Female adolescents living with HIV telling their story through ‘my story’ book in Malawi: A visual methodology innovation

<h4>Introduction</h4> Female adolescents living with Human Immunodeficiency Virus are a unique population facing lifelong challenges in reproductive and sexual health ranging from relational, social and legal-ethical considerations. While HIV prevalence of young females is higher than th...

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Main Authors: Gertrude Mwalabu, Ida Mbendera, Pammla Petrucka, Violet Manjanja
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2021-01-01
Series:PLoS ONE
Online Access:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8519441/?tool=EBI
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author Gertrude Mwalabu
Ida Mbendera
Pammla Petrucka
Violet Manjanja
author_facet Gertrude Mwalabu
Ida Mbendera
Pammla Petrucka
Violet Manjanja
author_sort Gertrude Mwalabu
collection DOAJ
description <h4>Introduction</h4> Female adolescents living with Human Immunodeficiency Virus are a unique population facing lifelong challenges in reproductive and sexual health ranging from relational, social and legal-ethical considerations. While HIV prevalence of young females is higher than the males (4.9% versus 1%), evidence show that these adolescents in Malawi initiate sex as early as 15 years mostly with adult partners. Yet, young people are frequently reported to be reluctant to discuss sexual matters and demonstrate avoidance of direct questions on sexual issues during interviews. It is critical therefore that researchers invoke youth-friendly approaches to address these complex issues and enable these vulnerable individuals to articulate and advocate for their preferred futures. <h4>Methods</h4> This study used an innovative visual qualitative approach known as ‘my story’ book which combined image selection and sentence completion exercises to enable adolescents living with HIV to share their stories through interviews. The study involved 14 cases comprising of 14 female adolescents aged 15 to 19, 14 caregivers and 14 health providers working at HIV multidisciplinary centres in Malawi. <h4>Results</h4> The ‘my story’ book enabled in-depth exploration of the experiences and issues faced by this vulnerable population. The use of images and sentence completion exercise enabled the researcher to appreciate the type of interactions (or lack of) on sexual issues and status disclosure to significant others including sexual partners. Three themes were revealed, included creating meanings, revealing confirmatory and/or complementary evidence and enabling intergenerational research. <h4>Conclusions</h4> The ‘my story’ book captured the life experiences and needs of the female adolescents. The book assisted the participants in constructing, communicating, and controlling the articulation of their stories. It positioned female adolescents as a diverse group of social agents able to construct and reflect on their social worlds and real-life issues. This approach was highly effective in creating a youth-friendly context for reflection and revelation regarding sensitive cultural and social issues faced by this group. As such, the ‘my story’ book could be used in one-on-one counselling or provide data to inform intervention development.
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spelling doaj.art-1bd1af3c85bb4500b59d67beb9a2a5512022-12-21T19:11:48ZengPublic Library of Science (PLoS)PLoS ONE1932-62032021-01-011610Female adolescents living with HIV telling their story through ‘my story’ book in Malawi: A visual methodology innovationGertrude MwalabuIda MbenderaPammla PetruckaViolet Manjanja<h4>Introduction</h4> Female adolescents living with Human Immunodeficiency Virus are a unique population facing lifelong challenges in reproductive and sexual health ranging from relational, social and legal-ethical considerations. While HIV prevalence of young females is higher than the males (4.9% versus 1%), evidence show that these adolescents in Malawi initiate sex as early as 15 years mostly with adult partners. Yet, young people are frequently reported to be reluctant to discuss sexual matters and demonstrate avoidance of direct questions on sexual issues during interviews. It is critical therefore that researchers invoke youth-friendly approaches to address these complex issues and enable these vulnerable individuals to articulate and advocate for their preferred futures. <h4>Methods</h4> This study used an innovative visual qualitative approach known as ‘my story’ book which combined image selection and sentence completion exercises to enable adolescents living with HIV to share their stories through interviews. The study involved 14 cases comprising of 14 female adolescents aged 15 to 19, 14 caregivers and 14 health providers working at HIV multidisciplinary centres in Malawi. <h4>Results</h4> The ‘my story’ book enabled in-depth exploration of the experiences and issues faced by this vulnerable population. The use of images and sentence completion exercise enabled the researcher to appreciate the type of interactions (or lack of) on sexual issues and status disclosure to significant others including sexual partners. Three themes were revealed, included creating meanings, revealing confirmatory and/or complementary evidence and enabling intergenerational research. <h4>Conclusions</h4> The ‘my story’ book captured the life experiences and needs of the female adolescents. The book assisted the participants in constructing, communicating, and controlling the articulation of their stories. It positioned female adolescents as a diverse group of social agents able to construct and reflect on their social worlds and real-life issues. This approach was highly effective in creating a youth-friendly context for reflection and revelation regarding sensitive cultural and social issues faced by this group. As such, the ‘my story’ book could be used in one-on-one counselling or provide data to inform intervention development.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8519441/?tool=EBI
spellingShingle Gertrude Mwalabu
Ida Mbendera
Pammla Petrucka
Violet Manjanja
Female adolescents living with HIV telling their story through ‘my story’ book in Malawi: A visual methodology innovation
PLoS ONE
title Female adolescents living with HIV telling their story through ‘my story’ book in Malawi: A visual methodology innovation
title_full Female adolescents living with HIV telling their story through ‘my story’ book in Malawi: A visual methodology innovation
title_fullStr Female adolescents living with HIV telling their story through ‘my story’ book in Malawi: A visual methodology innovation
title_full_unstemmed Female adolescents living with HIV telling their story through ‘my story’ book in Malawi: A visual methodology innovation
title_short Female adolescents living with HIV telling their story through ‘my story’ book in Malawi: A visual methodology innovation
title_sort female adolescents living with hiv telling their story through my story book in malawi a visual methodology innovation
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8519441/?tool=EBI
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