Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.

A growing number of organisations, including medical associations, recommend that research subjects should be given the option of being informed about the general outcome and results of the study. We recently completed a study involving nine serosurveys from 2018 to 2020 in five districts of India a...

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Main Authors: Neha Salvi, Krishna Chaaithanya Itta, Abhishek Lachyan, Alvira Z Hasan, Christine Prosperi, Muthusamy Santhosh Kumar, Jeromie Wesley Vivian Thangaraj, Ojas Kaduskar, Vaishali Bhatt, Gajanan N Sapkal, Manoj Murhekar, Nivedita Gupta, Sanjay Mehendale, Kyla Hayford, William J Moss, Sanjay Chauhan, Ragini Kulkarni
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2022-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0271920
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author Neha Salvi
Krishna Chaaithanya Itta
Abhishek Lachyan
Alvira Z Hasan
Christine Prosperi
Muthusamy Santhosh Kumar
Jeromie Wesley Vivian Thangaraj
Ojas Kaduskar
Vaishali Bhatt
Gajanan N Sapkal
Manoj Murhekar
Nivedita Gupta
Sanjay Mehendale
Kyla Hayford
William J Moss
Sanjay Chauhan
Ragini Kulkarni
author_facet Neha Salvi
Krishna Chaaithanya Itta
Abhishek Lachyan
Alvira Z Hasan
Christine Prosperi
Muthusamy Santhosh Kumar
Jeromie Wesley Vivian Thangaraj
Ojas Kaduskar
Vaishali Bhatt
Gajanan N Sapkal
Manoj Murhekar
Nivedita Gupta
Sanjay Mehendale
Kyla Hayford
William J Moss
Sanjay Chauhan
Ragini Kulkarni
author_sort Neha Salvi
collection DOAJ
description A growing number of organisations, including medical associations, recommend that research subjects should be given the option of being informed about the general outcome and results of the study. We recently completed a study involving nine serosurveys from 2018 to 2020 in five districts of India among three age groups (children 9 months to < 5 years; 5 to < 15 years of age, and women 15 to < 50 years of age before and after the measles and rubella (MR) vaccination campaigns). In Palghar district of Maharashtra all individuals in 30 selected clusters were enumerated, and 13 individuals per age group were randomly sampled. We established the procedures to return the results to the respondents for each stage of the survey. Of the 1,166 individuals selected for the measles and rubella serosurvey, 971 (83%) agreed to participate and were enrolled. Participants were informed that they will only be contacted if they test seronegative for measles and/or rubella antibodies. Overall, 140 individuals enrolled in the survey tested seronegative for IgG antibodies to measles and/or rubella viruses; were provided the reports and informed to seek medical advice. Upon follow up by phone, 10% (14) of the 140 participants reported to have been vaccinated. In this paper we discuss the procedures, experiences and considerations in returning results to participants in a community-based measles and rubella serosurvey. Although the lessons learned are specific to post measles-rubella vaccine campaign serosurvey in India, they might be helpful to those contemplating sharing results to participants of large scale survey settings.
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spelling doaj.art-1c1738a217ac4dd49a924e63a97b70772022-12-22T04:18:52ZengPublic Library of Science (PLoS)PLoS ONE1932-62032022-01-01178e027192010.1371/journal.pone.0271920Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.Neha SalviKrishna Chaaithanya IttaAbhishek LachyanAlvira Z HasanChristine ProsperiMuthusamy Santhosh KumarJeromie Wesley Vivian ThangarajOjas KaduskarVaishali BhattGajanan N SapkalManoj MurhekarNivedita GuptaSanjay MehendaleKyla HayfordWilliam J MossSanjay ChauhanRagini KulkarniA growing number of organisations, including medical associations, recommend that research subjects should be given the option of being informed about the general outcome and results of the study. We recently completed a study involving nine serosurveys from 2018 to 2020 in five districts of India among three age groups (children 9 months to < 5 years; 5 to < 15 years of age, and women 15 to < 50 years of age before and after the measles and rubella (MR) vaccination campaigns). In Palghar district of Maharashtra all individuals in 30 selected clusters were enumerated, and 13 individuals per age group were randomly sampled. We established the procedures to return the results to the respondents for each stage of the survey. Of the 1,166 individuals selected for the measles and rubella serosurvey, 971 (83%) agreed to participate and were enrolled. Participants were informed that they will only be contacted if they test seronegative for measles and/or rubella antibodies. Overall, 140 individuals enrolled in the survey tested seronegative for IgG antibodies to measles and/or rubella viruses; were provided the reports and informed to seek medical advice. Upon follow up by phone, 10% (14) of the 140 participants reported to have been vaccinated. In this paper we discuss the procedures, experiences and considerations in returning results to participants in a community-based measles and rubella serosurvey. Although the lessons learned are specific to post measles-rubella vaccine campaign serosurvey in India, they might be helpful to those contemplating sharing results to participants of large scale survey settings.https://doi.org/10.1371/journal.pone.0271920
spellingShingle Neha Salvi
Krishna Chaaithanya Itta
Abhishek Lachyan
Alvira Z Hasan
Christine Prosperi
Muthusamy Santhosh Kumar
Jeromie Wesley Vivian Thangaraj
Ojas Kaduskar
Vaishali Bhatt
Gajanan N Sapkal
Manoj Murhekar
Nivedita Gupta
Sanjay Mehendale
Kyla Hayford
William J Moss
Sanjay Chauhan
Ragini Kulkarni
Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.
PLoS ONE
title Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.
title_full Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.
title_fullStr Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.
title_full_unstemmed Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.
title_short Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India.
title_sort experiences of sharing results of community based serosurvey with participants in a district of maharashtra india
url https://doi.org/10.1371/journal.pone.0271920
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