People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers
Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2020-12-01
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| Series: | Journal of Patient Experience |
| Online Access: | https://doi.org/10.1177/2374373520956538 |
| _version_ | 1818194694098649088 |
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| author | M Patrice Lindsay RN, PhD Natalie Gierman MHSc Jocelyn E Harris OT, PhD Gavin Arthur PhD Moira E Teed MSc, MSW Anita Mountain MD, FRCPC Gordon Gubitz MD, FRCPC Eric E Smith MD, MSc, FRCPC Dar Dowlatshahi MD, PhD, FRCPC Andrea de Jong RN, MSN Leigh C P Botly PhD |
| author_facet | M Patrice Lindsay RN, PhD Natalie Gierman MHSc Jocelyn E Harris OT, PhD Gavin Arthur PhD Moira E Teed MSc, MSW Anita Mountain MD, FRCPC Gordon Gubitz MD, FRCPC Eric E Smith MD, MSc, FRCPC Dar Dowlatshahi MD, PhD, FRCPC Andrea de Jong RN, MSN Leigh C P Botly PhD |
| author_sort | M Patrice Lindsay RN, PhD |
| collection | DOAJ |
| description | Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to engage PWLE in the writing and review of Canadian Stroke Best Practice Recommendations. Responses to a standardized evaluation tool indicated that participants perceived the CCRP as valued, impactful, effective, and beneficial to stroke care. This project successfully demonstrated that values, experiences, and recommendations of PWLE can be effectively incorporated into guideline content and is applicable to all guideline development processes. |
| first_indexed | 2024-12-12T01:06:21Z |
| format | Article |
| id | doaj.art-1b6889013c8b47829950df37e1a69cc8 |
| institution | Directory Open Access Journal |
| issn | 2374-3735 2374-3743 |
| language | English |
| last_indexed | 2024-12-12T01:06:21Z |
| publishDate | 2020-12-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of Patient Experience |
| spelling | doaj.art-1b6889013c8b47829950df37e1a69cc82022-12-22T00:43:34ZengSAGE PublishingJournal of Patient Experience2374-37352374-37432020-12-01710.1177/2374373520956538People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline DevelopersM Patrice Lindsay RN, PhD0Natalie Gierman MHSc1Jocelyn E Harris OT, PhD2Gavin Arthur PhD3Moira E Teed MSc, MSW4Anita Mountain MD, FRCPC5Gordon Gubitz MD, FRCPC6Eric E Smith MD, MSc, FRCPC7Dar Dowlatshahi MD, PhD, FRCPC8Andrea de Jong RN, MSN9Leigh C P Botly PhD10 Heart and Stroke Foundation of Canada, Toronto, Ontario, Canada Heart and Stroke Foundation of Canada, Toronto, Ontario, Canada School of Rehabilitation Science, McMaster University, Institute for Applied Health Sciences, Hamilton, Ontario, Canada Heart and Stroke Foundation of Canada, Toronto, Ontario, Canada Heart and Stroke Foundation of Canada, Toronto, Ontario, Canada Division of Physical Rehabilitation Medicine, Department of Medicine, Dalhousie University, Halifax, Nova Scotia, Canada Division of Neurology, Department of Medicine, Dalhousie University, Halifax, Nova Scotia, Canada Department of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada Division of Neurology, Department of Medicine, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada Heart and Stroke Foundation of Canada, Toronto, Ontario, Canada Heart and Stroke Foundation of Canada, Toronto, Ontario, CanadaActively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to engage PWLE in the writing and review of Canadian Stroke Best Practice Recommendations. Responses to a standardized evaluation tool indicated that participants perceived the CCRP as valued, impactful, effective, and beneficial to stroke care. This project successfully demonstrated that values, experiences, and recommendations of PWLE can be effectively incorporated into guideline content and is applicable to all guideline development processes.https://doi.org/10.1177/2374373520956538 |
| spellingShingle | M Patrice Lindsay RN, PhD Natalie Gierman MHSc Jocelyn E Harris OT, PhD Gavin Arthur PhD Moira E Teed MSc, MSW Anita Mountain MD, FRCPC Gordon Gubitz MD, FRCPC Eric E Smith MD, MSc, FRCPC Dar Dowlatshahi MD, PhD, FRCPC Andrea de Jong RN, MSN Leigh C P Botly PhD People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers Journal of Patient Experience |
| title | People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers |
| title_full | People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers |
| title_fullStr | People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers |
| title_full_unstemmed | People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers |
| title_short | People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers |
| title_sort | people with lived experience at the centre of canadian stroke best practice recommendations a model for guideline developers |
| url | https://doi.org/10.1177/2374373520956538 |
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