COMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre study

Abstract Background A casemix classification based on patients’ needs can serve to better describe the patient group in palliative care and thus help to develop adequate future care structures and enable national benchmarking and quality control. However, in Germany, there is no such an evidence-bas...

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Main Authors: Farina Hodiamont, Caroline Schatz, Daniela Gesell, Reiner Leidl, Anne-Laure Boulesteix, Friedemann Nauck, Julia Wikert, Maximiliane Jansky, Steven Kranz, Claudia Bausewein
Format: Article
Language:English
Published: BMC 2022-02-01
Series:BMC Palliative Care
Subjects:
Online Access:https://doi.org/10.1186/s12904-021-00897-x
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author Farina Hodiamont
Caroline Schatz
Daniela Gesell
Reiner Leidl
Anne-Laure Boulesteix
Friedemann Nauck
Julia Wikert
Maximiliane Jansky
Steven Kranz
Claudia Bausewein
author_facet Farina Hodiamont
Caroline Schatz
Daniela Gesell
Reiner Leidl
Anne-Laure Boulesteix
Friedemann Nauck
Julia Wikert
Maximiliane Jansky
Steven Kranz
Claudia Bausewein
author_sort Farina Hodiamont
collection DOAJ
description Abstract Background A casemix classification based on patients’ needs can serve to better describe the patient group in palliative care and thus help to develop adequate future care structures and enable national benchmarking and quality control. However, in Germany, there is no such an evidence-based system to differentiate the complexity of patients’ needs in palliative care. Therefore, the study aims to develop a patient-oriented, nationally applicable complexity and casemix classification for adult palliative care patients in Germany. Methods COMPANION is a mixed-methods study with data derived from three subprojects. Subproject 1: Prospective, cross-sectional multi-centre study collecting data on patients’ needs which reflect the complexity of the respective patient situation, as well as data on resources that are required to meet these needs in specialist palliative care units, palliative care advisory teams, and specialist palliative home care. Subproject 2: Qualitative study including the development of a literature-based preliminary list of characteristics, expert interviews, and a focus group to develop a taxonomy for specialist palliative care models. Subproject 3: Multi-centre costing study based on resource data from subproject 1 and data of study centres. Data and results from the three subprojects will inform each other and form the basis for the development of the casemix classification. Ultimately, the casemix classification will be developed by applying Classification and Regression Tree (CART) analyses using patient and complexity data from subproject 1 and patient-related cost data from subproject 3. Discussion This is the first multi-centre costing study that integrates the structure and process characteristics of different palliative care settings in Germany with individual patient care. The mixed methods design and variety of included data allow for the development of a casemix classification that reflect on the complexity of the research subject. The consecutive inclusion of all patients cared for in participating study centres within the time of data collection allows for a comprehensive description of palliative care patients and their needs. A limiting factor is that data will be collected at least partly during the COVID-19 pandemic and potential impact of the pandemic on health care and the research topic cannot be excluded. Trial registration German Register for Clinical Studies trial registration number: DRKS00020517 .
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spelling doaj.art-19f3249002a84fba95dc552d426094222022-12-21T20:22:01ZengBMCBMC Palliative Care1472-684X2022-02-012111910.1186/s12904-021-00897-xCOMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre studyFarina Hodiamont0Caroline Schatz1Daniela Gesell2Reiner Leidl3Anne-Laure Boulesteix4Friedemann Nauck5Julia Wikert6Maximiliane Jansky7Steven Kranz8Claudia Bausewein9Department of Palliative Medicine, LMU University HospitalHelmholtz Zentrum München, Institute of Health Economics and Health Care ManagementDepartment of Palliative Medicine, LMU University HospitalHelmholtz Zentrum München, Institute of Health Economics and Health Care ManagementLudwig-Maximilians-Universität München, Institute for Medical Information Processing, Biometry and Epidemiology (IBE)Clinic for Palliative Medicine, University Medical CenterDepartment of Palliative Medicine, LMU University HospitalClinic for Palliative Medicine, University Medical CenterGerman Association for Palliative MedicineDepartment of Palliative Medicine, LMU University HospitalAbstract Background A casemix classification based on patients’ needs can serve to better describe the patient group in palliative care and thus help to develop adequate future care structures and enable national benchmarking and quality control. However, in Germany, there is no such an evidence-based system to differentiate the complexity of patients’ needs in palliative care. Therefore, the study aims to develop a patient-oriented, nationally applicable complexity and casemix classification for adult palliative care patients in Germany. Methods COMPANION is a mixed-methods study with data derived from three subprojects. Subproject 1: Prospective, cross-sectional multi-centre study collecting data on patients’ needs which reflect the complexity of the respective patient situation, as well as data on resources that are required to meet these needs in specialist palliative care units, palliative care advisory teams, and specialist palliative home care. Subproject 2: Qualitative study including the development of a literature-based preliminary list of characteristics, expert interviews, and a focus group to develop a taxonomy for specialist palliative care models. Subproject 3: Multi-centre costing study based on resource data from subproject 1 and data of study centres. Data and results from the three subprojects will inform each other and form the basis for the development of the casemix classification. Ultimately, the casemix classification will be developed by applying Classification and Regression Tree (CART) analyses using patient and complexity data from subproject 1 and patient-related cost data from subproject 3. Discussion This is the first multi-centre costing study that integrates the structure and process characteristics of different palliative care settings in Germany with individual patient care. The mixed methods design and variety of included data allow for the development of a casemix classification that reflect on the complexity of the research subject. The consecutive inclusion of all patients cared for in participating study centres within the time of data collection allows for a comprehensive description of palliative care patients and their needs. A limiting factor is that data will be collected at least partly during the COVID-19 pandemic and potential impact of the pandemic on health care and the research topic cannot be excluded. Trial registration German Register for Clinical Studies trial registration number: DRKS00020517 .https://doi.org/10.1186/s12904-021-00897-xPalliative careEnd of life careCasemix classificationCost calculationCART analysis
spellingShingle Farina Hodiamont
Caroline Schatz
Daniela Gesell
Reiner Leidl
Anne-Laure Boulesteix
Friedemann Nauck
Julia Wikert
Maximiliane Jansky
Steven Kranz
Claudia Bausewein
COMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre study
BMC Palliative Care
Palliative care
End of life care
Casemix classification
Cost calculation
CART analysis
title COMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre study
title_full COMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre study
title_fullStr COMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre study
title_full_unstemmed COMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre study
title_short COMPANION: development of a patient-centred complexity and casemix classification for adult palliative care patients based on needs and resource use – a protocol for a cross-sectional multi-centre study
title_sort companion development of a patient centred complexity and casemix classification for adult palliative care patients based on needs and resource use a protocol for a cross sectional multi centre study
topic Palliative care
End of life care
Casemix classification
Cost calculation
CART analysis
url https://doi.org/10.1186/s12904-021-00897-x
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