Web-based follow-up tool (ePIPARI) of preterm infants—study protocol for feasibility and performance
Abstract Background Preterm infants have a risk of health and developmental problems emerging after discharge. This indicates the need for a comprehensive follow-up to enable early identification of these problems. In this paper, we introduce a follow-up tool “ePIPARI – web-based follow-up for prete...
| Main Authors: | , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2023-08-01
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| Series: | BMC Pediatrics |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12887-023-04226-4 |
| _version_ | 1797451455619137536 |
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| author | Tiina Saarinen Milla Ylijoki Liisa Lehtonen Petriina Munck Suvi Stolt Helena Lapinleimu Päivi Rautava Leena Haataja Sirkku Setänen Marika Leppänen Mira Huhtala Katriina Saarinen Linda Grönroos Riikka Korja on behalf of the PIPARI Study group |
| author_facet | Tiina Saarinen Milla Ylijoki Liisa Lehtonen Petriina Munck Suvi Stolt Helena Lapinleimu Päivi Rautava Leena Haataja Sirkku Setänen Marika Leppänen Mira Huhtala Katriina Saarinen Linda Grönroos Riikka Korja on behalf of the PIPARI Study group |
| author_sort | Tiina Saarinen |
| collection | DOAJ |
| description | Abstract Background Preterm infants have a risk of health and developmental problems emerging after discharge. This indicates the need for a comprehensive follow-up to enable early identification of these problems. In this paper, we introduce a follow-up tool “ePIPARI – web-based follow-up for preterm infants”. Our future aim is to investigate whether ePIPARI is a feasible tool in the follow-up of preterm infants and whether it can identify children and parents in need of clinical interventions. Methods ePIPARI includes eight assessment points (at term age and at 1, 2, 4, 8, 12, 18, and 24 months of corrected age) when the child´s health and growth, eating and feeding, neurodevelopment, and parental well-being are evaluated. ePIPARI consists of several widely used, standardized questionnaires, in addition to questions typically presented to parents in clinical follow-up visits. It also provides video guidance and written information about age-appropriate neurodevelopment for the parents. Parents of children born before 34 weeks of gestation during years 2019–2022 are being invited to participate in the ePIPARI study, in which web-based follow-up with ePIPARI is compared to clinical follow-up. In addition, the parents of children born before 32 weeks of gestation, who reached the corrected age of two years during 2019–2021 were invited to participate for the assessment point of 24 months of ePIPARI. The parents are asked to fill in the online questionnaires two weeks prior to each clinical follow-up visit. Discussion The web-based tool, ePIPARI, was developed to acquire a sensitive and specific tool to detect infants and parents in need of further support and clinical interventions. This tool could allow individualized adjustments of the frequency and content of the clinical visits. Trial registration ClinicalTrials.cov, NCT05238168 . Registered 11 April 2022 – Retrospectively registered. |
| first_indexed | 2024-03-09T14:53:55Z |
| format | Article |
| id | doaj.art-1b5d18d30426477cb01f1ed3fb532b71 |
| institution | Directory Open Access Journal |
| issn | 1471-2431 |
| language | English |
| last_indexed | 2024-03-09T14:53:55Z |
| publishDate | 2023-08-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Pediatrics |
| spelling | doaj.art-1b5d18d30426477cb01f1ed3fb532b712023-11-26T14:16:05ZengBMCBMC Pediatrics1471-24312023-08-012311910.1186/s12887-023-04226-4Web-based follow-up tool (ePIPARI) of preterm infants—study protocol for feasibility and performanceTiina Saarinen0Milla Ylijoki1Liisa Lehtonen2Petriina Munck3Suvi Stolt4Helena Lapinleimu5Päivi Rautava6Leena Haataja7Sirkku Setänen8Marika Leppänen9Mira Huhtala10Katriina Saarinen11Linda Grönroos12Riikka Korja13on behalf of the PIPARI Study groupDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of TurkuDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of TurkuDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of TurkuDepartment of Psychology and Logopedics, Faculty of Medicine, University of HelsinkiDepartment of Psychology and Logopedics, Faculty of Medicine, University of HelsinkiDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of TurkuDepartment of Public Health, University of TurkuDepartment of Pediatric Neurology, Children’s Hospital and Pediatric Research Center, Helsinki University Hospital and University of HelsinkiDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of TurkuDepartment of Public Health and Psychiatry, and University of TurkuDepartment of Public Health, University of TurkuDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of TurkuDepartment of Paediatric Neurology, Turku University Hospital and University of TurkuDepartment of Psychology, and Speech Pathology, University of TurkuAbstract Background Preterm infants have a risk of health and developmental problems emerging after discharge. This indicates the need for a comprehensive follow-up to enable early identification of these problems. In this paper, we introduce a follow-up tool “ePIPARI – web-based follow-up for preterm infants”. Our future aim is to investigate whether ePIPARI is a feasible tool in the follow-up of preterm infants and whether it can identify children and parents in need of clinical interventions. Methods ePIPARI includes eight assessment points (at term age and at 1, 2, 4, 8, 12, 18, and 24 months of corrected age) when the child´s health and growth, eating and feeding, neurodevelopment, and parental well-being are evaluated. ePIPARI consists of several widely used, standardized questionnaires, in addition to questions typically presented to parents in clinical follow-up visits. It also provides video guidance and written information about age-appropriate neurodevelopment for the parents. Parents of children born before 34 weeks of gestation during years 2019–2022 are being invited to participate in the ePIPARI study, in which web-based follow-up with ePIPARI is compared to clinical follow-up. In addition, the parents of children born before 32 weeks of gestation, who reached the corrected age of two years during 2019–2021 were invited to participate for the assessment point of 24 months of ePIPARI. The parents are asked to fill in the online questionnaires two weeks prior to each clinical follow-up visit. Discussion The web-based tool, ePIPARI, was developed to acquire a sensitive and specific tool to detect infants and parents in need of further support and clinical interventions. This tool could allow individualized adjustments of the frequency and content of the clinical visits. Trial registration ClinicalTrials.cov, NCT05238168 . Registered 11 April 2022 – Retrospectively registered.https://doi.org/10.1186/s12887-023-04226-4eHealthNeonatal follow-upNICUNeurodevelopmentParental wellbeingEarly intervention |
| spellingShingle | Tiina Saarinen Milla Ylijoki Liisa Lehtonen Petriina Munck Suvi Stolt Helena Lapinleimu Päivi Rautava Leena Haataja Sirkku Setänen Marika Leppänen Mira Huhtala Katriina Saarinen Linda Grönroos Riikka Korja on behalf of the PIPARI Study group Web-based follow-up tool (ePIPARI) of preterm infants—study protocol for feasibility and performance BMC Pediatrics eHealth Neonatal follow-up NICU Neurodevelopment Parental wellbeing Early intervention |
| title | Web-based follow-up tool (ePIPARI) of preterm infants—study protocol for feasibility and performance |
| title_full | Web-based follow-up tool (ePIPARI) of preterm infants—study protocol for feasibility and performance |
| title_fullStr | Web-based follow-up tool (ePIPARI) of preterm infants—study protocol for feasibility and performance |
| title_full_unstemmed | Web-based follow-up tool (ePIPARI) of preterm infants—study protocol for feasibility and performance |
| title_short | Web-based follow-up tool (ePIPARI) of preterm infants—study protocol for feasibility and performance |
| title_sort | web based follow up tool epipari of preterm infants study protocol for feasibility and performance |
| topic | eHealth Neonatal follow-up NICU Neurodevelopment Parental wellbeing Early intervention |
| url | https://doi.org/10.1186/s12887-023-04226-4 |
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