Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

Background: As children and adolescents with a chronic health condition (CHC) age and transition to adulthood, many will increasingly assume responsibilities for the management of their healthcare. For individuals with CHCs, family members including siblings often provide significant and varied supp...

Бүрэн тодорхойлолт

Номзүйн дэлгэрэнгүй
Үндсэн зохиолчид:	Linda Nguyen, Hanae Davis, Samantha Bellefeuille, Jessica Havens, Susan M. Jack, Briano Di Rezze, Marjolijn Ketelaar, Jan Willem Gorter
Формат:	Өгүүллэг
Хэл сонгох:	English
Хэвлэсэн:	Frontiers Media S.A. 2021-10-01
Цуврал:	Frontiers in Rehabilitation Sciences
Нөхцлүүд:	chronic health condition siblings qualitative analysis pediatrics family-centered services healthcare management
Онлайн хандалт:	https://www.frontiersin.org/articles/10.3389/fresc.2021.724589/full

Ижил төстэй зүйлс

Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition
-н: Nguyen Linda, зэрэг
Хэвлэсэн: (2021-09-01)

Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability: protocol of a scoping review
-н: Susan Jack, зэрэг
Хэвлэсэн: (2021-07-01)

The relationship between spasticity in young children (18 months of age) with cerebral palsy and their gross motor function development
-н: Verschuren Olaf, зэрэг
Хэвлэсэн: (2009-09-01)

Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A
-н: Linda Nguyen, зэрэг
Хэвлэсэн: (2018-01-01)

Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom
-н: Linda Nguyen, зэрэг
Хэвлэсэн: (2022-11-01)

The TRUST Study—TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus
-н: Simran Heera, зэрэг
Хэвлэсэн: (2024-07-01)

Sibling Abuse: Definition, Causes and Differences between Sibling Relationship with Sibling Abuse
-н: Esra Işık, зэрэг
Хэвлэсэн: (2016-03-01)

CONGRUENCE BETWEEN SIBLING RELATIONSHIP AND PARENTING PRACTICES ACROSS OLDER AND YOUNGER SIBLINGS
-н: Şule SELÇUK, зэрэг
Хэвлэсэн: (2020-06-01)

The use of the Rotterdam Transition Profile: 10 years in review
-н: Zhang-Jiang Sofía, зэрэг
Хэвлэсэн: (2018-05-01)

A Pilot Study of Younger Sibling Adaptation: Contributions of Individual Variables, Daily Stress, Interparental Conflict and Older Sibling’s Variables
-н: Laura Merino, зэрэг
Хэвлэсэн: (2021-05-01)

Sibling Violence
-н: Nathan H. Perkins, зэрэг
Хэвлэсэн: (2020-01-01)

Siblings in Greek families: raising a child with disabilities
-н: Anastasia Tsamparli, зэрэг
Хэвлэсэн: (2011-02-01)

“Bullying in Incognito Mode”: The evolution of sibling bullying
-н: Suhas Chandran, зэрэг
Хэвлэсэн: (2019-01-01)

Sibling gender dynamics and childhood stunting in Ghana
-н: Peter Annor Mensah, зэрэг
Хэвлэсэн: (2024-12-01)

Sibling Violence and Position in Sibling Dyad in a Sample of Adolescents: How Does It Relate to Self-Esteem?
-н: Catarina Pinheiro Mota, зэрэг
Хэвлэсэн: (2023-10-01)

A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity: Family Perspectives and Recommendations
-н: Lin Li, зэрэг
Хэвлэсэн: (2025-02-01)

LEARN 2 MOVE 2-3: a randomized controlled trial on the efficacy of child-focused intervention and context-focused intervention in preschool children with cerebral palsy
-н: Verschuren Olaf, зэрэг
Хэвлэсэн: (2010-11-01)

Critically Examining the Person–Environment Relationship and Implications of Intersectionality for Participation in Children's Rehabilitation Services
-н: Meaghan Reitzel, зэрэг
Хэвлэсэн: (2021-09-01)

Explaining Differences Between Sibling Relationships in Schizophrenia and Nonclinical Sibling Relationships
-н: Léa Plessis, зэрэг
Хэвлэсэн: (2020-04-01)

Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care
-н: Lin Li, зэрэг
Хэвлэсэн: (2024-01-01)

CANADIAN EARLY ADOLESCENTS’ SELF-DISCLOSURE TO SIBLINGS AND BEST FRIENDS
-н: Brynheld Martinez, зэрэг
Хэвлэсэн: (2013-04-01)

Perspectives of Children and Youth With Disabilities and Special Needs Regarding Their Experiences in Inclusive Education: A Meta-Aggregative Review
-н: Tithi Paul, зэрэг
Хэвлэсэн: (2022-04-01)

Application of Microhaplotypes in Sibling Kinship Testing
-н: Xuan TANG, Dan WEN, Chu-dong WANG, Ru-yi XU, Hong-tao JIA, Jie-nan LI, Bai-yi-la ZHALAGA
Хэвлэсэн: (2023-06-01)

Parentification, distress, and relationship with parents as factors shaping the relationship between adult siblings and their brother/sister with disabilities
-н: Annalisa Levante, зэрэг
Хэвлэсэн: (2023-01-01)

Conflict management in adult sibling relationships: Differences in interpersonal power, sibling influence, and conflict tactic use among sibling types
-н: Mary E. Donato, зэрэг
Хэвлэсэн: (2017-10-01)

A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada
-н: Linda Nguyen, зэрэг
Хэвлэсэн: (2023-12-01)

Experiences of adult siblings of individuals with autism spectrum disorder in Singapore
-н: Yip, Jiamin
Хэвлэсэн: (2024)

Family Sibling Effect and Executives’ Corporate Social Behavior
-н: Minna Zheng, зэрэг
Хэвлэсэн: (2021-06-01)

Siblings of Adults with Learning Disabilities: An Empirical Study
-н: Valerie Gant
Хэвлэсэн: (2018-12-01)

Children’s Grief and Creativity: The Experience of Losing a Sibling
-н: Marcela Lança de Andrade, зэрэг
Хэвлэсэн: (2018-03-01)

The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
-н: Wei Ling Chin, зэрэг
Хэвлэсэн: (2018-07-01)

Infant siblings and the investigation of autism risk factors
-н: Newschaffer Craig J, зэрэг
Хэвлэсэн: (2012-04-01)

Does Policy Impact Equitable Access to Services? A Critical Discourse Analysis of Discharge Policies in Paediatric Rehabilitation
-н: Meaghan Reitzel, зэрэг
Хэвлэсэн: (2022-09-01)

Siblings as a Context for Positive Development: Closeness, Communication, and Well-Being
-н: Samantha LeBouef, зэрэг
Хэвлэсэн: (2021-07-01)

Cherubism in siblings: A case report
-н: Sarda D, зэрэг
Хэвлэсэн: (2007-03-01)

HUBUNGAN ANTARA SIBLING RIVALRY DENGAN STRES PADA ANAK
-н: Tenny Yanuari, зэрэг
Хэвлэсэн: (2011-08-01)

Sibling bullying reported by emerging adults: Profiling the prevalence, roles, and forms in a cross-country investigation
-н: Kristen Cvancara, зэрэг
Хэвлэсэн: (2024-07-01)

Siblings’ experiences of having a brother or sister with an eating disorder
-н: A. Heneghan, зэрэг
Хэвлэсэн: (2022-06-01)

The sibling experience: growing up with a trans sibling
-н: Eleanor Parker, зэрэг
Хэвлэсэн: (2021-04-01)

Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review
-н: Freeman Matthew, зэрэг
Хэвлэсэн: (2018-08-01)