Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Background: As children and adolescents with a chronic health condition (CHC) age and transition to adulthood, many will increasingly assume responsibilities for the management of their healthcare. For individuals with CHCs, family members including siblings often provide significant and varied supp...

Πλήρης περιγραφή

Λεπτομέρειες βιβλιογραφικής εγγραφής
Κύριοι συγγραφείς:	Linda Nguyen, Hanae Davis, Samantha Bellefeuille, Jessica Havens, Susan M. Jack, Briano Di Rezze, Marjolijn Ketelaar, Jan Willem Gorter
Μορφή:	Άρθρο
Γλώσσα:	English
Έκδοση:	Frontiers Media S.A. 2021-10-01
Σειρά:	Frontiers in Rehabilitation Sciences
Θέματα:	chronic health condition siblings qualitative analysis pediatrics family-centered services healthcare management
Διαθέσιμο Online:	https://www.frontiersin.org/articles/10.3389/fresc.2021.724589/full

Παρόμοια τεκμήρια

Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition
ανά: Nguyen Linda, κ.ά.
Έκδοση: (2021-09-01)

Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability: protocol of a scoping review
ανά: Susan Jack, κ.ά.
Έκδοση: (2021-07-01)

The relationship between spasticity in young children (18 months of age) with cerebral palsy and their gross motor function development
ανά: Verschuren Olaf, κ.ά.
Έκδοση: (2009-09-01)

Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A
ανά: Linda Nguyen, κ.ά.
Έκδοση: (2018-01-01)

Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom
ανά: Linda Nguyen, κ.ά.
Έκδοση: (2022-11-01)

The TRUST Study—TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus
ανά: Simran Heera, κ.ά.
Έκδοση: (2024-07-01)

Sibling Abuse: Definition, Causes and Differences between Sibling Relationship with Sibling Abuse
ανά: Esra Işık, κ.ά.
Έκδοση: (2016-03-01)

CONGRUENCE BETWEEN SIBLING RELATIONSHIP AND PARENTING PRACTICES ACROSS OLDER AND YOUNGER SIBLINGS
ανά: Şule SELÇUK, κ.ά.
Έκδοση: (2020-06-01)

The use of the Rotterdam Transition Profile: 10 years in review
ανά: Zhang-Jiang Sofía, κ.ά.
Έκδοση: (2018-05-01)

A Pilot Study of Younger Sibling Adaptation: Contributions of Individual Variables, Daily Stress, Interparental Conflict and Older Sibling’s Variables
ανά: Laura Merino, κ.ά.
Έκδοση: (2021-05-01)

Sibling Violence
ανά: Nathan H. Perkins, κ.ά.
Έκδοση: (2020-01-01)

Siblings in Greek families: raising a child with disabilities
ανά: Anastasia Tsamparli, κ.ά.
Έκδοση: (2011-02-01)

“Bullying in Incognito Mode”: The evolution of sibling bullying
ανά: Suhas Chandran, κ.ά.
Έκδοση: (2019-01-01)

Sibling gender dynamics and childhood stunting in Ghana
ανά: Peter Annor Mensah, κ.ά.
Έκδοση: (2024-12-01)

Sibling Violence and Position in Sibling Dyad in a Sample of Adolescents: How Does It Relate to Self-Esteem?
ανά: Catarina Pinheiro Mota, κ.ά.
Έκδοση: (2023-10-01)

A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity: Family Perspectives and Recommendations
ανά: Lin Li, κ.ά.
Έκδοση: (2025-02-01)

LEARN 2 MOVE 2-3: a randomized controlled trial on the efficacy of child-focused intervention and context-focused intervention in preschool children with cerebral palsy
ανά: Verschuren Olaf, κ.ά.
Έκδοση: (2010-11-01)

Critically Examining the Person–Environment Relationship and Implications of Intersectionality for Participation in Children's Rehabilitation Services
ανά: Meaghan Reitzel, κ.ά.
Έκδοση: (2021-09-01)

Explaining Differences Between Sibling Relationships in Schizophrenia and Nonclinical Sibling Relationships
ανά: Léa Plessis, κ.ά.
Έκδοση: (2020-04-01)

Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care
ανά: Lin Li, κ.ά.
Έκδοση: (2024-01-01)

CANADIAN EARLY ADOLESCENTS’ SELF-DISCLOSURE TO SIBLINGS AND BEST FRIENDS
ανά: Brynheld Martinez, κ.ά.
Έκδοση: (2013-04-01)

Perspectives of Children and Youth With Disabilities and Special Needs Regarding Their Experiences in Inclusive Education: A Meta-Aggregative Review
ανά: Tithi Paul, κ.ά.
Έκδοση: (2022-04-01)

Application of Microhaplotypes in Sibling Kinship Testing
ανά: Xuan TANG, Dan WEN, Chu-dong WANG, Ru-yi XU, Hong-tao JIA, Jie-nan LI, Bai-yi-la ZHALAGA
Έκδοση: (2023-06-01)

Parentification, distress, and relationship with parents as factors shaping the relationship between adult siblings and their brother/sister with disabilities
ανά: Annalisa Levante, κ.ά.
Έκδοση: (2023-01-01)

Conflict management in adult sibling relationships: Differences in interpersonal power, sibling influence, and conflict tactic use among sibling types
ανά: Mary E. Donato, κ.ά.
Έκδοση: (2017-10-01)

A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada
ανά: Linda Nguyen, κ.ά.
Έκδοση: (2023-12-01)

Experiences of adult siblings of individuals with autism spectrum disorder in Singapore
ανά: Yip, Jiamin
Έκδοση: (2024)

Family Sibling Effect and Executives’ Corporate Social Behavior
ανά: Minna Zheng, κ.ά.
Έκδοση: (2021-06-01)

Siblings of Adults with Learning Disabilities: An Empirical Study
ανά: Valerie Gant
Έκδοση: (2018-12-01)

Children’s Grief and Creativity: The Experience of Losing a Sibling
ανά: Marcela Lança de Andrade, κ.ά.
Έκδοση: (2018-03-01)

The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
ανά: Wei Ling Chin, κ.ά.
Έκδοση: (2018-07-01)

Infant siblings and the investigation of autism risk factors
ανά: Newschaffer Craig J, κ.ά.
Έκδοση: (2012-04-01)

Does Policy Impact Equitable Access to Services? A Critical Discourse Analysis of Discharge Policies in Paediatric Rehabilitation
ανά: Meaghan Reitzel, κ.ά.
Έκδοση: (2022-09-01)

Siblings as a Context for Positive Development: Closeness, Communication, and Well-Being
ανά: Samantha LeBouef, κ.ά.
Έκδοση: (2021-07-01)

Cherubism in siblings: A case report
ανά: Sarda D, κ.ά.
Έκδοση: (2007-03-01)

HUBUNGAN ANTARA SIBLING RIVALRY DENGAN STRES PADA ANAK
ανά: Tenny Yanuari, κ.ά.
Έκδοση: (2011-08-01)

Sibling bullying reported by emerging adults: Profiling the prevalence, roles, and forms in a cross-country investigation
ανά: Kristen Cvancara, κ.ά.
Έκδοση: (2024-07-01)

Siblings’ experiences of having a brother or sister with an eating disorder
ανά: A. Heneghan, κ.ά.
Έκδοση: (2022-06-01)

The sibling experience: growing up with a trans sibling
ανά: Eleanor Parker, κ.ά.
Έκδοση: (2021-04-01)

Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review
ανά: Freeman Matthew, κ.ά.
Έκδοση: (2018-08-01)