Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study

Abstract Background Falls among older adults with intellectual disability (ID) are recognised as a serious health problem potentially resulting in reduced health-related quality of life and premature placement in residential care. However there are limited studies that have investigated this problem...

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Main Authors: Portia Ho, Caroline Bulsara, Shane Patman, Max Bulsara, Jenny Downs, Anne-Marie Hill
Format: Article
Language:English
Published: BMC 2018-07-01
Series:BMC Geriatrics
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12877-018-0862-8
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author Portia Ho
Caroline Bulsara
Shane Patman
Max Bulsara
Jenny Downs
Anne-Marie Hill
author_facet Portia Ho
Caroline Bulsara
Shane Patman
Max Bulsara
Jenny Downs
Anne-Marie Hill
author_sort Portia Ho
collection DOAJ
description Abstract Background Falls among older adults with intellectual disability (ID) are recognised as a serious health problem potentially resulting in reduced health-related quality of life and premature placement in residential care. However there are limited studies that have investigated this problem and thus falls rates among older adults with ID remain uncertain. Furthermore, people with ID rely heavily on familial and professional care support to address health problems, such as after having a fall. No studies have explored the post-fall care that people with ID receive. Method This research will be carried out in two phases using a convergent mixed methods design. The aim of Phase 1 is to estimate the falls rate by prospectively observing a cohort of older adults (≥ 35 years) with ID (n = 90) for six months. Phase 1 will be conducted according to STROBE guidelines. In Phase 2, participants from Phase 1 who have experienced a fall(s) will be asked to participate in a semi-structured interview to explore their post-fall experience. Discussion This study will determine the rate of falls among older adults with ID living in community based settings, which will assist to identify the extent of this problem. Data collected from the study will also aid in understanding the circumstance of falls and related falls risk factors in this cohort. This will include exploring any barriers that older adults with ID may encounter when seeking or undertaking recommended post-fall care advice. Findings from this research will potentially inform future development of falls prevention services for older adults with ID. This study has been approved by the University Human Research Ethics Committee. Trial registration The protocol for this study is registered with the Australian New Zealand Clinical Trial Registry (ACTRN12615000926538) on 7 September 2015. www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=368990&isReview=true
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spelling doaj.art-1b29cbcc1daa43f3b560163b312e49c12022-12-21T23:40:18ZengBMCBMC Geriatrics1471-23182018-07-011811910.1186/s12877-018-0862-8Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort studyPortia Ho0Caroline Bulsara1Shane Patman2Max Bulsara3Jenny Downs4Anne-Marie Hill5School of Physiotherapy, The University of Notre Dame AustraliaInstitute for Health Research, The University of Notre Dame AustraliaSchool of Physiotherapy, The University of Notre Dame AustraliaInstitute for Health Research, The University of Notre Dame AustraliaTelethon Kids InstituteSchool of Physiotherapy and Exercise Science, Curtin UniversityAbstract Background Falls among older adults with intellectual disability (ID) are recognised as a serious health problem potentially resulting in reduced health-related quality of life and premature placement in residential care. However there are limited studies that have investigated this problem and thus falls rates among older adults with ID remain uncertain. Furthermore, people with ID rely heavily on familial and professional care support to address health problems, such as after having a fall. No studies have explored the post-fall care that people with ID receive. Method This research will be carried out in two phases using a convergent mixed methods design. The aim of Phase 1 is to estimate the falls rate by prospectively observing a cohort of older adults (≥ 35 years) with ID (n = 90) for six months. Phase 1 will be conducted according to STROBE guidelines. In Phase 2, participants from Phase 1 who have experienced a fall(s) will be asked to participate in a semi-structured interview to explore their post-fall experience. Discussion This study will determine the rate of falls among older adults with ID living in community based settings, which will assist to identify the extent of this problem. Data collected from the study will also aid in understanding the circumstance of falls and related falls risk factors in this cohort. This will include exploring any barriers that older adults with ID may encounter when seeking or undertaking recommended post-fall care advice. Findings from this research will potentially inform future development of falls prevention services for older adults with ID. This study has been approved by the University Human Research Ethics Committee. Trial registration The protocol for this study is registered with the Australian New Zealand Clinical Trial Registry (ACTRN12615000926538) on 7 September 2015. www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=368990&isReview=truehttp://link.springer.com/article/10.1186/s12877-018-0862-8Intellectual disabilityAccidental fallsFalls rateBarriersMixed methods
spellingShingle Portia Ho
Caroline Bulsara
Shane Patman
Max Bulsara
Jenny Downs
Anne-Marie Hill
Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study
BMC Geriatrics
Intellectual disability
Accidental falls
Falls rate
Barriers
Mixed methods
title Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study
title_full Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study
title_fullStr Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study
title_full_unstemmed Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study
title_short Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study
title_sort investigating falls in adults with intellectual disability living in community settings and their experiences of post fall care services protocol for a prospective observational cohort study
topic Intellectual disability
Accidental falls
Falls rate
Barriers
Mixed methods
url http://link.springer.com/article/10.1186/s12877-018-0862-8
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