People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers

Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to...

Full description

Bibliographic Details
Main Authors: M Patrice Lindsay RN, PhD, Natalie Gierman MHSc, Jocelyn E Harris OT, PhD, Gavin Arthur PhD, Moira E Teed MSc, MSW, Anita Mountain MD, FRCPC, Gordon Gubitz MD, FRCPC, Eric E Smith MD, MSc, FRCPC, Dar Dowlatshahi MD, PhD, FRCPC, Andrea de Jong RN, MSN, Leigh C P Botly PhD
Format: Article
Language:English
Published: SAGE Publishing 2020-12-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/2374373520956538
Description
Summary:Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to engage PWLE in the writing and review of Canadian Stroke Best Practice Recommendations. Responses to a standardized evaluation tool indicated that participants perceived the CCRP as valued, impactful, effective, and beneficial to stroke care. This project successfully demonstrated that values, experiences, and recommendations of PWLE can be effectively incorporated into guideline content and is applicable to all guideline development processes.
ISSN:2374-3735
2374-3743