Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Background: As children and adolescents with a chronic health condition (CHC) age and transition to adulthood, many will increasingly assume responsibilities for the management of their healthcare. For individuals with CHCs, family members including siblings often provide significant and varied supp...

Disgrifiad llawn

Manylion Llyfryddiaeth
Prif Awduron:	Linda Nguyen, Hanae Davis, Samantha Bellefeuille, Jessica Havens, Susan M. Jack, Briano Di Rezze, Marjolijn Ketelaar, Jan Willem Gorter
Fformat:	Erthygl
Iaith:	English
Cyhoeddwyd:	Frontiers Media S.A. 2021-10-01
Cyfres:	Frontiers in Rehabilitation Sciences
Pynciau:	chronic health condition siblings qualitative analysis pediatrics family-centered services healthcare management
Mynediad Ar-lein:	https://www.frontiersin.org/articles/10.3389/fresc.2021.724589/full

Eitemau Tebyg

Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition
gan: Nguyen Linda, et al.
Cyhoeddwyd: (2021-09-01)

Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability: protocol of a scoping review
gan: Susan Jack, et al.
Cyhoeddwyd: (2021-07-01)

The relationship between spasticity in young children (18 months of age) with cerebral palsy and their gross motor function development
gan: Verschuren Olaf, et al.
Cyhoeddwyd: (2009-09-01)

Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A
gan: Linda Nguyen, et al.
Cyhoeddwyd: (2018-01-01)

Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom
gan: Linda Nguyen, et al.
Cyhoeddwyd: (2022-11-01)

The TRUST Study—TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus
gan: Simran Heera, et al.
Cyhoeddwyd: (2024-07-01)

Sibling Abuse: Definition, Causes and Differences between Sibling Relationship with Sibling Abuse
gan: Esra Işık, et al.
Cyhoeddwyd: (2016-03-01)

CONGRUENCE BETWEEN SIBLING RELATIONSHIP AND PARENTING PRACTICES ACROSS OLDER AND YOUNGER SIBLINGS
gan: Şule SELÇUK, et al.
Cyhoeddwyd: (2020-06-01)

The use of the Rotterdam Transition Profile: 10 years in review
gan: Zhang-Jiang Sofía, et al.
Cyhoeddwyd: (2018-05-01)

A Pilot Study of Younger Sibling Adaptation: Contributions of Individual Variables, Daily Stress, Interparental Conflict and Older Sibling’s Variables
gan: Laura Merino, et al.
Cyhoeddwyd: (2021-05-01)

Sibling Violence
gan: Nathan H. Perkins, et al.
Cyhoeddwyd: (2020-01-01)

Siblings in Greek families: raising a child with disabilities
gan: Anastasia Tsamparli, et al.
Cyhoeddwyd: (2011-02-01)

“Bullying in Incognito Mode”: The evolution of sibling bullying
gan: Suhas Chandran, et al.
Cyhoeddwyd: (2019-01-01)

Sibling gender dynamics and childhood stunting in Ghana
gan: Peter Annor Mensah, et al.
Cyhoeddwyd: (2024-12-01)

Sibling Violence and Position in Sibling Dyad in a Sample of Adolescents: How Does It Relate to Self-Esteem?
gan: Catarina Pinheiro Mota, et al.
Cyhoeddwyd: (2023-10-01)

A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity: Family Perspectives and Recommendations
gan: Lin Li, et al.
Cyhoeddwyd: (2025-02-01)

LEARN 2 MOVE 2-3: a randomized controlled trial on the efficacy of child-focused intervention and context-focused intervention in preschool children with cerebral palsy
gan: Verschuren Olaf, et al.
Cyhoeddwyd: (2010-11-01)

Critically Examining the Person–Environment Relationship and Implications of Intersectionality for Participation in Children's Rehabilitation Services
gan: Meaghan Reitzel, et al.
Cyhoeddwyd: (2021-09-01)

Explaining Differences Between Sibling Relationships in Schizophrenia and Nonclinical Sibling Relationships
gan: Léa Plessis, et al.
Cyhoeddwyd: (2020-04-01)

Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care
gan: Lin Li, et al.
Cyhoeddwyd: (2024-01-01)

CANADIAN EARLY ADOLESCENTS’ SELF-DISCLOSURE TO SIBLINGS AND BEST FRIENDS
gan: Brynheld Martinez, et al.
Cyhoeddwyd: (2013-04-01)

Perspectives of Children and Youth With Disabilities and Special Needs Regarding Their Experiences in Inclusive Education: A Meta-Aggregative Review
gan: Tithi Paul, et al.
Cyhoeddwyd: (2022-04-01)

Application of Microhaplotypes in Sibling Kinship Testing
gan: Xuan TANG, Dan WEN, Chu-dong WANG, Ru-yi XU, Hong-tao JIA, Jie-nan LI, Bai-yi-la ZHALAGA
Cyhoeddwyd: (2023-06-01)

Parentification, distress, and relationship with parents as factors shaping the relationship between adult siblings and their brother/sister with disabilities
gan: Annalisa Levante, et al.
Cyhoeddwyd: (2023-01-01)

Conflict management in adult sibling relationships: Differences in interpersonal power, sibling influence, and conflict tactic use among sibling types
gan: Mary E. Donato, et al.
Cyhoeddwyd: (2017-10-01)

A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada
gan: Linda Nguyen, et al.
Cyhoeddwyd: (2023-12-01)

Experiences of adult siblings of individuals with autism spectrum disorder in Singapore
gan: Yip, Jiamin
Cyhoeddwyd: (2024)

Family Sibling Effect and Executives’ Corporate Social Behavior
gan: Minna Zheng, et al.
Cyhoeddwyd: (2021-06-01)

Siblings of Adults with Learning Disabilities: An Empirical Study
gan: Valerie Gant
Cyhoeddwyd: (2018-12-01)

Children’s Grief and Creativity: The Experience of Losing a Sibling
gan: Marcela Lança de Andrade, et al.
Cyhoeddwyd: (2018-03-01)

The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
gan: Wei Ling Chin, et al.
Cyhoeddwyd: (2018-07-01)

Infant siblings and the investigation of autism risk factors
gan: Newschaffer Craig J, et al.
Cyhoeddwyd: (2012-04-01)

Does Policy Impact Equitable Access to Services? A Critical Discourse Analysis of Discharge Policies in Paediatric Rehabilitation
gan: Meaghan Reitzel, et al.
Cyhoeddwyd: (2022-09-01)

Siblings as a Context for Positive Development: Closeness, Communication, and Well-Being
gan: Samantha LeBouef, et al.
Cyhoeddwyd: (2021-07-01)

Cherubism in siblings: A case report
gan: Sarda D, et al.
Cyhoeddwyd: (2007-03-01)

HUBUNGAN ANTARA SIBLING RIVALRY DENGAN STRES PADA ANAK
gan: Tenny Yanuari, et al.
Cyhoeddwyd: (2011-08-01)

Sibling bullying reported by emerging adults: Profiling the prevalence, roles, and forms in a cross-country investigation
gan: Kristen Cvancara, et al.
Cyhoeddwyd: (2024-07-01)

Siblings’ experiences of having a brother or sister with an eating disorder
gan: A. Heneghan, et al.
Cyhoeddwyd: (2022-06-01)

The sibling experience: growing up with a trans sibling
gan: Eleanor Parker, et al.
Cyhoeddwyd: (2021-04-01)

Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review
gan: Freeman Matthew, et al.
Cyhoeddwyd: (2018-08-01)