Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Background: As children and adolescents with a chronic health condition (CHC) age and transition to adulthood, many will increasingly assume responsibilities for the management of their healthcare. For individuals with CHCs, family members including siblings often provide significant and varied supp...

Bibliografski detalji
Glavni autori:	Linda Nguyen, Hanae Davis, Samantha Bellefeuille, Jessica Havens, Susan M. Jack, Briano Di Rezze, Marjolijn Ketelaar, Jan Willem Gorter
Format:	Članak
Jezik:	English
Izdano:	Frontiers Media S.A. 2021-10-01
Serija:	Frontiers in Rehabilitation Sciences
Teme:	chronic health condition siblings qualitative analysis pediatrics family-centered services healthcare management
Online pristup:	https://www.frontiersin.org/articles/10.3389/fresc.2021.724589/full

Slični predmeti

Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition
od: Nguyen Linda, i dr.
Izdano: (2021-09-01)

Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability: protocol of a scoping review
od: Susan Jack, i dr.
Izdano: (2021-07-01)

The relationship between spasticity in young children (18 months of age) with cerebral palsy and their gross motor function development
od: Verschuren Olaf, i dr.
Izdano: (2009-09-01)

Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A
od: Linda Nguyen, i dr.
Izdano: (2018-01-01)

Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom
od: Linda Nguyen, i dr.
Izdano: (2022-11-01)

The TRUST Study—TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus
od: Simran Heera, i dr.
Izdano: (2024-07-01)

Sibling Abuse: Definition, Causes and Differences between Sibling Relationship with Sibling Abuse
od: Esra Işık, i dr.
Izdano: (2016-03-01)

CONGRUENCE BETWEEN SIBLING RELATIONSHIP AND PARENTING PRACTICES ACROSS OLDER AND YOUNGER SIBLINGS
od: Şule SELÇUK, i dr.
Izdano: (2020-06-01)

The use of the Rotterdam Transition Profile: 10 years in review
od: Zhang-Jiang Sofía, i dr.
Izdano: (2018-05-01)

A Pilot Study of Younger Sibling Adaptation: Contributions of Individual Variables, Daily Stress, Interparental Conflict and Older Sibling’s Variables
od: Laura Merino, i dr.
Izdano: (2021-05-01)

Sibling Violence
od: Nathan H. Perkins, i dr.
Izdano: (2020-01-01)

Siblings in Greek families: raising a child with disabilities
od: Anastasia Tsamparli, i dr.
Izdano: (2011-02-01)

“Bullying in Incognito Mode”: The evolution of sibling bullying
od: Suhas Chandran, i dr.
Izdano: (2019-01-01)

Sibling gender dynamics and childhood stunting in Ghana
od: Peter Annor Mensah, i dr.
Izdano: (2024-12-01)

Sibling Violence and Position in Sibling Dyad in a Sample of Adolescents: How Does It Relate to Self-Esteem?
od: Catarina Pinheiro Mota, i dr.
Izdano: (2023-10-01)

A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity: Family Perspectives and Recommendations
od: Lin Li, i dr.
Izdano: (2025-02-01)

LEARN 2 MOVE 2-3: a randomized controlled trial on the efficacy of child-focused intervention and context-focused intervention in preschool children with cerebral palsy
od: Verschuren Olaf, i dr.
Izdano: (2010-11-01)

Critically Examining the Person–Environment Relationship and Implications of Intersectionality for Participation in Children's Rehabilitation Services
od: Meaghan Reitzel, i dr.
Izdano: (2021-09-01)

Explaining Differences Between Sibling Relationships in Schizophrenia and Nonclinical Sibling Relationships
od: Léa Plessis, i dr.
Izdano: (2020-04-01)

Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care
od: Lin Li, i dr.
Izdano: (2024-01-01)

CANADIAN EARLY ADOLESCENTS’ SELF-DISCLOSURE TO SIBLINGS AND BEST FRIENDS
od: Brynheld Martinez, i dr.
Izdano: (2013-04-01)

Perspectives of Children and Youth With Disabilities and Special Needs Regarding Their Experiences in Inclusive Education: A Meta-Aggregative Review
od: Tithi Paul, i dr.
Izdano: (2022-04-01)

Application of Microhaplotypes in Sibling Kinship Testing
od: Xuan TANG, Dan WEN, Chu-dong WANG, Ru-yi XU, Hong-tao JIA, Jie-nan LI, Bai-yi-la ZHALAGA
Izdano: (2023-06-01)

Parentification, distress, and relationship with parents as factors shaping the relationship between adult siblings and their brother/sister with disabilities
od: Annalisa Levante, i dr.
Izdano: (2023-01-01)

Conflict management in adult sibling relationships: Differences in interpersonal power, sibling influence, and conflict tactic use among sibling types
od: Mary E. Donato, i dr.
Izdano: (2017-10-01)

A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada
od: Linda Nguyen, i dr.
Izdano: (2023-12-01)

Experiences of adult siblings of individuals with autism spectrum disorder in Singapore
od: Yip, Jiamin
Izdano: (2024)

Family Sibling Effect and Executives’ Corporate Social Behavior
od: Minna Zheng, i dr.
Izdano: (2021-06-01)

Siblings of Adults with Learning Disabilities: An Empirical Study
od: Valerie Gant
Izdano: (2018-12-01)

Children’s Grief and Creativity: The Experience of Losing a Sibling
od: Marcela Lança de Andrade, i dr.
Izdano: (2018-03-01)

The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
od: Wei Ling Chin, i dr.
Izdano: (2018-07-01)

Infant siblings and the investigation of autism risk factors
od: Newschaffer Craig J, i dr.
Izdano: (2012-04-01)

Does Policy Impact Equitable Access to Services? A Critical Discourse Analysis of Discharge Policies in Paediatric Rehabilitation
od: Meaghan Reitzel, i dr.
Izdano: (2022-09-01)

Siblings as a Context for Positive Development: Closeness, Communication, and Well-Being
od: Samantha LeBouef, i dr.
Izdano: (2021-07-01)

Cherubism in siblings: A case report
od: Sarda D, i dr.
Izdano: (2007-03-01)

HUBUNGAN ANTARA SIBLING RIVALRY DENGAN STRES PADA ANAK
od: Tenny Yanuari, i dr.
Izdano: (2011-08-01)

Sibling bullying reported by emerging adults: Profiling the prevalence, roles, and forms in a cross-country investigation
od: Kristen Cvancara, i dr.
Izdano: (2024-07-01)

Siblings’ experiences of having a brother or sister with an eating disorder
od: A. Heneghan, i dr.
Izdano: (2022-06-01)

The sibling experience: growing up with a trans sibling
od: Eleanor Parker, i dr.
Izdano: (2021-04-01)

Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review
od: Freeman Matthew, i dr.
Izdano: (2018-08-01)