Accessibility Considerations in the National Children's Study

In the National Children's Study (NCS), assessments were proposed and developed that used a wide range of modes of administration (e.g., direct in-person interviews, telephone interviews, computer assisted interviews, self-administered questionnaires, real time and recall observations, and phys...

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Main Authors: Mark Harniss, Susan Magasi, Dianne Sabat
Format: Article
Language:English
Published: Frontiers Media S.A. 2021-04-01
Series:Frontiers in Pediatrics
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fped.2021.624175/full
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author Mark Harniss
Susan Magasi
Dianne Sabat
author_facet Mark Harniss
Susan Magasi
Dianne Sabat
author_sort Mark Harniss
collection DOAJ
description In the National Children's Study (NCS), assessments were proposed and developed that used a wide range of modes of administration (e.g., direct in-person interviews, telephone interviews, computer assisted interviews, self-administered questionnaires, real time and recall observations, and physical examinations). These modes of administration may pose accessibility challenges for some people with disabilities. Accessibility of measurement is important to consider because systematic exclusion of people with disabilities from research can lead to measurement bias and systematic error in derived scores. We describe our approach to analyzing the accessibility of measures in the NCS and describe the work of the Accessibility Domain Team. Finally, we describe a decision process for creating and using accessible health research measures.
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spelling doaj.art-1c40cf824f3b455cb135c5504729fff32022-12-21T21:34:44ZengFrontiers Media S.A.Frontiers in Pediatrics2296-23602021-04-01910.3389/fped.2021.624175624175Accessibility Considerations in the National Children's StudyMark Harniss0Susan Magasi1Dianne Sabat2Department of Rehabilitation Medicine, University of Washington, Seattle, WA, United StatesDepartments of Occupational Therapy and Disability and Human Development, University of Illinois at Chicago, Chicago, IL, United StatesMukilteo School District, Mukilteo, WA, United StatesIn the National Children's Study (NCS), assessments were proposed and developed that used a wide range of modes of administration (e.g., direct in-person interviews, telephone interviews, computer assisted interviews, self-administered questionnaires, real time and recall observations, and physical examinations). These modes of administration may pose accessibility challenges for some people with disabilities. Accessibility of measurement is important to consider because systematic exclusion of people with disabilities from research can lead to measurement bias and systematic error in derived scores. We describe our approach to analyzing the accessibility of measures in the NCS and describe the work of the Accessibility Domain Team. Finally, we describe a decision process for creating and using accessible health research measures.https://www.frontiersin.org/articles/10.3389/fped.2021.624175/fullaccessibilitydisabilityoutcomes measurementmeasurementtest development
spellingShingle Mark Harniss
Susan Magasi
Dianne Sabat
Accessibility Considerations in the National Children's Study
Frontiers in Pediatrics
accessibility
disability
outcomes measurement
measurement
test development
title Accessibility Considerations in the National Children's Study
title_full Accessibility Considerations in the National Children's Study
title_fullStr Accessibility Considerations in the National Children's Study
title_full_unstemmed Accessibility Considerations in the National Children's Study
title_short Accessibility Considerations in the National Children's Study
title_sort accessibility considerations in the national children s study
topic accessibility
disability
outcomes measurement
measurement
test development
url https://www.frontiersin.org/articles/10.3389/fped.2021.624175/full
work_keys_str_mv AT markharniss accessibilityconsiderationsinthenationalchildrensstudy
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AT diannesabat accessibilityconsiderationsinthenationalchildrensstudy