Establishment of a renal supportive care program: Experience from a rural community hospital in Taiwan

Renal supportive care (RSC) denotes a care program dedicated for patients with acute, chronic renal failure, and end-stage renal disease (ESRD), aiming to offer maximal symptom relief and optimize patients' quality of life. The uncertainty of prognosis for patients with chronic kidney disease a...

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Main Authors: Chia-Ter Chao, Hung-Bin Tsai, Chih-Yuan Shih, Su-Hsuan Hsu, Yu-Chien Hung, Chun-Fu Lai, Ruey-Hsiuang Ueng, Ding-Cheng Chan, Juey-Jen Hwang, Sheng-Jean Huang
Format: Article
Language:English
Published: Elsevier 2016-07-01
Series:Journal of the Formosan Medical Association
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S0929664615004167
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author Chia-Ter Chao
Hung-Bin Tsai
Chih-Yuan Shih
Su-Hsuan Hsu
Yu-Chien Hung
Chun-Fu Lai
Ruey-Hsiuang Ueng
Ding-Cheng Chan
Juey-Jen Hwang
Sheng-Jean Huang
author_facet Chia-Ter Chao
Hung-Bin Tsai
Chih-Yuan Shih
Su-Hsuan Hsu
Yu-Chien Hung
Chun-Fu Lai
Ruey-Hsiuang Ueng
Ding-Cheng Chan
Juey-Jen Hwang
Sheng-Jean Huang
author_sort Chia-Ter Chao
collection DOAJ
description Renal supportive care (RSC) denotes a care program dedicated for patients with acute, chronic renal failure, and end-stage renal disease (ESRD), aiming to offer maximal symptom relief and optimize patients' quality of life. The uncertainty of prognosis for patients with chronic kidney disease and ESRD, the sociocultural issues inherent to the Taiwanese society, and the void of structured and practical RSC pathway, contributes to the underrecognition and poor utilization of RSC. Taiwanese patients rarely receive information regarding RSC as part of a standardized care and are not commonly offered this option. In National Taiwan University Hospital Jinshan branch, we started a RSC subprogram, supported by the community-based palliative/hospice care main program. We focused on understanding the need and providing the choice of RSC to suitable candidates. A three-step and four-phase protocol was designed and implemented to identify appropriate patients and to enhance the applicability of the RSC. We harnessed family visit and home-based family meeting as a vehicle to understand the patients' preferences, to discover what ESRD patients and their family value most, and to introduce the option of RSC. In the current review, we described our pilot experience of establishing a RSC program in Taiwan, and discuss its potential advantage.
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spelling doaj.art-1a7bea7143cd4ad292bb484a6c66acf92022-12-22T01:31:30ZengElsevierJournal of the Formosan Medical Association0929-66462016-07-01115749050010.1016/j.jfma.2015.12.009Establishment of a renal supportive care program: Experience from a rural community hospital in TaiwanChia-Ter Chao0Hung-Bin Tsai1Chih-Yuan Shih2Su-Hsuan Hsu3Yu-Chien Hung4Chun-Fu Lai5Ruey-Hsiuang Ueng6Ding-Cheng Chan7Juey-Jen Hwang8Sheng-Jean Huang9Department of Medicine, National Taiwan University Hospital Jin-Shan Branch, New Taipei City, TaiwanDepartment of Traumatology, National Taiwan University Hospital, Taipei, TaiwanDepartment of Medicine, National Taiwan University Hospital Jin-Shan Branch, New Taipei City, TaiwanDepartment of Medicine, National Taiwan University Hospital Jin-Shan Branch, New Taipei City, TaiwanDepartment of Medicine, National Taiwan University Hospital Jin-Shan Branch, New Taipei City, TaiwanDivision of Nephrology, Department of Internal Medicine, National Taiwan University Hospital, Taipei, TaiwanDepartment of Nursing, National Taiwan University Hospital Jin-Shan Branch, New Taipei City, TaiwanDepartment of Geriatrics and Gerontology, National Taiwan University Hospital, Taipei, TaiwanDepartment of Medicine, National Taiwan University Hospital Jin-Shan Branch, New Taipei City, TaiwanTaipei City Hospital, Taipei, TaiwanRenal supportive care (RSC) denotes a care program dedicated for patients with acute, chronic renal failure, and end-stage renal disease (ESRD), aiming to offer maximal symptom relief and optimize patients' quality of life. The uncertainty of prognosis for patients with chronic kidney disease and ESRD, the sociocultural issues inherent to the Taiwanese society, and the void of structured and practical RSC pathway, contributes to the underrecognition and poor utilization of RSC. Taiwanese patients rarely receive information regarding RSC as part of a standardized care and are not commonly offered this option. In National Taiwan University Hospital Jinshan branch, we started a RSC subprogram, supported by the community-based palliative/hospice care main program. We focused on understanding the need and providing the choice of RSC to suitable candidates. A three-step and four-phase protocol was designed and implemented to identify appropriate patients and to enhance the applicability of the RSC. We harnessed family visit and home-based family meeting as a vehicle to understand the patients' preferences, to discover what ESRD patients and their family value most, and to introduce the option of RSC. In the current review, we described our pilot experience of establishing a RSC program in Taiwan, and discuss its potential advantage.http://www.sciencedirect.com/science/article/pii/S0929664615004167chronic kidney diseaseend-stage renal diseasehospicepalliative carerenal supportive care
spellingShingle Chia-Ter Chao
Hung-Bin Tsai
Chih-Yuan Shih
Su-Hsuan Hsu
Yu-Chien Hung
Chun-Fu Lai
Ruey-Hsiuang Ueng
Ding-Cheng Chan
Juey-Jen Hwang
Sheng-Jean Huang
Establishment of a renal supportive care program: Experience from a rural community hospital in Taiwan
Journal of the Formosan Medical Association
chronic kidney disease
end-stage renal disease
hospice
palliative care
renal supportive care
title Establishment of a renal supportive care program: Experience from a rural community hospital in Taiwan
title_full Establishment of a renal supportive care program: Experience from a rural community hospital in Taiwan
title_fullStr Establishment of a renal supportive care program: Experience from a rural community hospital in Taiwan
title_full_unstemmed Establishment of a renal supportive care program: Experience from a rural community hospital in Taiwan
title_short Establishment of a renal supportive care program: Experience from a rural community hospital in Taiwan
title_sort establishment of a renal supportive care program experience from a rural community hospital in taiwan
topic chronic kidney disease
end-stage renal disease
hospice
palliative care
renal supportive care
url http://www.sciencedirect.com/science/article/pii/S0929664615004167
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