Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producers
Abstract Background Several guideline organizations produce patient versions of clinical practice guidelines (PVGs) which translate recommendations into simple language. A former study of our working group revealed that few guideline organizations publish their methods used to develop PVGs. Clear de...
| Main Authors: | , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2024-01-01
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| Series: | BMC Health Services Research |
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| Online Access: | https://doi.org/10.1186/s12913-023-10524-5 |
| _version_ | 1827377430256418816 |
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| author | Nora Meyer Julia Hauprich Jessica Breuing Irma Hellbrecht Sarah Wahlen Nadja Könsgen Stefanie Bühn Monika Becker Susanne Blödt Günther Carl Markus Follmann Stefanie Frenz Thomas Langer Monika Nothacker Corinna Schaefer Dawid Pieper |
| author_facet | Nora Meyer Julia Hauprich Jessica Breuing Irma Hellbrecht Sarah Wahlen Nadja Könsgen Stefanie Bühn Monika Becker Susanne Blödt Günther Carl Markus Follmann Stefanie Frenz Thomas Langer Monika Nothacker Corinna Schaefer Dawid Pieper |
| author_sort | Nora Meyer |
| collection | DOAJ |
| description | Abstract Background Several guideline organizations produce patient versions of clinical practice guidelines (PVGs) which translate recommendations into simple language. A former study of our working group revealed that few guideline organizations publish their methods used to develop PVGs. Clear definitions of PVGs do not prevail and their purposes often remain unclear. We aimed to explore experts’ perspectives on developing, disseminating and implementing PVGs to discuss and incorporate these experiences when consenting on methodological guidance and further improving PVGs. Methods We conducted 17 semi-structured telephone interviews with international experts working with PVGs from September 2021 through January 2022. We conducted the interviews in English or German, they were recorded and transcribed verbatim. We utilized Mayring’s qualitative content analysis with MAXQDA software to analyze the data. Results In two interviews two participants were interviewed at the same time. This resulted in a total of 19 participants from 16 different organizations and eight different countries participated. Most were female (16/19) and their experience in working with PVGs ranged from 1 to 20 years. All follow methodological standards when developing PVGs, but the extent of these standards and their public accessibility differs. Aims and target groups of PVGs vary between organizations. Facilitators for developing PVGs are working with a multidisciplinary team, financial resources, consultation processes and a high-quality underlying CPG. Facilitators for disseminating and implementing PVGs are using various strategies. Barriers, on the other hand, are the lack of these factors. All participants mentioned patient involvement as a key aspect in PVG development. Conclusion The steps in the PVG development process are largely similar across the countries. Focus is placed on the involvement of patients in the development process, although the extent of participation varies. The experts collectively attribute great importance to PVGs overall, but in order to constantly adapt to medical progress and changing conditions, the focus in the future may be more on formats like living guidelines. Although there are different views on the mandatory development of PVGs, there is a consistent call for more transparency regarding the methodology used for PVGs. |
| first_indexed | 2024-03-08T12:39:05Z |
| format | Article |
| id | doaj.art-1ac8c087d8794ea8b760fa5c2e7e7af3 |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-03-08T12:39:05Z |
| publishDate | 2024-01-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-1ac8c087d8794ea8b760fa5c2e7e7af32024-01-21T12:15:18ZengBMCBMC Health Services Research1472-69632024-01-0124111210.1186/s12913-023-10524-5Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producersNora Meyer0Julia Hauprich1Jessica Breuing2Irma Hellbrecht3Sarah Wahlen4Nadja Könsgen5Stefanie Bühn6Monika Becker7Susanne Blödt8Günther Carl9Markus Follmann10Stefanie Frenz11Thomas Langer12Monika Nothacker13Corinna Schaefer14Dawid Pieper15Institute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityInstitute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityInstitute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityInstitute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityInstitute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityInstitute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityInstitute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityInstitute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityInstitute for Medical Knowledge Management c/o Philipps University Marburg, Association of the Scientific Medical Societies in GermanyGerman Prostate Cancer Support GroupOffice of the German Guideline Program in Oncology (GGPO),c/o, German Cancer SocietyFrauenselbsthilfe Krebs BundesverbandOffice of the German Guideline Program in Oncology (GGPO),c/o, German Cancer SocietyInstitute for Medical Knowledge Management c/o Philipps University Marburg, Association of the Scientific Medical Societies in GermanyGerman Agency for Quality in MedicineInstitute for Research in Operative Medicine (IFOM), Department for Evidence Based Health Services Research, Department of Medicine, Faculty of Health, Witten/Herdecke UniversityAbstract Background Several guideline organizations produce patient versions of clinical practice guidelines (PVGs) which translate recommendations into simple language. A former study of our working group revealed that few guideline organizations publish their methods used to develop PVGs. Clear definitions of PVGs do not prevail and their purposes often remain unclear. We aimed to explore experts’ perspectives on developing, disseminating and implementing PVGs to discuss and incorporate these experiences when consenting on methodological guidance and further improving PVGs. Methods We conducted 17 semi-structured telephone interviews with international experts working with PVGs from September 2021 through January 2022. We conducted the interviews in English or German, they were recorded and transcribed verbatim. We utilized Mayring’s qualitative content analysis with MAXQDA software to analyze the data. Results In two interviews two participants were interviewed at the same time. This resulted in a total of 19 participants from 16 different organizations and eight different countries participated. Most were female (16/19) and their experience in working with PVGs ranged from 1 to 20 years. All follow methodological standards when developing PVGs, but the extent of these standards and their public accessibility differs. Aims and target groups of PVGs vary between organizations. Facilitators for developing PVGs are working with a multidisciplinary team, financial resources, consultation processes and a high-quality underlying CPG. Facilitators for disseminating and implementing PVGs are using various strategies. Barriers, on the other hand, are the lack of these factors. All participants mentioned patient involvement as a key aspect in PVG development. Conclusion The steps in the PVG development process are largely similar across the countries. Focus is placed on the involvement of patients in the development process, although the extent of participation varies. The experts collectively attribute great importance to PVGs overall, but in order to constantly adapt to medical progress and changing conditions, the focus in the future may be more on formats like living guidelines. Although there are different views on the mandatory development of PVGs, there is a consistent call for more transparency regarding the methodology used for PVGs.https://doi.org/10.1186/s12913-023-10524-5Patient versions of clinical practice guidelinesMethodologyDevelopmentDisseminationImplementationEvidence-based patient information |
| spellingShingle | Nora Meyer Julia Hauprich Jessica Breuing Irma Hellbrecht Sarah Wahlen Nadja Könsgen Stefanie Bühn Monika Becker Susanne Blödt Günther Carl Markus Follmann Stefanie Frenz Thomas Langer Monika Nothacker Corinna Schaefer Dawid Pieper Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producers BMC Health Services Research Patient versions of clinical practice guidelines Methodology Development Dissemination Implementation Evidence-based patient information |
| title | Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producers |
| title_full | Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producers |
| title_fullStr | Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producers |
| title_full_unstemmed | Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producers |
| title_short | Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producers |
| title_sort | barriers and facilitators in developing patient versions of clinical practice guidelines qualitative interviews on experiences of international guideline producers |
| topic | Patient versions of clinical practice guidelines Methodology Development Dissemination Implementation Evidence-based patient information |
| url | https://doi.org/10.1186/s12913-023-10524-5 |
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