Out-of-pocket healthcare expenditures of Turkish households living with rare diseases
IntroductionThis study aims to determine the out-of-pocket health expenditures of households in Turkey where individuals with rare diseases are residing.MethodsThe research population consisted registered members of associations who are members of the Rare Diseases Network. In addition to the genera...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2023-03-01
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| Series: | Frontiers in Public Health |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fpubh.2023.1051851/full |
| _version_ | 1811160731294367744 |
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| author | Güvenç Koçkaya Gülpembe Oguzhan Selin Ökçün Mustafa Kurnaz |
| author_facet | Güvenç Koçkaya Gülpembe Oguzhan Selin Ökçün Mustafa Kurnaz |
| author_sort | Güvenç Koçkaya |
| collection | DOAJ |
| description | IntroductionThis study aims to determine the out-of-pocket health expenditures of households in Turkey where individuals with rare diseases are residing.MethodsThe research population consisted registered members of associations who are members of the Rare Diseases Network. In addition to the general analysis including all participants, expenditures based on characteristics of disease holders were also calculated.ResultsA total of 439 participants were included in the analysis. We determined that special nutrition was the highest expenditure group and emergency departments were the lowest expenditure group. When all the participants were evaluated, the average cost of rare diseases was found to be Ł22,743 (€2,877). A significant relationship was found between income status and out-of-pocket health expenditures (p = 0.012).DiscussionPolicy makers should consider inclusion of special nutritional products and medical/non-medical devices used in treatment of rare diseases within the scope of reimbursement and the development of orphan drug legislation as the first actions to be taken. |
| first_indexed | 2024-04-10T06:02:23Z |
| format | Article |
| id | doaj.art-1be0119d60f0433d83f56ed278791536 |
| institution | Directory Open Access Journal |
| issn | 2296-2565 |
| language | English |
| last_indexed | 2024-04-10T06:02:23Z |
| publishDate | 2023-03-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Public Health |
| spelling | doaj.art-1be0119d60f0433d83f56ed2787915362023-03-03T06:05:38ZengFrontiers Media S.A.Frontiers in Public Health2296-25652023-03-011110.3389/fpubh.2023.10518511051851Out-of-pocket healthcare expenditures of Turkish households living with rare diseasesGüvenç Koçkaya0Gülpembe Oguzhan1Selin Ökçün2Mustafa Kurnaz3ECONiX Research, Analysis and Consultancy Inc., Samsun, TürkiyeDepartment of Healthcare Management, Tarsus University, Mersin, TürkiyeECONiX Research, Analysis and Consultancy Inc., Samsun, TürkiyeECONiX Research, Analysis and Consultancy Inc., Samsun, TürkiyeIntroductionThis study aims to determine the out-of-pocket health expenditures of households in Turkey where individuals with rare diseases are residing.MethodsThe research population consisted registered members of associations who are members of the Rare Diseases Network. In addition to the general analysis including all participants, expenditures based on characteristics of disease holders were also calculated.ResultsA total of 439 participants were included in the analysis. We determined that special nutrition was the highest expenditure group and emergency departments were the lowest expenditure group. When all the participants were evaluated, the average cost of rare diseases was found to be Ł22,743 (€2,877). A significant relationship was found between income status and out-of-pocket health expenditures (p = 0.012).DiscussionPolicy makers should consider inclusion of special nutritional products and medical/non-medical devices used in treatment of rare diseases within the scope of reimbursement and the development of orphan drug legislation as the first actions to be taken.https://www.frontiersin.org/articles/10.3389/fpubh.2023.1051851/fullhealth expenditurerare diseaseTurkeyhouseholdout-of-pocket |
| spellingShingle | Güvenç Koçkaya Gülpembe Oguzhan Selin Ökçün Mustafa Kurnaz Out-of-pocket healthcare expenditures of Turkish households living with rare diseases Frontiers in Public Health health expenditure rare disease Turkey household out-of-pocket |
| title | Out-of-pocket healthcare expenditures of Turkish households living with rare diseases |
| title_full | Out-of-pocket healthcare expenditures of Turkish households living with rare diseases |
| title_fullStr | Out-of-pocket healthcare expenditures of Turkish households living with rare diseases |
| title_full_unstemmed | Out-of-pocket healthcare expenditures of Turkish households living with rare diseases |
| title_short | Out-of-pocket healthcare expenditures of Turkish households living with rare diseases |
| title_sort | out of pocket healthcare expenditures of turkish households living with rare diseases |
| topic | health expenditure rare disease Turkey household out-of-pocket |
| url | https://www.frontiersin.org/articles/10.3389/fpubh.2023.1051851/full |
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