Toward recovery-oriented perinatal healthcare: A participatory qualitative exploration of persons with lived experience and health providers’ views and experiences
Abstract Background Perinatal mental health disorders (PMHD) remain often undetected, undiagnosed, and untreated with variable access to perinatal mental health care (PMHC). To guide the design of optimal PMHC (i.e., coproduced with persons with lived experience [PLEs]), this qualitative participa...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2023-01-01
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| Series: | European Psychiatry |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S0924933823024641/type/journal_article |
| _version_ | 1797352747796791296 |
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| author | Marine Dubreucq Mathilde Thiollier Sarah Tebeka Pierre Fourneret Marion Leboyer Sylvie Viaux-Savelon Catherine Massoubre Corinne Dupont Julien Dubreucq |
| author_facet | Marine Dubreucq Mathilde Thiollier Sarah Tebeka Pierre Fourneret Marion Leboyer Sylvie Viaux-Savelon Catherine Massoubre Corinne Dupont Julien Dubreucq |
| author_sort | Marine Dubreucq |
| collection | DOAJ |
| description |
Abstract
Background
Perinatal mental health disorders (PMHD) remain often undetected, undiagnosed, and untreated with variable access to perinatal mental health care (PMHC). To guide the design of optimal PMHC (i.e., coproduced with persons with lived experience [PLEs]), this qualitative participatory study explored the experiences, views, and expectations of PLEs, obstetric providers (OP), childcare health providers (CHPs), and mental health providers (MHPs) on PMHC and the care of perinatal depression.
Methods
We conducted nine focus groups and 24 individual interviews between December 2020 and May 2022 for a total number of 84 participants (24 PLEs; 30 OPs; 11 CHPs; and 19 MHPs). The PLEs group included women with serious mental illness (SMI) or autistic women who had contact with perinatal health services. We recruited PLEs through social media and a center for psychiatric rehabilitation, and health providers (HPs) through perinatal health networks. We used the inductive six-step process by Braun and Clarke for the thematic analysis.
Results
We found some degree of difference in the identified priorities between PLEs (e.g., personal recovery, person-centered care) and HPs (e.g., common culture, communication between providers, and risk management). Personal recovery in PMHD corresponded to the CHIME framework, that is, connectedness, hope, identity, meaning, and empowerment. Recovery-supporting relations and peer support contributed to personal recovery. Other factors included changes in the socio-cultural conception of the peripartum, challenging stigma (e.g., integrating PMH into standard perinatal healthcare), and service integration.
Discussion
This analysis generated novel insights into how to improve PMHC for all users including those with SMI or autism.
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| first_indexed | 2024-03-08T13:21:23Z |
| format | Article |
| id | doaj.art-1e25ecc066ea47c098efb53fd8f477e5 |
| institution | Directory Open Access Journal |
| issn | 0924-9338 1778-3585 |
| language | English |
| last_indexed | 2024-03-08T13:21:23Z |
| publishDate | 2023-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | European Psychiatry |
| spelling | doaj.art-1e25ecc066ea47c098efb53fd8f477e52024-01-18T03:46:47ZengCambridge University PressEuropean Psychiatry0924-93381778-35852023-01-016610.1192/j.eurpsy.2023.2464Toward recovery-oriented perinatal healthcare: A participatory qualitative exploration of persons with lived experience and health providers’ views and experiencesMarine Dubreucq0https://orcid.org/0000-0003-1180-922XMathilde Thiollier1Sarah Tebeka2https://orcid.org/0000-0003-0269-4600Pierre Fourneret3Marion Leboyer4Sylvie Viaux-Savelon5https://orcid.org/0000-0002-4555-3499Catherine Massoubre6Corinne Dupont7Julien Dubreucq8https://orcid.org/0000-0003-4079-4194Centre Referent de Rehabilitation Psychosociale, GCSMS REHACOOR 42, Saint-Étienne, France INSERM U1290, Research on Healthcare Performance (RESHAPE), University Lyon 1, Lyon, FranceMaman Blues Patient Representatives Association, Saint-Etienne, FranceUniversité de Paris, INSERM UMR1266, Institute of Psychiatry and Neurosciences, Team 1, Paris, France Department of Psychiatry, AP-HP, Louis Mourier Hospital, Colombes, FranceDepartment of Psychopathology of Child and Adolescent Development, Hospices Civils de Lyon, Lyon, France Marc Jeannerod Institute of Cognitive Sciences UMR 5229, CNRS & Claude Bernard University, Lyon, FranceFondation Fondamental, Créteil, France Université Paris Est Créteil, INSERM U955, IMRB, Translational NeuroPsychiatry, Créteil, France AP-HP, Hôpitaux