Reforms. |
| title_sort | registry of senior australians informing aged care policy reforms |
| topic | Aged care Clinical Quality Registry Cross-jurisdictional data linkage Aged care policy |
| url | https://ijpds.org/article/view/1862 |
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