Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study

Haemophilia is associated with a high tendency of acute bleeding episodes which can lead to severe morbidity and mortality in the absence of prompt care. Although delay in seeking care can lead to adverse outcomes, many people with haemophilia (PwH) in Uganda do not report to haemophilia treatment c...

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Main Authors: Kisakye Agnes, Kasirye Phillip Gitah, Muramuzi Dan, Opuch Daniel, Nampiima Joan, Ndeezi Grace, Yeka Adoke, Vultur Horatiu
Format: Article
Language:English
Published: Sciendo 2023-12-01
Series:The Journal of Haemophilia Practice
Subjects:
Online Access:https://doi.org/10.2478/jhp-2023-0018
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author Kisakye Agnes
Kasirye Phillip Gitah
Muramuzi Dan
Opuch Daniel
Nampiima Joan
Ndeezi Grace
Yeka Adoke
Vultur Horatiu
author_facet Kisakye Agnes
Kasirye Phillip Gitah
Muramuzi Dan
Opuch Daniel
Nampiima Joan
Ndeezi Grace
Yeka Adoke
Vultur Horatiu
author_sort Kisakye Agnes
collection DOAJ
description Haemophilia is associated with a high tendency of acute bleeding episodes which can lead to severe morbidity and mortality in the absence of prompt care. Although delay in seeking care can lead to adverse outcomes, many people with haemophilia (PwH) in Uganda do not report to haemophilia treatment centres (HTCs) for treatment in the event of acute bleeding within the two hours recommended by the World Federation of Hemophilia (WFH). Information on factors associated with delays in seeking care is limited.
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spelling doaj.art-1c35a53c533a45e092d3d2b638d44b0c2024-01-16T07:20:03ZengSciendoThe Journal of Haemophilia Practice2055-33902023-12-0110110611810.2478/jhp-2023-0018Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods studyKisakye Agnes0Kasirye Phillip Gitah1Muramuzi Dan2Opuch Daniel3Nampiima Joan4Ndeezi Grace5Yeka Adoke6Vultur Horatiu7Makerere University, Kampala, UgandaMulago National Referral Hospial, Kampala, UgandaMakerere University, Kampala, UgandaBaylor College of Medicine Children’s Foundation Uganda, Kampala, UgandaMakerere University, Kampala, UgandaMakerere University College of Health Sciences, Kampala, UgandaMakerere University College of Health Sciences, Kampala, UgandaCarol Davila University of Medicine and Pharmacy, Bucarest, RomaniaHaemophilia is associated with a high tendency of acute bleeding episodes which can lead to severe morbidity and mortality in the absence of prompt care. Although delay in seeking care can lead to adverse outcomes, many people with haemophilia (PwH) in Uganda do not report to haemophilia treatment centres (HTCs) for treatment in the event of acute bleeding within the two hours recommended by the World Federation of Hemophilia (WFH). Information on factors associated with delays in seeking care is limited.https://doi.org/10.2478/jhp-2023-0018haemophiliaacute bleedingtime-to-treatmentdeveloping countries
spellingShingle Kisakye Agnes
Kasirye Phillip Gitah
Muramuzi Dan
Opuch Daniel
Nampiima Joan
Ndeezi Grace
Yeka Adoke
Vultur Horatiu
Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
The Journal of Haemophilia Practice
haemophilia
acute bleeding
time-to-treatment
developing countries
title Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
title_full Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
title_fullStr Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
title_full_unstemmed Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
title_short Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
title_sort factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in uganda a cross sectional mixed methods study
topic haemophilia
acute bleeding
time-to-treatment
developing countries
url https://doi.org/10.2478/jhp-2023-0018
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