User experiences of an American-adapted moderated online social media platform for first-episode psychosis: Qualitative analysis

Objectives The current study sought to qualitatively characterize the experiences of American users in a recent open trial of the Horyzons digital platform. Methods In total, 20 users on Horyzons USA completed semistructured interviews 12 weeks after their orientation to the platform and addressed q...

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Main Authors: Elena L Pokowitz, Bryan J Stiles, Riya Thomas, Katherine Bullard, Kelsey A Ludwig, John F Gleeson, Mario Alvarez-Jimenez, Diana O Perkins, David L Penn
Format: Article
Language:English
Published: SAGE Publishing 2023-05-01
Series:Digital Health
Online Access:https://doi.org/10.1177/20552076231176700
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author Elena L Pokowitz
Bryan J Stiles
Riya Thomas
Katherine Bullard
Kelsey A Ludwig
John F Gleeson
Mario Alvarez-Jimenez
Diana O Perkins
David L Penn
author_facet Elena L Pokowitz
Bryan J Stiles
Riya Thomas
Katherine Bullard
Kelsey A Ludwig
John F Gleeson
Mario Alvarez-Jimenez
Diana O Perkins
David L Penn
author_sort Elena L Pokowitz
collection DOAJ
description Objectives The current study sought to qualitatively characterize the experiences of American users in a recent open trial of the Horyzons digital platform. Methods In total, 20 users on Horyzons USA completed semistructured interviews 12 weeks after their orientation to the platform and addressed questions related to (1) the platform, (2) their online therapist, and (3) the peer workers and community space. A hybrid inductive-deductive coding strategy was used to conduct a thematic analysis of the data (NCT04673851). Results The authors identified seven prominent themes that mapped onto the three components of self-determination theory. Features of the platform itself as well as inter- and intra-personal factors supported the autonomous use of Horyzons. Users also reflected that their perceived competence in social settings and in managing mental health was increased by the familiarity, privacy, and perceived safety of the platform and an emphasis on personalized therapeutic content. The behaviors or traits of online therapists as perceived by users and regular contact with peers and peer support specialists satisfied users’ need for relatedness and promoted confidence in social settings. Users also described aspects of Horyzons USA that challenged their satisfaction of autonomy, competence, and relatedness, highlighting potential areas for future iterations of the platform's content and interface. Conclusions Horyzons USA is a promising digital tool that provides young adults with psychosis with the means to access tailored therapy material on demand and a supportive digital community to aid in the recovery process.
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spelling doaj.art-1d0882130f1d4a3cac80540a0ee1a5f82023-05-23T09:03:19ZengSAGE PublishingDigital Health2055-20762023-05-01910.1177/20552076231176700User experiences of an American-adapted moderated online social media platform for first-episode psychosis: Qualitative analysisElena L Pokowitz0Bryan J Stiles1Riya Thomas2Katherine Bullard3Kelsey A Ludwig4John F Gleeson5Mario Alvarez-Jimenez6 Diana O Perkins7David L Penn8 Department of Psychology, , Ann Arbor, MI, USA Department of Psychology and Neuroscience, , Chapel Hill, NC, USA Department of Psychology and Neuroscience, , Chapel Hill, NC, USA Department of Psychology and Neuroscience, , Chapel Hill, NC, USA Department of Psychology and Neuroscience, , Chapel Hill, NC, USA School of Behavioural and Health Sciences, , Melbourne, VIC, Australia Centre for Youth Mental Health, University of Melbourne, Melbourne, VIC, Australia Department of Psychiatry, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA School of Behavioural and Health Sciences, , Melbourne, VIC, AustraliaObjectives The current study sought to qualitatively characterize the experiences of American users in a recent open trial of the Horyzons digital platform. Methods In total, 20 users on Horyzons USA completed semistructured interviews 12 weeks after their orientation to the platform and addressed questions related to (1) the platform, (2) their online therapist, and (3) the peer workers and community space. A hybrid inductive-deductive coding strategy was used to conduct a thematic analysis of the data (NCT04673851). Results The authors identified seven prominent themes that mapped onto the three components of self-determination theory. Features of the platform itself as well as inter- and intra-personal factors supported the autonomous use of Horyzons. Users also reflected that their perceived competence in social settings and in managing mental health was increased by the familiarity, privacy, and perceived safety of the platform and an emphasis on personalized therapeutic content. The behaviors or traits of online therapists as perceived by users and regular contact with peers and peer support specialists satisfied users’ need for relatedness and promoted confidence in social settings. Users also described aspects of Horyzons USA that challenged their satisfaction of autonomy, competence, and relatedness, highlighting potential areas for future iterations of the platform's content and interface. Conclusions Horyzons USA is a promising digital tool that provides young adults with psychosis with the means to access tailored therapy material on demand and a supportive digital community to aid in the recovery process.https://doi.org/10.1177/20552076231176700
spellingShingle Elena L Pokowitz
Bryan J Stiles
Riya Thomas
Katherine Bullard
Kelsey A Ludwig
John F Gleeson
Mario Alvarez-Jimenez
Diana O Perkins
David L Penn
User experiences of an American-adapted moderated online social media platform for first-episode psychosis: Qualitative analysis
Digital Health
title User experiences of an American-adapted moderated online social media platform for first-episode psychosis: Qualitative analysis
title_full User experiences of an American-adapted moderated online social media platform for first-episode psychosis: Qualitative analysis
title_fullStr User experiences of an American-adapted moderated online social media platform for first-episode psychosis: Qualitative analysis
title_full_unstemmed User experiences of an American-adapted moderated online social media platform for first-episode psychosis: Qualitative analysis
title_short User experiences of an American-adapted moderated online social media platform for first-episode psychosis: Qualitative analysis
title_sort user experiences of an american adapted moderated online social media platform for first episode psychosis qualitative analysis
url https://doi.org/10.1177/20552076231176700
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