What do people living with chronic pain want from a pain forecast? A research prioritization study.
Because people with chronic pain feel uncertain about their future pain, a pain-forecasting model could support individuals to manage their daily pain and improve their quality of life. We conducted two patient and public involvement activities to design the content of a pain-forecasting model by le...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Public Library of Science (PLoS)
2023-01-01
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| Series: | PLoS ONE |
| Online Access: | https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0292968&type=printable |
| _version_ | 1827771138181169152 |
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| author | Claire L Little Katie L Druce William G Dixon David M Schultz Thomas House John McBeth |
| author_facet | Claire L Little Katie L Druce William G Dixon David M Schultz Thomas House John McBeth |
| author_sort | Claire L Little |
| collection | DOAJ |
| description | Because people with chronic pain feel uncertain about their future pain, a pain-forecasting model could support individuals to manage their daily pain and improve their quality of life. We conducted two patient and public involvement activities to design the content of a pain-forecasting model by learning participants' priorities in the features provided by a pain forecast and understanding the perceived benefits that such forecasts would provide. The first was a focus group of 12 people living with chronic pain to inform the second activity, a survey of 148 people living with chronic pain. Respondents prioritized forecasting of pain flares (100, or 68%) and fluctuations in pain severity (94, or 64%), particularly the timing of the onset and the severity. Of those surveyed, 75% (or 111) would use a future pain forecast and 80% (or 118) perceived making plans (e.g., shopping, social) as a benefit. For people with chronic pain, the timing of the onset of pain flares, the severity of pain flares and fluctuations in pain severity were prioritized as being key features of a pain forecast, and making plans was prioritized as being a key benefit. |
| first_indexed | 2024-03-11T12:50:22Z |
| format | Article |
| id | doaj.art-1d8b19f7e43742159805368dc0046b78 |
| institution | Directory Open Access Journal |
| issn | 1932-6203 |
| language | English |
| last_indexed | 2024-03-11T12:50:22Z |
| publishDate | 2023-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj.art-1d8b19f7e43742159805368dc0046b782023-11-04T05:33:03ZengPublic Library of Science (PLoS)PLoS ONE1932-62032023-01-011810e029296810.1371/journal.pone.0292968What do people living with chronic pain want from a pain forecast? A research prioritization study.Claire L LittleKatie L DruceWilliam G DixonDavid M SchultzThomas HouseJohn McBethBecause people with chronic pain feel uncertain about their future pain, a pain-forecasting model could support individuals to manage their daily pain and improve their quality of life. We conducted two patient and public involvement activities to design the content of a pain-forecasting model by learning participants' priorities in the features provided by a pain forecast and understanding the perceived benefits that such forecasts would provide. The first was a focus group of 12 people living with chronic pain to inform the second activity, a survey of 148 people living with chronic pain. Respondents prioritized forecasting of pain flares (100, or 68%) and fluctuations in pain severity (94, or 64%), particularly the timing of the onset and the severity. Of those surveyed, 75% (or 111) would use a future pain forecast and 80% (or 118) perceived making plans (e.g., shopping, social) as a benefit. For people with chronic pain, the timing of the onset of pain flares, the severity of pain flares and fluctuations in pain severity were prioritized as being key features of a pain forecast, and making plans was prioritized as being a key benefit.https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0292968&type=printable |
| spellingShingle | Claire L Little Katie L Druce William G Dixon David M Schultz Thomas House John McBeth What do people living with chronic pain want from a pain forecast? A research prioritization study. PLoS ONE |
| title | What do people living with chronic pain want from a pain forecast? A research prioritization study. |
| title_full | What do people living with chronic pain want from a pain forecast? A research prioritization study. |
| title_fullStr | What do people living with chronic pain want from a pain forecast? A research prioritization study. |
| title_full_unstemmed | What do people living with chronic pain want from a pain forecast? A research prioritization study. |
| title_short | What do people living with chronic pain want from a pain forecast? A research prioritization study. |
| title_sort | what do people living with chronic pain want from a pain forecast a research prioritization study |
| url | https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0292968&type=printable |
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