Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol
Introduction Interstitial lung diseases consist of a range of lung disorders, the most prevalent being idiopathic pulmonary fibrosis (IPF). IPF is a chronic, progressive disease, resulting in loss of lung function and potentially significant impacts on quality of life. There is an increasing need to...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2023-05-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/13/5/e070513.full |
| _version_ | 1797834715370094592 |
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| author | Anne-Marie Russell Anne-Marie Brady Jessica Eustace-Cook Carita Bramhill Donna Langan Helen Mulryan |
| author_facet | Anne-Marie Russell Anne-Marie Brady Jessica Eustace-Cook Carita Bramhill Donna Langan Helen Mulryan |
| author_sort | Anne-Marie Russell |
| collection | DOAJ |
| description | Introduction Interstitial lung diseases consist of a range of lung disorders, the most prevalent being idiopathic pulmonary fibrosis (IPF). IPF is a chronic, progressive disease, resulting in loss of lung function and potentially significant impacts on quality of life. There is an increasing need to address unmet needs in this population as there is evidence that unmet needs may impact quality of life and health outcomes. The key objective of this scoping review is to define the unmet needs of patients living with a diagnosis of IPF and to identify gaps in the literature relating to unmet needs. Findings will inform the development of services and the introduction of patient-centred clinical care guidelines for IPF.Methods and analysis This scoping review is guided by the methodological framework for conducting scoping reviews developed by the Joanna Briggs Institute. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist is used for guidance. The following databases will be searched: CINAHL, MEDLINE, PsycINFO, Web of Science, Embase and ASSIA and include a comprehensive grey literature search. The review will report on adult patients >18 with a diagnosis of IPF or pulmonary fibrosis and be limited to publications from 2011 onwards, with no language restrictions applied. Two independent reviewers will screen articles in consecutive stages for relevance against the inclusion and exclusion criteria. Data will be extracted using a predefined data extraction form and analysed using descriptive and thematic analysis. Findings will be presented in tabular form, coupled with a narrative summary of the evidence.Ethics and dissemination Ethics approval is not required for this scoping review protocol. We will disseminate our findings using traditional approaches that include open access peer-reviewed publications and scientific presentations. |
| first_indexed | 2024-04-09T14:43:06Z |
| format | Article |
| id | doaj.art-1db0ff44724f48d0a066cfe29e93211c |
| institution | Directory Open Access Journal |
| issn | 2044-6055 |
| language | English |
| last_indexed | 2024-04-09T14:43:06Z |
| publishDate | 2023-05-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj.art-1db0ff44724f48d0a066cfe29e93211c2023-05-03T01:30:06ZengBMJ Publishing GroupBMJ Open2044-60552023-05-0113510.1136/bmjopen-2022-070513Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocolAnne-Marie Russell0Anne-Marie Brady1Jessica Eustace-Cook2Carita Bramhill3Donna Langan4Helen Mulryan5College of Medicine and Health, University of Exeter, Exeter, Devon, UKTrinity Centre for Practice and Healthcare Innovation, School of Nursing & Midwifery, Trinity College Dublin, Dublin, IrelandThe Library of Trinity College Dublin, Trinity College Dublin, Dublin, IrelandTrinity Centre for Practice and Healthcare Innovation, School of Nursing & Midwifery, Trinity College Dublin, Dublin, IrelandDepartment of Respiratory, Galway University Hospital, Galway, IrelandDepartment of Respiratory, Galway University Hospital, Galway, IrelandIntroduction Interstitial lung diseases consist of a range of lung disorders, the most prevalent being idiopathic pulmonary fibrosis (IPF). IPF is a chronic, progressive disease, resulting in loss of lung function and potentially significant impacts on quality of life. There is an increasing need to address unmet needs in this population as there is evidence that unmet needs may impact quality of life and health outcomes. The key objective of this scoping review is to define the unmet needs of patients living with a diagnosis of IPF and to identify gaps in the literature relating to unmet needs. Findings will inform the development of services and the introduction of patient-centred clinical care guidelines for IPF.Methods and analysis This scoping review is guided by the methodological framework for conducting scoping reviews developed by the Joanna Briggs Institute. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist is used for guidance. The following databases will be searched: CINAHL, MEDLINE, PsycINFO, Web of Science, Embase and ASSIA and include a comprehensive grey literature search. The review will report on adult patients >18 with a diagnosis of IPF or pulmonary fibrosis and be limited to publications from 2011 onwards, with no language restrictions applied. Two independent reviewers will screen articles in consecutive stages for relevance against the inclusion and exclusion criteria. Data will be extracted using a predefined data extraction form and analysed using descriptive and thematic analysis. Findings will be presented in tabular form, coupled with a narrative summary of the evidence.Ethics and dissemination Ethics approval is not required for this scoping review protocol. We will disseminate our findings using traditional approaches that include open access peer-reviewed publications and scientific presentations.https://bmjopen.bmj.com/content/13/5/e070513.full |
| spellingShingle | Anne-Marie Russell Anne-Marie Brady Jessica Eustace-Cook Carita Bramhill Donna Langan Helen Mulryan Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol BMJ Open |
| title | Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol |
| title_full | Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol |
| title_fullStr | Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol |
| title_full_unstemmed | Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol |
| title_short | Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol |
| title_sort | exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis a scoping review protocol |
| url | https://bmjopen.bmj.com/content/13/5/e070513.full |
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