Development and Validation of a Cross-Cultural Heart Failure-Specific Quality of Life Questionnaire

Objectives: Heart failure (HF) is a common clinical syndrome with an enormous impact on prognosis and lifestyle. Accordingly, rehabilitation measures need to be patient-specific and consider various sociocultural factors so as to improve the patient’s quality of life (QOL). This study aimed to devel...

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Main Authors: Nor F. Mohamed, Siti R. Ghazali, Nor A. Yaacob, Aizai A. A. Rahim, Oteh Maskon
Format: Article
Language:English
Published: Sultan Qaboos University 2019-03-01
Series:Sultan Qaboos University Medical Journal
Online Access:https://journals.squ.edu.om/index.php/squmj/article/view/2992
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author Nor F. Mohamed
Siti R. Ghazali
Nor A. Yaacob
Aizai A. A. Rahim
Oteh Maskon
author_facet Nor F. Mohamed
Siti R. Ghazali
Nor A. Yaacob
Aizai A. A. Rahim
Oteh Maskon
author_sort Nor F. Mohamed
collection DOAJ
description Objectives: Heart failure (HF) is a common clinical syndrome with an enormous impact on prognosis and lifestyle. Accordingly, rehabilitation measures need to be patient-specific and consider various sociocultural factors so as to improve the patient’s quality of life (QOL). This study aimed to develop and validate a HF-specific QOL (HFQOL) questionnaire within a multicultural setting. Methods: This study took place at the National Heart Institute and Universiti Kebangsaan Malaysia Medical Centre, Kuala Lumpur, Malaysia, between March 2013 and March 2014. A self-administered 75-item HFQOL questionnaire was designed and administrated to 164 multi-ethnic Malaysian HF patients. Exploratory factor analysis was performed to assess the instrument’s construct validity. Cronbach’s alpha coefficients were used to determine internal consistency. Results: A total of 33 out of 75 items were retained in the final tool. The HFQOL questionnaire had three common factors—psychological, physical-social and spiritual wellbeing—resulting in a cumulative percentage of total variance of 44.3%. The factor loading ranges were 0.450–0.718 for psychological wellbeing (12 items), 0.394–0.740 for physical-social wellbeing (14 items) and 0.449–0.727 for spiritual wellbeing (seven items). The overall Cronbach’s alpha coefficient of the questionnaire was 0.82, with coefficients of 0.86, 0.88 and 0.79 for the psychological, physical-social and spiritual wellbeing subdomains, respectively. Conclusion: The HFQOL questionnaire was found to be a valid and reliable measure of QOL among Malaysian HF patients from various ethnic groups. Such tools may facilitate cardiac care management planning among multi-ethnic patients with HF. Keywords: Heart Failure; Quality of Life; Culturally Competent Care; Ethnic Groups; Questionnaire Design; Reliability and Validity; Malaysia.
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spelling doaj.art-19d6a4dd9a8b462ebe2befe5fb4350a72022-12-22T03:29:27ZengSultan Qaboos UniversitySultan Qaboos University Medical Journal2075-051X2075-05282019-03-0118449450010.18295/squmj.2018.18.04.0112531Development and Validation of a Cross-Cultural Heart Failure-Specific Quality of Life QuestionnaireNor F. Mohamed0Siti R. Ghazali1Nor A. Yaacob2Aizai A. A. Rahim3Oteh Maskon4Department of Psychology & Counselling, Faculty of Human Development, Sultan Idris Education University, Tanjung Malim, MalaysiaDepartment of Psychological Medicine, University Malaysia Sarawak, Sarawak, MalaysiaDepartment of Community Medicine, Universiti Sains Malaysia, Kelantan, MalaysiaDepartment of Cardiology, Institut Jantung Negara, Kuala Lumpur, MalaysiaDepartment of Cardiology, Universiti Kebangsaan Malaysia Medical Centre, Kuala Lumpur, MalaysiaObjectives: Heart failure (HF) is a common clinical syndrome with an enormous impact on prognosis and lifestyle. Accordingly, rehabilitation measures need to be patient-specific and consider various sociocultural factors so as to improve the patient’s quality of life (QOL). This study aimed to develop and validate a HF-specific QOL (HFQOL) questionnaire within a multicultural setting. Methods: This study took place at the National Heart Institute and Universiti Kebangsaan Malaysia Medical Centre, Kuala Lumpur, Malaysia, between March 2013 and March 2014. A self-administered 75-item HFQOL questionnaire was designed and administrated to 164 multi-ethnic Malaysian HF patients. Exploratory factor analysis was performed to assess the instrument’s construct validity. Cronbach’s alpha coefficients were used to determine internal consistency. Results: A total of 33 out of 75 items were retained in the final tool. The HFQOL questionnaire had three common factors—psychological, physical-social and spiritual wellbeing—resulting in a cumulative percentage of total variance of 44.3%. The factor loading ranges were 0.450–0.718 for psychological wellbeing (12 items), 0.394–0.740 for physical-social wellbeing (14 items) and 0.449–0.727 for spiritual wellbeing (seven items). The overall Cronbach’s alpha coefficient of the questionnaire was 0.82, with coefficients of 0.86, 0.88 and 0.79 for the psychological, physical-social and spiritual wellbeing subdomains, respectively. Conclusion: The HFQOL questionnaire was found to be a valid and reliable measure of QOL among Malaysian HF patients from various ethnic groups. Such tools may facilitate cardiac care management planning among multi-ethnic patients with HF. Keywords: Heart Failure; Quality of Life; Culturally Competent Care; Ethnic Groups; Questionnaire Design; Reliability and Validity; Malaysia.https://journals.squ.edu.om/index.php/squmj/article/view/2992
spellingShingle Nor F. Mohamed
Siti R. Ghazali
Nor A. Yaacob
Aizai A. A. Rahim
Oteh Maskon
Development and Validation of a Cross-Cultural Heart Failure-Specific Quality of Life Questionnaire
Sultan Qaboos University Medical Journal
title Development and Validation of a Cross-Cultural Heart Failure-Specific Quality of Life Questionnaire
title_full Development and Validation of a Cross-Cultural Heart Failure-Specific Quality of Life Questionnaire
title_fullStr Development and Validation of a Cross-Cultural Heart Failure-Specific Quality of Life Questionnaire
title_full_unstemmed Development and Validation of a Cross-Cultural Heart Failure-Specific Quality of Life Questionnaire
title_short Development and Validation of a Cross-Cultural Heart Failure-Specific Quality of Life Questionnaire
title_sort development and validation of a cross cultural heart failure specific quality of life questionnaire
url https://journals.squ.edu.om/index.php/squmj/article/view/2992
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