Universitaires Henri Mondor, Département Médico-Universitaire de Psychiatrie et d’Addictologie (DMU IMPACT), Fédération Hospitalo-Universitaire de Médecine de Précision en Psychiatrie (FHU ADAPT), Créteil, FranceMarc Jeannerod Institute of Cognitive Sciences UMR 5229, CNRS & Claude Bernard University, Lyon, France Hôpital de la Croix-Rousse, Hospices Civils de Lyon, Lyon, FranceUniversity Hospital of Saint-Étienne & EA 7423, Troubles du Comportement Alimentaire, Addictions et Poids Extrêmes (TAPE), Université Jean Monnet, Saint-Etienne, FranceUniversity Claude Bernard Lyon 1, Research on Healthcare Performance (RESHAPE) INSERM U1290 & AURORE Perinatal Network, Hospices Civils de Lyon, Croix-Rousse Hospital, Lyon, FranceMarc Jeannerod Institute of Cognitive Sciences UMR 5229, CNRS & Claude Bernard University, Lyon, France Department of Child and Adolescent Psychiatry, University Hospital of Saint-Étienne, Saint-Etienne, France Abstract Background Perinatal mental health disorders (PMHD) remain often undetected, undiagnosed, and untreated with variable access to perinatal mental health care (PMHC). To guide the design of optimal PMHC (i.e., coproduced with persons with lived experience [PLEs]), this qualitative participatory study explored the experiences, views, and expectations of PLEs, obstetric providers (OP), childcare health providers (CHPs), and mental health providers (MHPs) on PMHC and the care of perinatal depression. Methods We conducted nine focus groups and 24 individual interviews between December 2020 and May 2022 for a total number of 84 participants (24 PLEs; 30 OPs; 11 CHPs; and 19 MHPs). The PLEs group included women with serious mental illness (SMI) or autistic women who had contact with perinatal health services. We recruited PLEs through social media and a center for psychiatric rehabilitation, and health providers (HPs) through perinatal health networks. We used the inductive six-step process by Braun and Clarke for the thematic analysis. Results We found some degree of difference in the identified priorities between PLEs (e.g., personal recovery, person-centered care) and HPs (e.g., common culture, communication between providers, and risk management). Personal recovery in PMHD corresponded to the CHIME framework, that is, connectedness, hope, identity, meaning, and empowerment. Recovery-supporting relations and peer support contributed to personal recovery. Other factors included changes in the socio-cultural conception of the peripartum, challenging stigma (e.g., integrating PMH into standard perinatal healthcare), and service integration. Discussion This analysis generated novel insights into how to improve PMHC for all users including those with SMI or autism. https://www.cambridge.org/core/product/identifier/S0924933823024641/type/journal_articlecoproduction with persons with lived experiencehealthcare improvementperinatal mental health disorderspersonal recoverystigma |
| spellingShingle | Marine Dubreucq Mathilde Thiollier Sarah Tebeka Pierre Fourneret Marion Leboyer Sylvie Viaux-Savelon Catherine Massoubre Corinne Dupont Julien Dubreucq Toward recovery-oriented perinatal healthcare: A participatory qualitative exploration of persons with lived experience and health providers’ views and experiences European Psychiatry coproduction with persons with lived experience healthcare improvement perinatal mental health disorders personal recovery stigma |
| title | Toward recovery-oriented perinatal healthcare: A participatory qualitative exploration of persons with lived experience and health providers’ views and experiences |
| title_full | Toward recovery-oriented perinatal healthcare: A participatory qualitative exploration of persons with lived experience and health providers’ views and experiences |
| title_fullStr | Toward recovery-oriented perinatal healthcare: A participatory qualitative exploration of persons with lived experience and health providers’ views and experiences |
| title_full_unstemmed | Toward recovery-oriented perinatal healthcare: A participatory qualitative exploration of persons with lived experience and health providers’ views and experiences |
| title_short | Toward recovery-oriented perinatal healthcare: A participatory qualitative exploration of persons with lived experience and health providers’ views and experiences |
| title_sort | toward recovery oriented perinatal healthcare a participatory qualitative exploration of persons with lived experience and health providers views and experiences |
| topic | coproduction with persons with lived experience healthcare improvement perinatal mental health disorders personal recovery stigma |
| url | https://www.cambridge.org/core/product/identifier/S0924933823024641/type/journal_article |
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